Tab has been over 300 for days. I know this because he has been wearing his brother’s old Dexcom.
We’ve been on the road. I contacted the on-call endo over Thanksgiving weekend. The person doesn’t know us. To make myself sound legit, I explain I have another child who’s had Type 1 for five years. But I’m calling about the other one, the one who was diagnosed this summer but who doesn’t use insulin. I wonder—do I sound crazy to her?—do all endos now know about the care and handling of TrialNet halfbloods? Does this require an explanation every time? I say something like he meets the diagnostic criteria, but doesn’t use insulin. Does she know what I mean? I am embarrassed to remember asking if she has heard of my family. No, she’s not familiar. (They don’t sit around a conference table discussing us?) Call back if he has ketones.
Can this be right? The instruction to do nothing (but monitor) feels wrong, and also this: Tab feels fine. Except for when he’s thirsty and miserable. He says his mouth hurts. His gums hurt. He goes to school. He’s 385. No ketones. What if there’s something wrong with the strips? I bought them at a 24-hour pharmacy in New York. It was the last box. One corner was lightly squashed. Perfect for Low Carb diets!
What do I want? I want an endo who has treated someone like Tab to say something like, “Ah, yes. I’ve seen this before. I sent a prescription for Afrezza to your pharmacy. Have him take a sniff whenever he’s over 200 and keep using the Dexcom.” Or, “I know it seems crazy, but this is why it is better for us to leave his blood glucose at 300 for days at a time than for him to use insulin: [insert as yet unimaginable, perfectly logical explanation here.]” Or, “A lot of Muggles are over 300 for at least a week after Thanksgiving. It’s something in the pumpkin pie. Call back next week if he’s still over 300.” Or, “Here is a check for six million dollars.”