So many notes to self.
TrialNet Anti-CD3 one-year follow up appointment.
EKG, etc.: normal. Excellent health. Taller. Many lacrosse bruises.
OGTT: fasting 94 mg/dL. One hour, 231 mg/dL. Two hours, 210 mg/dL.
Endo says Well, this is not the official number. And he’s been here before…we’ll see what happens after we get the numbers back from TrialNet.
Nurse says and the glucometer we use can be off by like thirty or forty points, so…
Jack = unconcerned. His attitude is: I either have it or I don’t. I think there’s also an element of: even if I have it, it will be like Mom’s, and she doesn’t have to do anything. And he’s right**. I’m valiantly refraining from meandering around my brain on this issue, except for:
Within a few weeks, we will get official results from TrialNet.
- If official result is >200 mg/dL, schedule repeat OGTT within a few weeks.
- If official result (or repeated OGTT) is < 200 mg/dL, continue with 2x/year OGTTs as per Anti-CD3 protocol.
- If repeated OGTT is >200 mg/dL, figure that out then.
**But my inkling is, for a child, The You’re Diagnosed Protocol will be something more than what is happening with me (i.e. doing pretty much nothing).
TrialNet’s adored Joslin endo went over my August OGTT results with me.
In August, my OGTT was thisclose to merely abnormal when in the past year and three months they have all been deeply diagnosable, diagnosable, and diagnosable. And diagnosable. (Those links are just to past obsessive posts re OGTTs.)
ENDO: You see, at the end of the most recent test, you were at 201. If you had been at 199, that wouldn’t even be diagnosable as diabetes.
BIGFOOT: But 201—isn’t that like, what, plus or minus at least…five, so…
ENDO: Well, no. We have to draw the line somewhere, so 201 counts as 201.
BFOOT: At the one I’ll have this winter, if I’m under 200, will you un-diagnose me?
ENDO: Well…no. We don’t un-diagnose people. Because once the disease progresses to your level, and the damage has been done to the insulin-producing cells…
BF: But could it be the gluten free diet? You know our younger boy was diagnosed with celiac exactly a year ago, so I haven’t been eating gluten, and doesn’t it seem like gluten…
ENDO: It could be. There is one [holds up index finger for emphasis of not-science] published case of a child diagnosed with Type 1 who reversed the course of the disease with a gluten free diet
BF: Is this that Scandinavian dude? [I was actually thinking of this Danish dude.]
ENDO: I’m not sure of his nationality. And you have to remember, it’s just this one case.
But I am already envisioning this headline:
Woman Cures Type 1 diabetes with Gluten Free Except for Beer Diet