Pardonnez mm/mLmoi?

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Mecca

Joslin Diabetes Center TrialNet today.

Recap Jack/Bigfoot Diabetes History so far:

August 2012: Jack = 1 antibody; Bigfoot = 1 antibody; Joe = too old

Fall 2012(?): Bigfoot ask pediatrician test Jack’s A1C. Normal, maybe 5.2?

Winter 2012(?): Bigfoot doctor test A1C because recurrent hmm’ hmm-hmm-hmm. Normal, maybe 4-something?

Fall 2012: Antibody count confirmed w. 2nd blood draw mailed from sketchy Rhode Island laboratory to Joslin in FedEx cold pack

No symptoms throughout year except for recurrent hmm’ hmm hmm hmm & Bigfoot feel tired post carbs but maybe always felt that way and just making big deal of nothing because obsessive?

Today: Find out 2012 Jack actually three antib; Bigfoot mistaken

Today also: height, weight, blood pressure, temperature, waist-to-hips ratio, blood draws for A1C, also check levels 5 antibs, also check for gene famous for protect against T1, and glucose tolerance test.

Preliminary questions for Study Director-Coordinator:

Maybe will the antibodies have gone away? The levels of each antibody can fluctuate, but it’s extremely unlikely that they’d go away completely. We just don’t see that happen

Is having three of the antibodies rare? More rare than one or none, but it doesn’t mean he’ll get diabetes

Will you tell us our blood sugars during the tests? Yes, but we only check three times with the glucometer. I’ll have the results from the official blood draws for you within two weeks

Do you have people here ALL of the TIME for TrialNet? Not ALL of the time, but I’d say at least once a week

I wasn't scared.

I’m not scared.

Jack IV in lickety-split; Bigfoot IV problems. Kind White Scrubs Nurse gently suggest Tell me if it hurts. Just when begin think, “It kind of hurts, but she’s been pushing it in farther and farther and wiggling it around so much that I don’t want to complain because then she might start over and then all of this will have been for noth—” Bigfoot faint. IV out, White Scrubs Hello? Are you there? Are you there? Can you open your eyes? Bigfoot un-faint; Doctor enter. Blood pressure lying down, blood pressure sitting up, blood pressure standing up. Blood pressure kind of low but OK. Doctor diagnose vasovagal syncope, AKA fainting from being whimp. Have you ever fainted before?

BIGFOOT: Yes, a few times. But not lately. I fainted when I had an IUD put in

STUDY DIRECTOR, MPH: Me too!

BLUE SCRUBS NURSE, RN: So did I! Oh my gosh, totally fainted

WHITE SCRUBS NURSE, RN: I’ll be darned, you girls

DOCTOR: I don’t think you should be concerned. It’s quite common. This can happen sometimes to people who are very thin (<—really said! Love)

WHITE SCRUBS: I’m going to let Blue Scrubs take a turn at this. I think I hit a valve (<—Hurl! Conjure gristly chicken knuckle or sheep face shard found in rice, have to swallow for polite.)

Try again. Blue Scrubs pop IV right in. IV saline drip drip drip. Jack laughing, watching film

Crud. Just beating around bush. Should say result. Point of post is lure reader offer predictions. Please.

Cut to chase**.

glucose levels

For comparison—this is re gestational, so maybe the standards are higher/more stringent (lower) ?

Jack: fasting 102, 1h post drink 227, 2h post drink 124 (during test activity: watch Holes, complete diet questionnaire)

Bigfoot: fasting 95, 1 h post drink 264, 2h post drink 228 (during test activity: read Facebook, diet questionnaire)

Possible mitigating factors: data today = special IV tube blood + homestyle One Touch Meter, not pro scientist equipment. Science results (5 or 6? official BGs, A1C, protective gene yes/no, auto-antibody update) mid-August.

Consider also: vasovagal syncope raise BG? Thrilling reference “thin” raise BG? Didn’t sleep last night raise BG?

The scrumptious bed in which I failed to sleep.

The scrumptious bed in which I failed to sleep.

Every Google GTT result declare something along line of…

  • Fasting: 60 -100 mg/dL (Jack FAIL by tiny bit; Bigfoot OK)
  • 1 hour < 200 mg/dL (Both FAIL)
  • 2 hours < than 140 mg/dL (Jack OK, Bigfoot FAIL)

Await official result. Too soon plan green giraffe Tallygear/ pump-accommodating lingerie/ T-slim vs. Ping. (Martyr opportunity = glossy new T-Slim Bubs; Bigfoot use battered Ping.) Just wait. Wait.

Meanwhile, if armchair endocrinologist enjoy prognosticate Bigfoot diabetes: probably Type 2, because no symptoms? Or Type 1 because no family history Type 2 (yes family history Type 1) + kale smoothies for maximum superiority + loathe Paula Deen? Or Type 2 for poetic justice for unnecessary/vehement dislike poor PD?

One other factor: often Bigfoot think will have gained weight from overeating but weight always same. Could be mild version of pre-diagnosis weight loss? Also this: for height, Bigfoot grow one inch. Thought impossible for adult grow taller? Could be haywire thyroid? Didn’t ask.

Other factor just remember: had dilated eye exam April; eyes fine. Would eye interiors reveal D? BUT…vision improved. That sound like D?

Know preferred frame of mind is “don’t worry in advance” and “there’s nothing you can do until you get the official results,” but too curious not poke this hornet nest.

