TrialNet news, at last.
Jack positive 3 of 5 autoantibodies (not news); OGTT not normal, not abnormal: “indeterminate” (not news); eligible for ACD3 study @Yale (news.)
Joslin doctor says imperative decide quickly, because Jack high risk but not yet “frank diabetes.” September 19th deadline. After pre-9/19 Yale** debut, return New Haven (when?) & live in Ronald McDonald House** for two week drug trial.
Joslin doctor say something like…They used to only run this trial on the recently diagnosed, and it was working, but it wasn’t working well enough, so they have expanded it to include the very high risk group, to catch them before they develop frank diabetes.
Question: possibility delay/prevent Type 1 diabetes outweigh 2 weeks inconvenience, maybe pain, maybe Ronald McDonald nose-breathing down back of neck, travel longest stretch of highway in world at least twice?
Other benefits: camaraderie with families of actual ill people; Yale = near Ikea; science.
Seems like answer obvious: yes. Worth it.
Drawbacks: so inconvenient! Maybe infusion hurts? Maybe nauseated? Maybe rashy? Maybe lymphopenic? Maybe placebo? Missing school, eat in restaurants very hard on carbs and wallet, tedium.
Could also: avoid Yale/ACD3 trial, just visit Joslin every 6 months as planned.
**Confusing but answer is no
Was I accepted into Yale retroactively, and did I basically just win a two week vacation to a fabulous resort?
Wait, but my twelve-year-old son has been accepted to Yale? Answer also no.