JDRF Expo

mr.-rogers

Another best part was when one presenter said, “I’m probably dating myself with this Mister Rogers reference,” and the other presenter said, “I’d like to date Mister Rogers.” And then later: “I was serious. Mister Rogers was hot.”

Great Expo! Learned things. Any/all could be Bigfoot own misunderstand but pretty sure true.

Exercise physiology:

  • The reason why T1 kids/people get those bottomless lows after full days on the beach boogie boarding or skiing: the liver is gathering up all of the carbs to reload its stash and while insulin opens the doors to the cells to let the glucose in, exercise opens the windows, so it can be very extra hard to keep glucose floating around in the blood because the liver and the cells are sucking it all up
  • Question: How many carbs does it take to reload an average child’s liver? Answer: A LOT
  • Eat glucose tabs for breakfast and measure 15 minutes/30 minutes, etc. afterwards to gauge carb sensitivity and do lots of experiments on yourself/child and don’t be afraid
  • Bicycling uphill is a totally different metabolic thing from bicycling on flats
  • People take off their pumps to play hockey so the pumps don’t get smashed

Volleyball player chime in same-same. Already exist product for other thing contact sport enthusiast not want smashed, i.e. business opportunity for jock cup manufacturer?

Also: maybe liver is high carb meat?

Living well:

  • Rhode Island has a smart, adorable endocrinologist a la Dr. Mindy Lahiri, OB/GYN from The Mindy Project but not Indian + with bangs + married
  • 104 is the preferred BG for glucometer advertisements
  • Only about 10% of parents send their T1 kids’ numbers in to endos, even when directly asked to do so, and the endos want to see them because they consider it part of their job
  • “Test/bolus, enjoy, correct (if necessary), move on” <—with smiling cupcake illustration

Vendor booths:

  • When Cole Haan and Nike had that shoe-design partnership, there were mostly boring shoes but also some oxfords/wingtips with robin’s egg-blue sneaker soles that will make your non-D 11 year old fall in love with Glucolift glucose tabs. Based on the company’s president’s shoes
  • One pump salesman’s A1c is 5.5, and he will tell that to you almost immediately
  • The new Omnipod is 32% slimmer, but looks exactly the same
  • “Never pay for a meter” <—advice from meter rep

Ironman Jay Hewitt:

  • He is 44!
  • He obsesses over how many bites of Cliff bar to eat while racing
  • There is not a way to stop to test and eat glucose during the swimming portion of the race

After Living Well discussion, Bubs worried face: It scared me when that man told about his friend who died fly fishing. (During discussion portion of session, one senior citizen declare not enough people worried re: hypoglycemia & knew/heard of fly fisherman drown in lake. Cause: hypo & pass out.)

BIGFOOT: Aw, anyone could die fly fishing

BUBS: (looks more worried)

BFOOT: And it wasn’t his friend. It was just a story he heard. Someone without diabetes is just as likely to die fly fishing—like from a heart attack

BF SPOUSE: Or being drunk

BF: And did you see how ______ and ______ were kind of totally rolling their eyes at that guy?

BSpouse: And then ______ was great, telling him when people hear you have diabetes, they always tell you a catchy horror story about their great aunt Millie who’s missing however many digits?

BUBS: No, she said “however many whatevers”

Pretty sure this first time ever notice Bubs aware amputation commentary. Should explain? Start get knot in gut then—

BUBS: I got to pet a flounder at ______’s party

And move on.

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19 responses to “JDRF Expo

  1. -Instantly rolled my eyes at 5.5 comment. I once attended a JDRF presentation where a panel of T1D women were talking about pregnancy. I asked what their strategies were for getting their A1c below 6.5 pre-conception and one woman was like, “oh, I’ve never had an A1c above that”. FU.
    -I’m surprised that was your reaction to the new OmniPod. When I saw them side-by-side the new one looked way smaller to me.
    -Last weekend I was at a dinner party and my diabetes came up and then two women at the party proceeded to tell me how they each had close relatives die from poorly controlled diabetes. These are the times I am grateful my fiance hasn’t left me already.

    Like

    • For this non-pod user with no experience, they looked the same. It *is* amazing that 200u can fit in there.

      What did you say the the party women? (“That’s a pretty story.” <–?)

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  2. Sara

    I’m trying to figure out which character was Kerri in your stories. I am guessing she called Mr. Rogers hot and said “however many whatevers”. Am I right? 😛

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  3. I wonder why people do that- the horror stories. I think they just want to connect. People do that with everything don’t they?

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    • When someone tells me they have cancer, I say the cancer horror stories I know silently in my head.

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      • Oh, ugh. I love when people give themselves as an example of right behavior. But—you know what I mean? Someone could connect by saying something less ghastly.

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      • I used to be guilty of telling pregnancy/labor horror stories. It was before I was ever pregnant myself and I realized that every pregnancy is its own horror, no need for stories. A wonderful friend finally told me it was awful and to stop doing it to everybody. I have no excuse, I was just stupid and didn’t think.

        And to your comment below- hahah!! My husband and I are both guilty of doing that when we are arguing or picking at eachother AND guilty of being extremely sensitive to the other person doing it. Bad combo 😉

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      • The most miserable, alienating feeling is “if only everyone could be more like me.” Maybe that’s hell.

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  4. All people don’t take pumps off for hockey. Look up Toby Petersen on YouTube – that NHLer wears his right in front. Tampa Bay Lightning’s Cory Conacher disconnects during games, while teammate BJ Crombeen just uses injections all the time (two players on the same NHL team with T1, how cool is that?)

    Test/Bolus/Enjoy/Correct – better advice than you know! I used to think that giving a correction means I got it wrong the first time… now I just make little adjustments and move on. So much gentler on the sanity that way.

    Does that pump salesman have diabetes? Is it the Halle Berry kind?

    Won’t you be my neighbor?

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  5. Being a non-professional-semi-serious hockey player, I leave my pump on. I play goalie, so my pants are super padded anyway and my pump tends to be clipped to my shorts in the same off-center location that I usually wear it – toward the back, if my body was a rectangle, it’d be on the corner. I don’t land on it, it doesn’t get hit by stuff, it’s all good. Although I’ve had it fall off twice and end up on the ice… Picked it up and clipped it back onto my goalie pads – the second time nobody even noticed.

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  6. Isabelle

    Not wearing pumps during hockey made me initially think you were talking about Easy Spirit policy parallel to basketball conduct.

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  7. NicoleP

    I would have been rolling my eyes at ice fishing man too. This made me snarf out loud: i.e. business opportunity for jock cup manufacturer?…

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  8. mollyjade

    The exercise/liver refill explanation makes so much sense! For adult type 1 boogie board=moving houses/apartments. The day after a day of lugging around furniture and boxes is rough.

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  9. those shoes are rad.

    i hope your gut knot went away immediately and didn’t sit there for a while.

    on our regular sunday phone call my dad told me about a foaf of his who recently passed away. i asked if it was sudden and he said no, he’d had some recent issues, including an amputation. then he stopped short. i said “did he have the diabeetus?”. my dad said yeah, kinda sheepishly. i said, “not too many other reasons for it, other than he just got back from the war.”

    that story wasn’t very interesting.

    Like

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