bLAhDA

My favorite security blanket sweater is almost completely ruined. Like me!

My favorite security blanket sweater is almost completely ruined. Like me! (That gauze area is the ELBOW.)

Bigfoot no closer LADA expert now than last year.

What best practice? What matter/not matter? It like real diabetes: Everyone figures out what works best for themselves. Also like OCD: it’s a problem when it starts interfering with your life. Or like flu: you need Tamiflu, i.e. you should absolutely, totally be doing something.

Advice, so far, from actual doctor:

1. Test your blood sugar every once in a while. When your fasting blood sugar is regularly over 120 – 130mg/dL, you need to start taking insulin. (OCD/no prob. until life-interference method.)

2. A low carb diet, Vitamin D supplement, and probiotics are all things people think might slow the progression of T1d, but none of this is proven, but if you want to do any or all of that…bully for you. (Flu/DO SOMETHING method.)

Bigfoot current LADA mgmt. method = combination #1 & #2 with a twist: fasting BG Q day: 116, 114, 102 + rub hands, think oh boy, this diet is working, 137, 126, 131 + think this is totally not working, I’d better stop checking my fasting BG for a while so I don’t psych myself out. Followed by chocolate chips. (Guittard).

Combo method also include occasional, well-timed situational eat beau coup carbs (e.g. Cadbury Mini Eggs debut or neighbor shares excruciatingly good peanut butter cookies) and tell self for science and test BG, and BG > 200 mg/dL. Follow up w. tell self Oh my darling, you really shouldn’t have done that. Followed by shaky, shaky crash try so hard sit still, wait for liver/any helper organ kick in, try not drive behind Talbots to secret falafel shop for giant hot falafel, extra tzatziki, pepperoncini…

And Jack, maybe Juvenile LADA?

Recent subjective and objective data: Enraged after eating out @Bertucci’s (pizza) (unlimited rolls followed by pizza): I don’t know why I am so angry and I know I am being a jerk and I just rrrrrrRRRRrrrrr. Test BG: 170-something followed moments later by Mom I need a snack I am SO HUNGRY and I can’t find anything to eat and I feel like I am FREAKING OUT.

BIGFOOT: Would you like a banana?

JACK: (Dark circles under eyes) Yes!

BF: With peanut butter?

JACK: Yes! (With tone of YES OF COURSE GAHDAMMIT.)

(eats)

JACK: I do NOT feel better. I need this feeling to stop!

BF: Do you want these leftover cheese grits?

JACK: Yes! Yes, please!

BF: Do you want me to warm them up?

JACK: No!

BF: Do you want this leftover pulled pork with it?

JACK: Yes!

(eats.)

JACK: I am still not feeling better! What is WRONG with me?

BF: Do you want yogurt?

JACK: YES!

BF: Would you like coconut or strawberry?

JACK: Both. And do we have any granola? Do we have any tortilla chips? Do we have any—

BF: Do you want to test your blood sugar?

JACK: Okay…

67 mg/dL.

Whole thing feels significantly more dire/detrimental to health, seen in child (vs. Bigfoot already ruined—sun damage, screws in broken leg, childbirth, etc.) But could also be normal teenager mood. Sixty-seven not even officially low for Normies.

Stay optimistic or stay Chicken Little. Either way, nothing to do. Watch/don’t watch. Vitamin D gummies/don’t. Test/don’t test. Worry/don’t worry. All the same: persons feel occasional crapfest.

If somehow landed this blog bc interested more coherent discussion re slow-mo T1d diagnosis, download DSMA ‘Rents Tina episode. Another good & helpful thing here.

Advertisements

7 responses to “bLAhDA

  1. I’m so sorry you and your kiddo are struggling with the tightrope.

    I think that experiencing your first desperate low must be so scary and I am so sorry that you had to shovel food in to yet another kid.

    I guess there’s a bright side in that it can only get more manageable.

    Have you work a dexcom sensor yet?

    Liked by 1 person

  2. I think you just described why we know so little about the onset of diabetes, regardless of type. Hope it gets easier for you.

    Liked by 2 people

  3. skchrisman

    I don’t know what to say. Rawrrrrrrr.

    Liked by 1 person

  4. shannon

    E totally feels that way at 67. sometimes feels that way at 80. so YDMV, ya know!

    all this fucking sucks bro. keep up the humor, pal, sometimes it’s all we’ve got.

    Liked by 2 people

  5. I just really hate this!!!!!

    Like

  6. I wonder too about the vitamin D. Our oldest (t1 the longest) has been taking it b/c the dr said to. But I haven’t been told that and neither has our 2nd oldest (newest diagnosed last year and has same dr as oldest). Nor has the dr recommended it for our other 2 children, who have TrialNet done at that dr’s office so it’s not like they don’t “see” them at all. (The adult gummies I take has vit D.)

    Like

Please say things:

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Bigfoot say other thing

%d bloggers like this: