All Night Long

TrialNet must be getting more and more popular—it is definitely getting more convenient. Jack’s TrialNet Anti CD-3 stuff started at Yale. So far away! Soon after that, Yale set it up so Jack could have follow-up appointments at Joslin. Still pretty far away. Now Joslin has begun to let us have some of the follow-ups at Hasbro. That’s practically right down the street.

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BYOB (-lood Kit)

So today we met a TrialNet researcher at Hasbro. She organized the documents, tubes, mailing labels, and the ice pack from Joslin and brought us to a phlebotomist for a random glucose test. (Random = not fasting, and not after having eaten any particular thing.) If the random glucose is over X concerning number, we’ll be called back sooner than his regularly scheduled OGTT. I think it would have to be pretty high (I dunno, 200+?) to make that happen. Other than that, we will not hear a peep.

Walking through the parking garage on our way in, I noticed Jack’s lips were stained purple. He had been eating blueberries. I asked him if he wanted to test, so we could see what kind of tube of blood we would be sending to TrialNet.

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Who eats an entire pint of berries and gets a 141mg/dL**? Someone without diabetes, that’s who.

I wish I felt more BOOYA(!) about this. In reality, I am in agony. I’m having trouble sleeping because I’ve been obsessing about sending a person off to college with all of this medical apparatus and if a person doesn’t change his own site in seventh grade, is there any hope at all for the person at eighteen? And stuff like that. Then I flip over and think:

  1. Keep it together, woman! That Bionic Pancreas will be ready
  2. And even if it’s not, usually people are more mature at eighteen than twelve
  3. He babysits a dog alone in a house for a few hours at a stretch; is that like college?

Then I turn to the other side and think:

  1. This seems like it is easier for other people
  2. Seriously, everyone find this easy, even people who should find it harder
  3. Or they find it hard but in an easier way
  4. Oh my gah what if he becomes allergic to nuts
  5. Or Cleos

Then I flip over and think:

  1. We never finished painting the trim in the hallway
  2. When we moved into this old house he had that high lead level; then when he was retested, it was down to normal, but it was never clear if the initial lead level was an error or if he had just been very briefly poisoned
  3. The lead gave him diabetes
  4. We never should have moved here

Then I reverse-flip over and think:

  1. Also he had a plantar wart when he was three
  2. Could that have been the environmental trigger? A wart is…a virus? They said the trigger could be a virus…
  3. Or when he was hit in the face with the baseball and had a black eye? Trigger?

Etc. I hope that by writing this down I can make it go away.

**141 mg/dL is pretty perfect. Also, here is a dog.

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