Diabetes Blog Week #2

TODAY: Recently various petitions have been circulating the Diabetes Online Community, so today let’s pretend to write our own. Tell us who you would write the petition to – a person, an organization, even an object (animate or inanimate) – get creative!! What are you trying to change and what have you experienced that makes you want this change? (Thanks to Briley of inDpendence for this topic suggestion.

Nothing juicy come to Bigfoot mind but not want miss Blog Week Day #2.

  • Consider petition for ban Palagi’s lemonade truck from sell lemonade in front of public school at dismissal time (but it how Palagi family make living!)
  • Consider petition for free iPad per T1 child/year for easy patient access DOC, D-apps, etc (too silly!)
  • Consider admit really, really like name change idea but know not supposed to because all admired persons are against it. Assume Bigfoot outgrow desire distance self from Type 2, grow into “we’re all in this together (even though you have it so much easier and Paula Deen’s sheen of cheesiness makes us all look bad)” acceptance one love/one disease like Dr. Bronner soap bottle (too bitchy!)

Bigfoot got nothing. But love Blog Week.

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17 responses to “Diabetes Blog Week #2

  1. Kay T.

    I thought for sure you would petition B’s pancreas to stop acting so erratically – either fekkin’ work, or don’t! Why must you keep these parents up most nights??

    Like

  2. I see your petition started with Lemons and Apples. It’s making me hungry.

    Like

  3. I second the motion for iPads! w00t!

    Like

  4. Don’t apologize for feeling what you feel about the name change petition. It’s a good conversation (though it’s been contentious) and I think it’s important to hear everyone’s opinions on it. You don’t have to agree with other DOC bloggers to be a part of the family.

    Like

    • katy

      I think it’s more like…I know that I am wrong. The appeal of the name change for me is rooted in pure evil: wanting my child to be separate from (and probably somehow above) ordinary diabetes.

      Like

  5. Linda

    Thank you for always making me laugh, especially on hard days. I’m for the name change too. What name would you choose, though?

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    • katy

      How about Finnish Diabetes and American Diabetes instead of 1 and 2?

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      • katy

        that’s not very patriotic.

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      • Linda

        I like that. Finnish. Shy people. I think of something like T-Insurgent D-: (so I don’t have to change the engraving on my alert necklace)… And maybe McCorporate GMOnsanto-itis for 2? That’s not patriotic either. Then again, maybe it is. ‘American’ is shorter and more to the point.

        Like

    • McCorporate GMOnsanto-itis! That gets to the heart of it, and blames standard American food culture instead of its victims. This is the best name change suggestion I have ever read.

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  6. Jamie Perez

    Thank you for considering admitting your feelings about our petition :). We totally respect your admiration of those in the DOC who oppose our initiative. Just want to say that we are still all in this together whether you agree with our petition or not. That’s the thing about our petition- its about improving awareness, education and fundraising for all types of D. Its not about removing T1 from D- just descriptive names that mean something. Here is a very nice blog discussing the opposition:

    http://www.irunoninsulin.com/?p=7213

    Also, there are some very respectable members of the D community included among our supporters:

    Dr. Camillo Ricordi, Scientific Director and Chief Academic Officer- Diabetes Research Institute (DRI)
    Scott R. King, President, CEO and Founder, Islet Sheet Medical LLC, in association with Hanuman Medical Foundation
    Dr. Stephen Ponder, Pediatric Endocrinologist, Medical Director Texas Lions Camp
    Dr. David L. Katz, Director of The Yale University Prevention Center
    Riva Greenberg, Speaker, Author and Health Coach
    Theresa Garnero, Diabetes Nurse Educator, Author, and Speaker
    Barbara J. Anderson, Ph.D., Professor of Pediatrics, Associate Head, Psychology Section, Baylor College of Medicine
    Bret Michaels, via Life Rocks Foundation
    Miguel Paludo, NASCAR Driver and Diabetes Advocate
    Brenda Novak, Best Selling Author and Diabetes Advocate
    Robert A. Pearlman, President & CEO, Diabetes Research Institute Foundation (DRIF)
    Moira McCarthy, Journalist/Author and JDRF Volunteer & Outreach Speaker
    Dr. G. Prakasam, Pediatric Endocrinologist, Founder/President Center of Excellence in Diabetes & Endocrinology (CEDE), past Chapter President and Board Member of ADA

    Kerry Sparling from Six Until Me has added her signature as well.

    Just wanted to say thank you for thinking about it.

    Like

    • My interest in the name change is still at the juvenile level of wanting to be set apart from the (perceived) Walmartyness of Type 2. Jamie, I promise, if I can get to the stage of supporting this petition in a kind way, instead of my current small-minded + mean way, I will!

      Like

    • Linda

      I signed it! I’d LOVE it if “they” would change the name! Which new names are in the running?

      Like

      • if you signed it, I feel I can sign it.

        Sorry for typos. Sent from my iPhone

        Like

      • Jamie Perez

        Thanks Linda! And Katy (maybe 🙂 )! Linda, we are not petitioning for specific names as we feel that is best left up to the Expert Committee that would be convened. However, we are very clear that we think the names should reflect the nature of onset of each Type. We believe that would make the name most sustainable in the face of possible future research discoveries. The onset of T2 is clearly insulin resistance – whether than resistance is a result of lifestyle, genetics, biochemical reactions, etc. It’s still the resistance that directly causes the D. So we give an example of Insulin Resistance Diabetes (IRD) for T2.

        T1 was more challenging. Autoimmune Diabetes was simple and to the point, but research is now identifying an autoimmune response involved in the development of some T2. Its not an autoimmune attack on anything in the Pancreas, but an immune response to fat / inflammation surrounding the cells and its possible that response causes the insulin resistance, which then in turn causes the D. So we felt we would to further distinguish T1. We put three examples of names that we felt would meet our criteria. Keeping in mind whatever the name, it would likely be shortened in every day conversations. These are the suggestions, but Dr. Ricordi is thinking to see if he can come up with anything better for us. (Again just examples):

        Autoimmune Beta Cell Apoptosis Diabetes (BCA), Autoimmune Beta Cell Destruction Diabetes (BCD), or Autoimmune Rapid Onset Diabetes (ARO).

        We found the first example actually being used in some research papers to refer to T1, but Dr. Ricordi thinks the cell process in apoptosis is inaccurate.

        Thanks again!

        Like

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