One among many thrilling memorabilia you can see at Joslin

One of many heart-thumping memorabilia you can see at Joslin

**Although really, really wish continue because 2nd IV also not work (“Shoot. No blood is coming out of this one. I think she hit a bone”) and 3rd IV also not work unless hang IV arm and head over side of bed for gravitational assist while White Scrubs RN squat on floor w. syringe & lower arm massage up toward site & tourniquet & Bigfoot squeeze rubber ball. 2nd to last blood draw, feel warmth course down forearm, think Is White Scrubs peeing on me? Then hear Whoa. I made a mess. Then see blood -drenched forearm, favorite ponytail holder on wrist now soaked in blood. Not mention for complain nurse skillz, know not nurse’s fault, crazy veins. Mention for brag: vasovagal syncope syndrome not act up again. Because not needle whimp.

This is how we broke our fast: actual Jewish bagels with lox cream cheese. My heart wasn't in it, on account of me starring in a thrilling drama about my stiff upper lip-style diabetes.

This is how we broke our fast: actual Jewish bagels with lox cream cheese. My heart wasn’t in it, on account of me starring in a thrilling drama about my diabetes.

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16 responses to “Pardonnez mm/mLmoi?

  1. OK, seriously, there are so many things that went on today that I wouldn’t get too worked up over this. First, you fainted. Maybe (I’m discarding my pretend scrubs and wearing my lawyer attire now) when that happens, your body stops making insulin and dumps a crapload of sugar in your bloodstream to wake you up.Second, OneTouch meters really suck (VerioIQ excluded, but they tend to read high, I’m told). Third, with all the trouble they had trying to get blood, maybe they ended up testing the glucose level of Hi-C Fruit Punch.

    I love how you can keep a sense of humor through all this (and through everything, actually), and I really hope that nothing of any interest (along this line of discussion) happens beyond today. I can only imagine how you must be feeling… but please, try to keep calm..

    Like

    • Katy

      This is what I was hoping to hear! Some kind of reason. It was the fainting.

      But the nice 95 was after the fainting by about 45 minutes. Now I will google around blood sugar/fainting.

      Like

  2. Eileen

    The trial net thing is so interesting to me but who knows what it all means…my doc said at a conference recently that antibodies can show up even 8 or 9 years before onset, so even having them may not mean anything is imminent I guess. And what if he has that protective gene…is he all good then? Wish they could whip us all up a batch of that one. My sister diagnosed a friend’s daughter today. She is 8 & I said something about 8 being the “magic age” for dx. In front of my non-D 8 yr old. Mother of the year. Again.

    Like

    • Katy

      Do you call 8 the magic age because it’s the *best* age for diagnosis, or because a lot of kids are diagnosed at 8? B was 8. I feel like 8 is perfect. Too little to doubt parents, old enough to kind of learn science parts, young enough to have years of training before driver’s license.

      Like

      • Eileen

        Was just thinking how many times I ask a parent when their kid was dx’d & they say “8.” If I had a dollar for every time that happened. But I have often thought if we had to get it,8 was good age, especially after I have watched my sister struggle with t1 dx with a 3 year old & my friend with a teenager (doesn’t test enough, won’t talk about pump, won’t consider camp.) At 8 (now 10) he understood the basics & is accepting all that came with the dx as part of life. And he still likes me. We’ll see how long that keeps up!

        Like

  3. Holy cow. I agree with Scott up there…your sense of humor rocks. The vaso-vagal reflex/wimp-y fainting business could elevate your BGs…I would think. I would not freak out yet. Although, I totally get how you cannot help but think about the elevated numbers and their meaning.

    I totally think you’d ROCK some Tallygear girl. Thinking of you.

    Like

  4. How are you resisting the urge to shuffle pitifully around the house like a poor, sick creature while you wait? If that was me, I would not be able to stop myself.

    Also, VVS is totally legit and not about being wimpy. It’s similar to my son’s seizure thing, but instead of having seizures, you faint. Actually, if it was me, that would totally bring me back to my first point, too. You totally need a sick day with people bringing you stuff while you’re in bed.

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  5. I think I almost fainted just reading about the nurses trying to put in the IV. Despite years and years of being stuck with needles and such, I AM an IV wimp. Never fainted completely, but when I had fibroid surgery and also my c-section, there were times when they were sticking needles in my hands and arms where I literally almost threw up and fainted. My 3 month endo lab work appointments are dependent on which nurse does the sticking. If they go digging around in my arm like they are searching for gold using only a dull sppon….watch out.

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  6. Oh my goodness … So sorry to hear about the fainting (and the BGs) … For now will focus on the photo that scrumptious bed and keep you both in my prayers

    Like

    • Katy

      Thanks for feeling my pain, or my curiosity. This whole thing is weird. I thought the point was for them to find out we had no antibodies and normal pancreases. Go figure!

      Sent from my iPhone

      Like

  7. Livie went from 3 to 2 auto-antibodies. The good folks at CHLA and CHOC say they see it happen all the time. It’s such a crap-shoot. Ahhhh, you have such a good sense of humor about it but I know how awful it is to worry about the “what if” of a second with T1D. It was almost harder for me than when Ella was diagnosed. Hang in there & try not to worry too much about what could happen. I let it steal today’s joy for much too long – my new “ahhhh, screw it!'” attitude is so much more fun.

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  8. Pingback: LADAdidah | Bigfoot Child Have Diabetes

  9. Pingback: Whoomp. | Bigfoot Child Have Diabetes

  10. Pingback: TrialNet (Argo) | Bigfoot Child Have Diabetes

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