JDRF Expo

mr.-rogers

Another best part was when one presenter said, “I’m probably dating myself with this Mister Rogers reference,” and the other presenter said, “I’d like to date Mister Rogers.” And then later: “I was serious. Mister Rogers was hot.”

Great Expo! Learned things. Any/all could be Bigfoot own misunderstand but pretty sure true.

Exercise physiology:

  • The reason why T1 kids/people get those bottomless lows after full days on the beach boogie boarding or skiing: the liver is gathering up all of the carbs to reload its stash and while insulin opens the doors to the cells to let the glucose in, exercise opens the windows, so it can be very extra hard to keep glucose floating around in the blood because the liver and the cells are sucking it all up
  • Question: How many carbs does it take to reload an average child’s liver? Answer: A LOT
  • Eat glucose tabs for breakfast and measure 15 minutes/30 minutes, etc. afterwards to gauge carb sensitivity and do lots of experiments on yourself/child and don’t be afraid
  • Bicycling uphill is a totally different metabolic thing from bicycling on flats
  • People take off their pumps to play hockey so the pumps don’t get smashed

Volleyball player chime in same-same. Already exist product for other thing contact sport enthusiast not want smashed, i.e. business opportunity for jock cup manufacturer?

Also: maybe liver is high carb meat?

Living well:

  • Rhode Island has a smart, adorable endocrinologist a la Dr. Mindy Lahiri, OB/GYN from The Mindy Project but not Indian + with bangs + married
  • 104 is the preferred BG for glucometer advertisements
  • Only about 10% of parents send their T1 kids’ numbers in to endos, even when directly asked to do so, and the endos want to see them because they consider it part of their job
  • “Test/bolus, enjoy, correct (if necessary), move on” <—with smiling cupcake illustration

Vendor booths:

  • When Cole Haan and Nike had that shoe-design partnership, there were mostly boring shoes but also some oxfords/wingtips with robin’s egg-blue sneaker soles that will make your non-D 11 year old fall in love with Glucolift glucose tabs. Based on the company’s president’s shoes
  • One pump salesman’s A1c is 5.5, and he will tell that to you almost immediately
  • The new Omnipod is 32% slimmer, but looks exactly the same
  • “Never pay for a meter” <—advice from meter rep

Ironman Jay Hewitt:

  • He is 44!
  • He obsesses over how many bites of Cliff bar to eat while racing
  • There is not a way to stop to test and eat glucose during the swimming portion of the race

After Living Well discussion, Bubs worried face: It scared me when that man told about his friend who died fly fishing. (During discussion portion of session, one senior citizen declare not enough people worried re: hypoglycemia & knew/heard of fly fisherman drown in lake. Cause: hypo & pass out.)

BIGFOOT: Aw, anyone could die fly fishing

BUBS: (looks more worried)

BFOOT: And it wasn’t his friend. It was just a story he heard. Someone without diabetes is just as likely to die fly fishing—like from a heart attack

BF SPOUSE: Or being drunk

BF: And did you see how ______ and ______ were kind of totally rolling their eyes at that guy?

BSpouse: And then ______ was great, telling him when people hear you have diabetes, they always tell you a catchy horror story about their great aunt Millie who’s missing however many digits?

BUBS: No, she said “however many whatevers”

Pretty sure this first time ever notice Bubs aware amputation commentary. Should explain? Start get knot in gut then—

BUBS: I got to pet a flounder at ______’s party

And move on.

Pour Votre Protection

Photo1-3

I am not sure this illustration will make sense, even at the very end of the post: “diabetes education is like a reapplied crotch-protection sticker on a pilly old bathing suit.”

How T1 children learn healthcare, without too much afraid?

This week, Bigfoot attempt teach Bubs vital lesson “low blood sugar is an emergency; high blood sugar isn’t.” Try teach little bit re why, try explain maybe ketone could become emergency, but low BG very immediate problem. Try teach with talk. With give example. Bubs not seem absorb Bigfoot so wise lesson.

Evidence not absorb: so if you feel low, and you don’t have a meter handy, you should go ahead and eat sugar, because a low could make you very sick very fast. Bubs give horrified look/say No, that’s okay, I’d just wait until I could get to my tester.

Meanwhile, reader may not aware Bubs star improvisational comedy series Linda’s Secret. Linda’s Secret begin when embarrassed Bubs run out of room during Victoria’s Secret holiday tv advertisement. Re-enter room ask, Guys, what was that Linda’s Secret ad about? Strike Jack/Bigfoot/Bigfoot Spouse hilarious. BSpouse lay on thick, old-school Cranston accent, “Hi. I’m Linda. And this is my Secret.” (Nasal HOY. Oim LINder. An dthis iz MOY seeycrett.)

Now Bubs share esoteric knowledge via sporadic Linda’s Secret skits. Example for dinner: ketchup in glass bottle vs. plastic bottle audio less farty. I’m Linda. I love farting, and I want my ketchup to fart too. And that’s my secret. Example while sort laundry: how fold bra. I’m Linda. Put one bowl inside of the other and bunch in the strings. And that’s my secret for keeping your bras tidy. Example in bathroom: Always wipe thoroughly after going number two. I’m Linda, and I learned this secret the hard way.

Meanwhile, meanwhile, TODAY eccentric gift-giver surprise Bigfoot no holiday/reason. “I thought this swimsuit(1) would look magnificent on your exquisite figure(2). It’s brand new(3).” Pardon Bigfoot. Realize so rude look gift horse mouth. And yet. After gift giver leave, BF & BSpouse spend few moments dissect ridiculousness of gift:

(1) Bigfoot never swim. “This swimsuit” for athlete lap-swimmer style, not lazy beach-lounger skirt bikini

(2) Bigfoot not exquisite figure AND definitely not exquisite to tune this suit: size 12/38″ bust

(3) Swimsuit no tags, obviously used, linty crotch-protective sticker placed cockeyed over pilly, wrinkled swimsuit crotch

Although Bigfoot complete bitch toward well-meaning, oblivious gift-giver, that not point here. Point is: Bubs absorb all. Hours later, Linda’s Secret performance begin.

Hi. I’m Linda. And this is my secret. I just love to buy used bathing suits and then go into Target to peel crotch stickers off of new bathing suits and put the crotch stickers on my collection of dirty old bathing suits. It’s so much fun. Don’t tell anyone. With your exquisite figure you should really learn Linda’s secrets. I tried this Speedo on with no underpants! Shhh. Just put a sticker on the penis area and no one will know.

Too bad Linda no secrets re hypoglycemic emergency. Now Bigfoot strategy teach hypo/hyper emergency priority = accidental-on purpose overhearage of facts. That Bigfoot secret.

Detail

Detail of grime.

Welcome Wagon

Welcome to our club! Here are some miniscule cookies with numerical information.

Whoomp. Bigfoot tiny adorable neighbor diagnosed yesterday. Tiny A. Neighbor father know Bubs’s T1 situation. Call Bigfoot.

Try not say too much but probably blurt way way way too much. Try focus on “Wow! That’s great that you caught it so early.” Hope remember say, “I’m sorry this is happening, but everything will be okay.”

T.A. Neighbor Sr. say I guess I really just have one question: how is this going to change our lives?

So sorry blurt. Remember saying, “You’ll just have a little backpack of equipment–a small one–that you bring along wherever you go. Just like how you bring a diaper bag;” but then also say things about ratios, math, weighing food, way too much detail, cringe to remember mention change dose if run around a lot vs. sit still vs. excited vs. sniffle vs. flu, deep thoughts on Joslin vs. private practice endo vs. Coro endo, blurt blurt blurt. Fortunately, Bigfoot not see sad news story until after phone call. Probably blurt that too.

Tiny Adorable Neighbor fine. Not need stay in hospital. Maybe not even need insulin? That ever happen if catch so, so early? Honeymoon–> Supermoon?

