Celiac Day 2 & 3a

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A good friend takes your opened thing of roasted pepitas, even when your smelly running shoes are parked nearby.

Focus C-day 2 is clear kitchen all gluten.

All day put gluten items on front porch, goad friends into take.

Baking pans, spelt/wheat flours, sesame seed perhaps hulled w. same equipment wheat once visit. Gone.

Bread machine (impossible remove gluten every crevice.)

Waffle maker (ditto.)

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Flour sifter’s sure to be a cesspool.

Cutting boards. Wooden spoons.

Apple juice-infused cranberry also (maybe touch wheat-touched equipment.)

Honey roasted peanut also MTW-TE.

Walnuts too.

Cabinets wiped. Wiped again.

Kind of nice free up so much space.

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Wooden things are the worst, because who would want someone’s scratched up old wooden things?

Next stop Whole Foods. Do you know if you have any nuts that weren’t produced on the same equipment as wheat? Feels insane, say this series words. Inquisitive Customer Service rep is sufferer irritable bowel syndrome, Bigfoot sufferer irritable bowel syndrome too? No, one of my kids was just diagnosed with celiac. Customer Service rep inquire Bigfoot know it possible make granola bar at home? I like making things at home, but I need to find gluten-free ingredients to start. I can’t find nuts that weren’t maybe produced near wheat. No…Whole Foods no GF honey roasted peanut. No GF almond. No GF walnut. All MTW-TE.

Visit Trader Joe’s. Trader Joe’s HRPs same problem, but almonds/walnuts only maybe touch soy/peanut, no gluten—progress! Then think, maybe Whole Foods just has higher standards for labeling things gluten free. Bigfoot mind, Trader Joe = Jimmy Buffet-type flip flop pop top cheeseburger lackadaisical sort not overly concerned w. adhere regulations. Caution-wind: buy Trader Joe’s nuts.

Back home. Goodbye, cute toaster. Hello shiny-new, not cute microwave. Never had microwave. Children stare. Is popcorn gluten free? (I think so.) How does it work? (I don’t know.) Jack, stunned: We’re like a real American family now.

A hit.

A hit.

Dinner time bake Trader Joe’s Gluten Free Pizza. Boys love! Later realize TJGFP baked on (previous home of 1,000,000 gluten-yes pizzas & boules) pizza stone. Sorry.

Bubs report crummy tummy. Psychosomatic? Never had this symptom before diagnosis & three different doctors ask does your stomach hurt? Or maybe now realizes pain = not normal part of eating food.

Day 3

Breakfast time Bubs ask oats, then are oats gluten free? (I think so.) Bigfoot buy GF oats. Then read impossible trust oat crop not dusted w. wheat from neighboring farm; even if oat farm secluded from wheat farm, highway travel from gluten free farm to mill, air full of gluten from wheat farm share same highway. (Srsly?) Decide hold off on oats.

this thing really does seem like a kind of miracle.

the miracle of the paleo crumpet: looks like* an English muffin/3g CHO. (*Smells like eggs.)

But hey! Entire point buy microwave = make paleo crumpet in own home. For first in-house paleo crumpet, instead of boring ramekin, Bigfoot use colorful muffin paper. Think add lively party atmosphere GF breakfast. Not realize this like makeup on corpse, frill only serve underscore macabre sitch.

After initial disappointment crumpet not exciting cupcake, happiness. Paleo crumpet excellent vehicle for favorite jam. Yay! Also full protein (egg, almond flour must be lots) & omega 3’s (ground flax). Yay! Bubs skip (skip!) to garage, hop on bicycle. Yay! Already feel better after one (probably tainted) GF pizza and one untainted breakfast? Paleo crumpet (one minute muffin) recipe here.

24/7 party people use these.

24/7 party people use these.

Ohhh. But breakfast tainted too: jam was opened during gluten times.

Carry on. Pack lunch w. all GF-confirmed foods:

Applegate Farms salami (GF)

Rice cakes(GF) w. (new jar) peanut butter (GF)

Trader Joe’s apple rings (GF)

Apple (GF)

Justin’s Nut Butter peanut butter cup (GF)

Cheese stick (GF)

Water (pretty sure OK)

 

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30 responses to “Celiac Day 2 & 3a

  1. Promise it gets easier as you get used to it all!! You’ll stop second-guessing yourself and everything you find in the grocery stores. You can also get more info from companies regarding the “MTW-TE” issue. Rather than contact them all myself I use the apps “GF Groceries” and “Is the Gluten Free?”. You’ll figure out where your comfort level of strictness is and get in your groove. Me being nosy: Is Jack getting tested for celiac before he goes gluten free?

