Reverse the Curse

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the place for attaching the pasta roller was a 17-toothpick job. i kept the mixer; the pasta roller had to go.

Lately every medical fear Bigfoot consider seem come true. Each day medical tangle merge w real life fascinating/terrible new ways.

Pediatric endocrinologist (not thyroid. Let’s check for celiac)

Pediatrician (annual physical. High cholesterol? But high HDL not LDL)

Psychologist (it’s not anxiety, it’s depression)

Trumpet teacher (rescheduling lunch)

Psychiatrist (celiac can cause depression)

Pediatric gastroenterologist (celiac indeed)

Ungluten home (clean/give away/throw away)

Mary’s Doughnuts (requires new doughnut pan)

Psychologist (the celiac group nutrition meeting will be too general for you since he has diabetes; you should see if you can skip over it and go right to an individual appointment)

Nutritionist secretary (everyone must attend the group meeting before having an individual meeting, but I’ll see if your request can be accommodated)

Nutritionist (…)

Children w. chronic illness group behind-scenes chronic illness-theme tour of zoo (Ferret w. adrenal disorder grows tumors that continuously churn out insulin, so he has to eat molasses all day to avoid seizures and comas!)

Flu shots (forgot to go last night)

This kind of thing seems impossible to ungluten. I loved this pan for a nice lemon-honey pound cake.

this gorgeous pan seemed impossible to ungluten. Surely we are all better off without its lemon-honey cakes

Birthday party host (dreamboat serving Udi’s pizza and GF cupcakes but should I bring a GF plate/knife?)

School nurse (peanut butter on 4g CHO rice cake vs. 7g CHO size. Just calling to make sure it was ten grams for the whole thing.)

Pediatrician (lab slip celiac Jack, but remember he’ll have to be eating gluten for about a week before you get the blood drawn)

TrialNet AKA father-son gluten binge (@Yale 2 weeks)

School principal (meet re how plan for absent from school)

Teacher team (meet re plan for absence)

Tooth fairy (how much for a tooth that fell out during an endoscopy?)

Edgepark (time to reorder your Dexcom supplies with our byzantine telephone system)

Adult endocrinologist (he will see you in January)

Room Parent (please contribute $15 toward our classroom treasury for party snacks)

CVS (Hello! This is a courtesy call from. CVS. Pharmacy. Our records indicate that you have. A prescription. Ready for pick up)

Principal (is changing lunch time on trumpet days a medical request or a social request?)

Underlying everything: permanent heart cramp re dog

Today, orthodontist. Brain/heart/lungs fill w dread as enter waiting room, despite well-stocked Keurig bar + up-to-minute magazines + Today Show segment re what fox say. Feel spirit deflate as consider what if add braces into this overwhelming medical clusterfluff? Then think Don’t think it! Everything you think about happens! Don’t think of braces. Don’t think of head gear! Don’t think of prescription toothpaste. Don’t think of cancer car accidents trampoline-related head injury.

Boys in exam room, Bigfoot read October issue Real Simple magazine.

at the orthodontist

rolling the dice at the orthodontist

Hallelujah! No follow-up needed until February 2014; too many baby teeth. Turn corner, turn page, turn over new leaf. Sunshine & rainbows.

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12 responses to “Reverse the Curse

  1. Whew. On the days I feel overwhelmed with a sick toddler, no sleeping, feet hurting, crazy blood sugars, infertility crap, fat-feeling, under-eye-bags crazy, and worry for everything under the sun, I always note that other folks are going through so many other things – the same and even worse – and I strive to be thankful for what I have. It’s tough. I send you many many hugs!!!

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  2. Isn’t there some sort of Potteresque spell you can shout out loud for times like these? To make everything better? I wish. Hang in there.

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  3. In a few short months you can throw a big end-of-the year “Suck-it-2013” party. I hope it’s off-the-hook. In the meantime, Tito’s handmade vodka is gluten-free, so you don’t need to worry about cross-contamination. Vodka, crystal-lite pink lemonade and a squeeze of real lemon will chase away any curse. XOXO.

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  4. Bigfoot Mama is doing a good job….

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  5. Anonymous

    Hang in there. Even when you have more on your plate than anyone should have to handle, you don’t lose your sense of humor. That’s a gift from God. And those around you must surely appreciate your lifting their spirits. The gluten-free thing is so challenging. I would never have thought you had to get rid of all your appliances. You love to cook and that is going to be your, and Bub’s saving grace. I can only imagine the inventive treats you will be posting once you get the hang of gluten-free baking. Our DD does not have celiac but her CDE recommended Aztec Harvest quinoa pasta which happens to be gluten free. This pasta does not cause lows, than highs all night. We have to under-carb it because it digests quickly and can cause lows. What this means is I can give her two cups of the pasta and charge 55 grams instead of 80. And give a slice or bread or fruit with it (a must). At the 2 hour mark may have to =give more free carbs or not, depending. Not a pasta to give and send him out to play but for dinner at home, great. They get a large enough portion and maybe more desert two hours later (we give 8 grams for each unit of IOB once she reaches 120). Each child will probably be different. But I would not dose carb for carb if using this pasta. It’s the only pasta we use now as dual wave bolus does not help that much for her using regular pasta.

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  6. add some UNICORNS to that call for sunshine and rainbows. YOWWWWZA.

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  7. I can’t even process reading all that…you are in for some GREAT luck real soon!!! Congrats on escaping the braces! Hope you threw a family GF party tonight! xo

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  8. One day at a time. ❤

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  9. You were reading “Real Simple” – I think it’s a sign.

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  10. Pam

    So many weighty things and things that feel extra-weighty in the midst of it all. Yet I totally want to go on the zoo tour of chronically ill animals. And I love that you wrote out EXACTLY how the CVS robocall sounds. Hoping the tide is turning for you and yours.

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  11. Earthling

    Earthling not able process Bigfoot family flow of event either. Think maybe need strangle person somewhere, maybe Big Person in sky or underling script writer. Big sorry and big hug to Bigfoot family. NO FAIR!!!!!

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  12. 2014 bring ease, comfort, stability, and smiles? Maybe if you think of terrific things, they will happen too? Fingers crossed!

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