After school, Bubs deliver tiny jar tiny chocolate chip cookies did you make sure to mark these with the carbs? to T.A.N. doorstep. Maybe not A+ gift idea for occasion. Tomorrow Leighanne’s book scheduled arrival Amazon. Bigfoot plan read, absorb, share.

MORE WELCOME TO DIABETES GIFT IDEAS:

A roasted chicken

Extra Dessert Delights chocolate chip mint ice cream sugarless gum

Macrame medical alert ID bracelet

Case of mini-Diet Coke

Flannel pajamas

?

 

Diabetes Blog Week #5: Wish Know

Let’s do a little advocating and post what we wish people knew about diabetes.  Have more than one thing you wish people knew?  Go ahead and tell us everything.

there was a picture of the bumble bee girl from the blind melon video here.
This was you?! Tell me more.

Bigfoot feel pretty bad this topic–notice burble rage toward non-D persons when try write. Apologize.

  • Diabetes not so big deal. That not sarcasm. Bigfoot &co. remain supreme for luck/society/general awesome, incl. health
  • No need mention experience with dead/blind/amputee relative &/or grandma wean self off insulin
  • Member general population only achieve douchebag status when suggest fish oil treatment/similar. Diabetes parent already know everything normal person has say this topic. Same feeling when listen persons rave Trader Joe’s, as if sharing obscure news

Suggested topics to avoid & replacements

RE: TREATMENTS

NO: fish oil (for Type 1 diabetes)

YES: argan oil (for damage hair)

RE: GETTING TO KNOW YOU STORY

NO: My Blind Grandpa’s 3rd Toe Amputation Surgery

YES: What it was Like Growing Up as the Bumble Bee Girl from that Blind Melon video

RE: COMMISERATION

NO: I Am Like You Because I Have Hypoglycemia/Lactose Intolerance/Peanut Allergies

YES: tell about boob job gone awry/cheating spouse/raccoon infestation. Problem unrelated diabetes much better than attempt jump on diabetes bandwagon w/Bigfoot. Bigfoot shove you off wagon at busy intersection

Hey! Hey! Hey, hey, hey, hey.

Macho, macho man.

Bedtime skinny white naked boy dance around, so immodest. Feel like Village Person live Bigfoot home because not 100% naked—teeny-tiny insulin pump fanny pack on all of time. Black. Same width Village Person arm band. When well-placed, Spibelt pretty much cover loins area. Almost good enough costume 6th Village Person: Construction, Cowboy, Police, Indian, Nipple Fetish Prostitute, Juvenile Diabetes.

Don't bother.

Tomorrow = Easter. Chocolate bunny, Cadbury Miniegg pack, Cadbury Creme Egg, Cadbury Caramel Egg. Not equivocate. Not worry about candy/no candy. Only difference this year: skip jelly bean/peep BS, focus all chocolate.

Yesterday= Passover. Try calculate carbs for irregular shards matzoh. Now try matzoh farfel-base toffee square. Basically a compressed Samoa? Now toffee square maker friend say my dad is diabetic–so I understand about the carbs–he used to have to take insulin but he weaned himself off of it…this person so nice but Bigfoot wish stop…He has diabetic arteries, and I can’t count the number of times he has been in a coma…here Bigfoot become automaton, say I know I should want to know about this, but I can’t bear to hear about it right now. Cut off. Very rude. Friend try commiserate, total shut down. Hope understand.

Impossible: rosy Spibelt-wearing Village person in coma, bad artery. Impossible imagine Jack elderly also. Painful imagine child elderly, tube up nose, hospital gown, hairy ears, diabetic/not diabetic. Want children always rosy cheek, smooth skin, lacrosse stick, twinkle eye. Please not tell diabetes parent bad thing elderly relative. All children, if live long life, become elderly/fat/bony/bad artery/kidney transplant/dead. Not need discuss, except church or bar or attorney office.

And so. Today extra good diet: weird protein powder waffle breakfast before fencing. Bean and cheese on whole wheat tortilla/mango smoothie (protein powder) lunch. Yogurt snack. Dinner: chicken legs, apple, milk. Bonnaroo Buzz ice cream. Nice blood sugar all day. Constant stream holiday/special occasion mess up dream diet. Today probably best balanced diet day in eons. Realize still pretty sweet, but big improvement. Intend do better.