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  2. Linda

    I want your tree cross section cutting board. I love old wood! I always eat from a hardwood bowl I got 30 years ago in a thrift store – It was old then (Dalai Llama style?). Has a burned place on the outside. I think, “Was a sapling once”. Yay for skipping!!

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  3. My youngest sister is also T1 (dd. 7 yrs old) and was diagnosed with Celiac when she was around 9 – she’s almost 20 now. I am always amazed to read posts by Celiac families that are going hardcore GF. My family has NEVER gone GF. The only GF items in the house were/are some pasta (not all), some cereal (again, not all), the occasional loaf of GF bread, and, now, quinoa. None of the house was gluten-disinfected.

    She eats gluten on a daily basis, but does complain of her stomach hurting kind of a lot. I think my family is crazy for never trying harder to go GF, but so expensive, I can understand too. Her various endos, as far as I know, has never tried hard to push her, let alone my family, GF. The different severity levels of Celiac are fascinating.

    Anyway, good luck!! I hope Bubs is feeling better asap and Jack is ok, too.

    (PS, your wood stuff is cool)

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    • Katy

      does she eat gluten on a daily basis knowingly (like tucking in to a piece of gluten toast), or just sort of atmospherically (like from a tainted cutting board)?

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      • My dad does most of the cooking over there and the only thing he makes purposefully is GF pasta (but it will share a serving spoon with regular). When she is eating anything besides dinner, she eats “regular food,” without concern as to gluten.

        I guess her insides are rotting? I don’t really know what the “consequence” of eating gluten is when you have celiac. (Clearly I don’t have it… I’ve never been screened either, though).

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  4. The thought of using a microwave to eat like a caveman (paleo) amuses me.

    Well, I sure hope that Bubs isn’t so sensitive to gluten dust as he is to gluten embedded in food. Or maybe, to justify your disposal of everything old and purchase of everything new, maybe it’s best that he is.

    I don’t know…the whole thing just stinks. But I get the impression that you’re a good (and creative) chef. I’m sure your family will eat more amazingly than ever before.

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    • That should be “if”, not “that.” “If he is…” Sor.y

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    • ScottE, you should win a “Best of the ‘Betes Blogs” award for best commenter. Always enjoy seeing yours:)

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    • Everyone who has celiac IS that sensitive to gluten dust. Gluten is gluten. I’m not saying that flour in the air is going to cause symptoms, but I am saying that a crumb of gluten on an otherwise gluten free food does contaminate it.

      I am just gluten intolerant so I have some flexibility (that I am choosing NOT to use) but someone with celiac is doing actual damage to their body every time they have gluten. There is a heightened risk of osteoporosis, intestinal cancer, and even infertility for people who have celiac and continue to eat gluten.

      Not trying to scare you Katy, just trying to point out that it IS a serious issue to those people who think it is a lifestyle choice based on the latest fad diet.

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  5. Pancreastic Mom

    You’re an awesome mom.

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  6. *hugs* to you and your family! You are such a great mom!

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  7. YOU NEVER HAD A MICROWAVE UNTIL NOW?!?!?!?!

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  8. Mary Margaret

    I remember the clean out like it was yesterday. I would show up at friend’s houses with bags of groceries. And I had a Sharpie that I labeled everything as I figured it out.
    We have kept one shelf for gluten items. Regular granola bars, oreo cookies, cheerios. Frosted mini-wheats are out because they left too many crumbs. I was going to say, don’t get rid of the toaster, keep it for gluten items and get a second for toasting gf bread.
    Be aware that gluten free is not the same of celiac-friendly gluten free. For example, pizza from pizza parlors, frequently contaminated by the flour in the air. Check out Jennifer Esposito on http://www.wellandgoodnyc.com for a recent take on how the GF craze is really hurting us. When you have that spare reading time, of course!
    What you’re doing may seem like overkill, but it is truly the only way for B to feel better. There are all sorts of different degrees of gluten free, just as we all handle our T1 kids differently. Many celiacs are like Jennifer’s sister and just can’t stay away from gluten. Some people don’t get symptoms and since they don’t feel badly they just keep eating. But I’ll tell you, having a kid who feels better is so worth all the trouble.
    Don’t worry over the small lapses. You have some time to work into the diet and lifestyle. Eating a pizza with a small amount of gluten is so much better right now than eating a full-gluten pizza. Figure you’ll have some lapses over the first few months and don’t beat yourself up.
    Watch for a celiac expo near you. We have Wegmans, and they host events periodically. Our local celiac support group does a fund-raising walk. Events like that have samples galore where you can find out whether you like something without shelling out big bucks for a whole box. Like those odd lemur bars you mentioned.
    Popcorn-yes, gluten free. Pop secret, Orvilles, Newman’s Own. Also the stuff I pop on top of my stove in a pan!

