Did Pumpkin Pie Break My Child?

tab

Walking around, drinking water, not eating, no ketones, >300.

Tab has been over 300 for days. I know this because he has been wearing his brother’s old Dexcom.

dex

Turkey and pie at three = high all night.

We’ve been on the road. I contacted the on-call endo over Thanksgiving weekend. The person doesn’t know us. To make myself sound legit, I explain I have another child who’s had Type 1 for five years. But I’m calling about the other one, the one who was diagnosed this summer but who doesn’t use insulin. I wonder—do I sound crazy to her?—do all endos now know about the care and handling of TrialNet halfbloods? Does this require an explanation every time? I say something like he meets the diagnostic criteria, but doesn’t use insulin. Does she know what I mean? I am embarrassed to remember asking if she has heard of my family. No, she’s not familiar. (They don’t sit around a conference table discussing us?) Call back if he has ketones.

bowls

Unrelated: I like these bowls.

Can this be right? The instruction to do nothing (but monitor) feels wrong, and also this: Tab feels fine. Except for when he’s thirsty and miserable. He says his mouth hurts. His gums hurt. He goes to school. He’s 385. No ketones. What if there’s something wrong with the strips? I bought them at a 24-hour pharmacy in New York. It was the last box. One corner was lightly squashed. Perfect for Low Carb diets! 

What do I want? I want an endo who has treated someone like Tab to say something like, “Ah, yes. I’ve seen this before. I sent a prescription for Afrezza to your pharmacy. Have him take a sniff whenever he’s over 200 and keep using the Dexcom.” Or, “I know it seems crazy, but this is why it is better for us to leave his blood glucose at 300 for days at a time than for him to use insulin: [insert as yet unimaginable, perfectly logical explanation here.]” Or, “A lot of Muggles are over 300 for at least a week after Thanksgiving. It’s something in the pumpkin pie. Call back next week if he’s still over 300.” Or, “Here is a check for six million dollars.”

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4 responses to “Did Pumpkin Pie Break My Child?

  1. Sorry to hear this! I’m curious as to why insulin can’t be given. How frustrating! Those bowls are awesome, by the way. 😉

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  2. This must be so frustrating to watch… Any reason you can’t give him 1 or 2 units and watch the effect closely? It’s not like you’re unfamiliar with the whole deal… I hope he comes down soon, and/or a helpful endo is available!

    Love the bowls too. 😊

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  3. Rick Phillips

    The good news is that it will also not likely hurt him significantly until you get him to your doctor. For reference, my mom (a type 1) kept me in FL for 2 weeks with a BS that was over 600 on admission. Remember we did not have glucose testing in those days. My best advice is to do a chart of finger stick and see how things are really running. My guess is that if things really are bridging to type 1 you will have some time. if things are not leading to type 1 the worst case is you will have baseline. Please understand I am not understating the issue of high BS, But so long as you are watching it carefully and have insulin in case he gets rises out of the 300’s, then I would be patient. Also get home sooner than later.

    This item has been referred to the TUDiabetes Blog page for the week of November 21, 2016

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  4. skchrisman

    I think it’s a good bet that a group of someones, somewhere, have sat around a conference table discussing you. Or they will soon enough because you are just THAT interesting. Hoping for better days.

    Did you buy those striking bowls?

    Like

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