More compelling issue than sex ed: how tell T1D child diabetes complications/rumors about complications, before learn on the street?
BUBS: Blind people can still see, right?
BIGFOOT: Well, people can be legally blind and still see a little bit, but not very well
BUBS: But most blind people can still see sort of, right?
BFOOT: I don’t know. I don’t think so. Maybe just like…shadowy movements
BUBS: If I am blind, will my whole eye turn white, even on the bluish-hazel part?
BFOOT: No. I’ve never heard of that
BUBS: But my eyes will look scary and I’ll have to wear sunglasses, right?
BFOOT: You mean if you were blind?
(This is where the invisible twin who expresses what I’m feeling started to keen and barf.)
BFOOT: I guess some blind people’s eyes look different, and unfocused, so they wouldn’t really be looking right at you while they were talking, and that might bother some people, so the sunglasses sort of take the unfocused eye issue out of the equation. But I don’t think their eyes are necessarily scary
BUBS: (looks down)
BF: Why are you so curious about blind people today? Did you meet a blind person or a person with eyes that scared you?
BUBS: No, not that
BF: Did someone say something to you
(Here’s where I blew it:)
about diabetic people going blind?
BUBS: No! (Looks horrified.) Diabetic people go blind?
Then Bigfoot ramble hrrrm, well, hunnnh, you might hear something about diabetes and blindness being related but…not need worry; not your problem—only if person high BG all of time, for long time, not take care of self, not count up food/bolus insulin, sure ramble on much too long, then but you take such good care of yourself…but now child afraid. Shit. This morning Bubs wake up call from bed: Mom?
BFOOT: (Responds from bed) Yes?
BUBS: Could I have laser surgery for my eyes when I am blind?
BF: You won’t be blind
BUBS: But if I am, I don’t want anyone to cut my eye with a scalpel
BF: Not happening
Ugh, feel terrible. Need address head-on with facts & if so which ones? Maybe just give information upon request, as experts recommend re sex; not want give child more than can handle. Crap. Just realizing probably, maybe T1D children think along lines of:
- I have diabetes
- I have to have insulin or I will get sick and die
- I have to have sugar if I have too much insulin or I will pass out and die
- I hate hospitals, and I’d probably hate being dead, so I will do what my parents tell me
This probably enough information. But what if Bubs overhear friendly clod share fond memory blind, diabetic grandma or diabetes blindness story on radio–better know in advance than snowball worry/figure out alone with internet.