Sleep Tight

photo 1

After each appointment, he rushes downstairs and out of the building to hop over this railing and jump off of this wall.

It endo day. Bigfoot notes for future self.

Confusions:

  • Endo adjusted Bubs’s basal/bolus rates by reading his Dexcom data graph, and considering those many colorful dots in relation to the basal and bolus rates we have programmed into the Ping
  • But-but-but sometimes eats breakfast at…10:30 in the summer. On the Ping, the bolus ratio at that time is 1:18; however, we bolus at 1:10 for breakfast regardless of the hour. So the bolus rates listed in the pump are not really part of the happenings on the Dexcom line graph. I didn’t even know a 1:18 was in there. That must have been something leftover from school/recess.
  • This made me realize we’ve been doing things in a way that makes sense to us, but complicates things for the graph analyst:
    • We never use the bolus calculator to dose. Using up/down arrows to enter numbers is so tiresome, and I always have done the math in my head to sort of double-check that the dose makes sense anyway (i.e. that I haven’t entered a typo. An arrow-o), and then add a bonus 0.2u or so if there will be a great deal of sitting still
    • We’ve been (PROUD SKILL ALERT) using the Dexcom to predict lows/highs and employ a temp basal, so even the basal rates listed in the Ping are not that meaningful, since they’re so often tweaked/turned off/jacked up depending on the moment.

Last time endo work graph-number magic and Bigfoot think make no sense, endo exactly right. So. Even though make no sense, Bigfoot try this way. Because medicine-science-experience-faith.

The secret to the 8HBP.

The current key to a solid, few days-long run of 8HBP.

Except:

  • She thinks he is “too tight” at night. He has been riding a flat path of 80-100ish at night, and she would like this to be higher.
  • I hate to give this up.
  • We have been sleeping so well.
  • So well, as in: eight hours, both parents.

Not want follow endo night basal program. Never give up 8HBP. Hang on as long as can. But BG sort of droopy toward morning (100-ish at bedtime /80-ish at wake-up typical). Maybe that problem.

More things:

  • 5′ 0.3″ and 82 lbs. Grew without gaining weight, so BMI is down. (Down 0.9 lbs.) Pffffft. I thought the gluten free diet had already solved the weight problem. Small meals more frequently? Heartier snacks? Large hot fudge sundae?
  • A1c = 6.
  • Officially noted in patient chart: Contact-Detach infusion sets huge improvement, dermatologically and maybe infusionastically too.

Okay. See in October! Thank you.

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15 responses to “Sleep Tight

  1. I like knowing we are on the same endo schedule. My takeaway was to stop kidding myself at dinner time and actually bolus appropriately (my interpretation). I like to pretend that drinking 2 glasses of wine and snacking before the actual meal is all “free”.

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  2. Sounds like you’re doing great – the doctor just wants to make some of the tasks easier for you/Bubs. (Also doesn’t want liability of sending a kid to bed with BG of 80 and highest basal rate of the day, but in the end, what you/he do with your/his pump is your/his business, not doctor’s).

    Contact-Detach…Infusionastic! Sounds like a marketing campaign by a breakfast cereal company.

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  3. A1C of 6!!! You should offer your meal planning and diabetes care services to pregnant T1s! I’d move in with you.

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  4. I would love to ride a flat of 80 – 100 all night and wake up around 80, and sleep 8 hours uninterrupted!!! But maybe the endo know something I don’t know, and it’s probably different for kids. But anyway, sounds like you’re doing GREAT!!

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  5. lifeont1

    Ok, so as you left FFL (literally got in a cab) I gushed to Karen how
    Sweet and kind you were. Then she told me you wrote this blog. I wish I knew when we chatted! I love your blog!

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  6. lifeont1

    Ok. So as you left FFL I told Karen how sweet and kind and funny you were. Then she told me you were behind this blog! I wish you told me when we chatted, your blog is so wonderful.

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  7. Sharon Chrisman

    What is this 8 hours you speak of? 8 HOURS? Like…in a row? 🙂
    Low A1Cs here – at 14 no less! Yippeee!
    Hope you’re feeling better Katy.

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