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    • Katy

      thank you for the tips–I feel lucky.

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    • I hope no one was thinking that I thing your clean-out is overkill! You have to do what you have to do for everyone to feel better. Just was thinking about how it’s interesting how different things can be.

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      • Katy

        It *feels* like overkill—like…if the gluten is SO stuck in the tiny cuts in my cutting board that it can not be removed by scrubbing, why would it suddenly pop out (ta-da!) when gluten free food is prepared upon it?

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    • Mary Margaret

      Oh no, I’m getting myself in trouble! I’m sorry Jennifer! I just needed an example of how all celiacs deal differently.
      I figures, as Katy says, that she was probably feeling herself that the clean out is overkill.
      There’s a boxing analogy for celiac. When you’re eating gluten regularly it’s like being in a ring for 13 rounds. You’re numb and one more hit really doesn’t matter. But once you’re off gluten and your body is recovering, it takes just one hit to knock you out. That’s when the gluten in the wood cutting board becomes an issue.
      Also, a low level of contamination like from a kitchen that’s not thoroughly cleaned is about the biggest fear I have. Because I feel mildly bad constantly and have no idea what it is. I would rather eat out, get a huge reaction, and have it over.

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      • Katy

        And now I’m realizing: the stand mixer and the Cuisinart are also impossible to fully decontaminate. Crap. This is getting pricey.

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      • Mary Margaret

        Take a toothpick and clean out the vent on the mixer best you can. Then you’re fine.
        Cuisinart should be cleanable. Put the bowl and knife part through the dishwasher. Don’t worry about the vents on it.

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      • Katy

        thanks, mary. i did the toothpick. gunk city.

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  9. I just love so much that your whole family is going gf.

    It won’t always be so hard it expensive/specific/pain in the butt-ish. I know you know, but just to confirm. Pretty soon you’ll have your set things you always buy. And you’ll find out which non-printed-with-gf-label things are ok to eat anyway. When I first started there were message boards (pre blog days) where things were listed by brand. And things made from whole, naturally gluten free stuff will be your bread and butter (haha pun).
    I like rice cakes in lieu of sandwich- cheaper and better than some of that crap bread. Also, apple slice sandwich where you cut the apple cross ways in thin slices and use it for the “bread”.

    About the stomach ache thing- it could be either way. Psyhcosomatic stuff feels real. But, like I said for me it was a learning curve of realizing that stomachs don’t always hurt.

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  10. Reading this post reminds me of our first day home after Ben was diagnosed with T1 … Something about cleaning out the pantry and suddenly having to count carbs … Hoping you get used to your “new” “new normal” soon

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  11. Have to say that living sans microwave is less difficult than I expected. (We didn’t purchase a new one when we moved in July – left ours with the old house and the crazy people who we bought the house from didn’t have one – or apparently any taste in kitchen appliances.) With the exception of warming things up quickly, I’m cool without having one. But I digress…

    You’re attacked this like a general… and I know that Bubs will feel like he’s back on top of the world soon.

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  12. mollyjade

    My (adult) sister-in-law was just diagnosed. After years of worrying I’d get celiac because of the ‘betes, I’m now convinced (paranoid) my husband has it.

    Now that you have a microwave, you should make mug brownies/cakes. I’ve been playing around with a low carb version. I’m using almond flour (and sometimes soy flour), unsweetened plant milk, cocoa powder, sweetener, oil, vanilla, and salt. And the whole thing is about 10g carbs. Since you use eggs, you could probably find a tried and true recipe pretty easily.

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