Changes

D Blog Week, Day #4: changes.

Three years ago I thought it was brilliant to have a FLY FISHING CREEL for a d-bag. I would carry this everywhere we went, even to walk the dog. With an ice pack in it. NOW, for dog walking: Dexcom and a tube of Glucolift. In a pocket. For longer excursions we currently use this d-bag and have been for some time; it’s perfect for us. The creel became a storage container for grocery bags.

Three years ago I didn’t understand why on earth I would need a 504 plan in our super-supreme school district. This year that changed and we got one. NOW, this week, every day, I have been in the ridiculous-feeling position of explaining the importance of adhering to the 504 to assorted teachers. When you do or don’t do X, this is the negative outcome, this is the part of the 504 that says you can’t or must do X…

On the look out for functional spigots.

On the look out for functional spigots.

Four years ago, I thought my 8-year-old son was being kind of a baby. He wouldn’t get out of bed in the morning. He was a second-grader, but I had to lift him from his bed, steer his head and each limb into the assorted articles of clothing, carry him down the stairs, and perch him on a kitchen stool. He would remain asleep. He had a complete physical. He should go to bed earlier was the prescribed remedy. We made him go to bed at 8:30, then at 8. It was not dark outside. We had him get into bed at 7:30 so he’d have plenty of time to fall asleep. Then we made him get into bed at 7. The sun had yet to set. He remained droopy regardless of bedtime. We went on a big family vacation to Europe with super-fun cousins. He wanted to stay in the cabin or flat regardless of weather, availability of water slides, or country. We forced him to walk around to see assorted sites. He insisted on sitting still or being carried. He was too big to be carried all day. We thought this was kind of funny so we took lots of pictures of each other carrying him. Can you believe this guy? He was hungry but then wouldn’t eat. He was afraid of germs at tapas bars but would guzzle water from any public spigot. He would beg for a drink at every vendor’s cart. He would only eat at a place called Wok to Walk where he would order noodles and then change his mind after a few bites. We thought he was kind of a drag. NOW I feel terrible about all of this and think: he could have been diagnosed so much sooner! It didn’t have to be a whole year of feeling terrible for no apparent reason! Why don’t kids pee on a strip at their annual physicals?P1060222

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16 responses to “Changes

  1. Quite the story about your son’s diabetes onset and missed diagnosis. Do you figure all the food issues were already celiac at that point? Bless his heart to feel so horrible for so long. At least he has a mama tiger fighting for his 504 rights and she has a nice tote bag:-)

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  2. Polina

    We were so lucky that V came down with symptoms right around the time of her well-child visit and was promptly diagnosed by her pediatrician. Because if we did not have that appointment, I would have probably waited longer. We had an explanation and rationalization for every symptom. I think I’ve mostly let go of the guilt because we really did not know. We were so clueless. And we were also so lucky that her appointment happened at the right time and we avoided a major medical emergency. And while I may have let go of the guilt (sort of), I still feel bad. And kind of wanting to kick myself in the shins. Really, all those classic symptoms in front of our eyes and we thought nothing was wrong? WTH. Sigh. So much of letting go of that guilt, huh?

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  3. This breaks my heart.

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  4. Wow, I can’t believe the doctor just said he needs an earlier bedtime. I’m sorry your son had to go through that.

    Thanks for sharing your story!

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  5. The photos of you guys carrying him absolutely did me in.

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  6. That’s something that needs to change NOW. No one should ever have to go through what you and your son did. Thanks for sharing this story.

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  7. I can’t believe the doctors were having a great big problem diagnosing your son. The symptoms are so typical of diabetes. I hope it’s under control now.

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  8. Not that long after I started reading your blog, my son started doing this weird thing of peeing every five seconds.

    After about a day or two I was like ok, I get it, this is why I found that funny blog! It’s all connected. I rushed him to the doctor for the diabetes test even though I was already 100% sure that he had it. I was all prepped to hear that it was was so early, how did I see the signs, etc etc, and I was going to humbly tell them that I had just read all about it in a blog…

    Negative. Hahahah! I still laugh when I think about it. He was just being weird I guess. But the point is that if WOULD have been, he would have been saved a lot of anguish . I, for one, will never miss the signs – because of you! 🙂

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  9. Wow, only four years ago? With your wicked-awesome D-skills, I would’ve thought you’d have at least a decade’s worth of experience, easily.

    But seriously, your flashback is like a glimpse into a normalcy that I haven’t thought of in a long time. Thanks for the memory.

    Let’s change the policy to require kids to pee on sticks at physicals.

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  10. Molly Schreiber

    Wow. Thank you for sharing this. The scariest part for me, is my family went through a similar, but much shorter experience with me. That was 26 years ago..I can’t believe things haven’t changed since then.

    And yes, they should pee on a stick at the pediatrician. I test my children’s blood sugar yearly at home because the doctor never does it!

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  11. Molly Schreiber

    Wow. Thank you for sharing this. The scary part for me, is this could be my family’s story, but shorter. That was 26 years ago. Things should’ve changed by now!

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  12. Molly Schreiber

    Wow. Thank you for sharing. The scary part for me is, this could be my family’s story. I was diagnosed 26 years ago. Things should’ve changed by now!

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  13. I Hate Measuring and Math

    I love your writing style. It breeds empathy, humor, and education in a ‘fun’ manner. My 6.5 year old was dx’d at 3.5, his little brother just turned 4, and this story gave me chills. My little guy is so lazy about walking, and always needs to be carried. I prick his finger frequently, but he’s always in range (knock wood). We did Trial-Net for him two years ago and his results were negative, then the next year they tried to draw blood 3 times unsuccessfully, and I was over it. Reconsidering now though, based on your experience with your older son. Keep writing!

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  14. Sort of feel like crying. That time right before diagnosis is the worst. And to see it in pictures. Punch in the gut. I think I had a shorter time-frame for pre, but still there is a picture or two. So hard to look at now. So obvious now, right? Four years for us too. And hard to move on from that moment. Seriously- a little PTSD. I have some thoughts on how to deal. Will share soon…..

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  15. lifeont1

    I don’t get schmoopy about a lot, but those pictures stung my eyes.

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