Special occasion blitz end soon, Bigfoot and Bigfoot Spouse probably steal back most Easter candy/gone by Tuesday afternoon.

Sally

The world is so disappointing.

Smart, kind person suggest Bubs cured if get gastric bypass surgery. 85% of day spent visualize punch speaker face. Wish could force self focus on positive; instead eat vegan cowboy cookies, get all pent-up frustration, furious no time watch 2-hour Mad Men season premier (available in full, for free, AMC site)—-Sally Draper perfect expression troubled soul.

Meanwhile, Bigfoot try become proficient change infusion set solo–try get spouse stay in kitchen empty dishwasher. Line up all materials: tubing, cartridge, lobster claw thing, insulin, IV prep pad. Cue helpful video: Diabetic Danica show step-by-step how proceed. On other computer, Bubs watch Annoying Orange. Utterly absorb. It just Bigfoot, Danica, A. Orange, and Bubs’s motionless bum.

I might start smoking, just so I can make this face at people who tell me about gastric bypass surgery.

Spouse pop in, “Everything OK?” Yes! I have Diabetic Danica on. “Oh, OK. Good. Well, let me know if you need any help.” So eager help. Bubs’s bum still motionless. Everything set. Line up shooter. Ready. Aim. Fi–spouse back: “Should I flip those carrots in the oven?” Grrrr. Just let me concentrate! Too bad Bigfoot not ask for help–only load 39u in cartridge. That not enough. Have to change site again tomorrow. Also panic at end: find pump piece, no idea how use/where go. Relief: it misplaced Lego.

Bigfoot/Bigfoot spouse decide tonight stay up watch Mad Men premier. Even though need sleep, probably not able rest until see if Sally Draper OK.

Brief complaint for human condition

I am NOT NERVOUS!

1. Listen this example shitty thing say diabetes mother—strike atrocious disharmony of dramatic over-reaction and not give props for heroic seriousness situation: He does? He’s diabetic? Oh my god. That must be so awful. It must be like…finding out he has a gluten allergy

2. When Bigfoot ask Animas rep if offer training for school nurse, this reply: I realize you must be incredibly nervous, trust me. I would be too…when my son went to pump therapy I INSISTED the trainer go to the school as I did not want to take that on. Bigfoot count to ten before reply. Still want scream I AM NOT NERVOUS! And if am nervous, how Animas determine this? Spying on Bigfoot, check out cuticles? Please not assume Bigfoot have bad quality before meet. Bigfoot cool, moves like Jagger

3. So far this day a no hitter. Highest: 172. Lowest: 87. Bedtime blood sugar imminent. Come on come on come on come on…

163!

So Savvy

It happen: Bigfoot guess correct insulin dose heretofore unknown Whole Foods Bakery Banana Chocolate Chip muffin. It true. 2.5 units at 1:20 (this mean Bigfoot guess 50g carbs.) Check blood sugar two hours later, it 108. This closest thing win lottery Bigfoot experience in life. (Tie with time win $780 in 50-50 raffle.)

Boy, is he savvy!

Yesterday Dream Nurse absent from school. 18-year-old Dream Nurse daughter return USA from semester in Australia. Dream Nurse warn Bigfoot two weeks advance this happen on November 28th.

Monday, November 28 morning, Sub Nurse call Bigfoot. Sub Nurse unusual speech pattern, overuse word “savvy.” As if just learn word savvy, love it, want use it over and over. “Mrs. Bigfoot? I just wanted to call to introduce myself? Bubs came down to see me and, you know? Boy, is he savvy.” Then invite Bigfoot come in office, demonstrate how test blood sugar. In person, Sub Nurse explain, “I have seven diabetic kids at my school in Portsmouth, and they’re all on pumps! But I can tell, your son is savvy! Boy, is he savvy! He was ready to show me how alllll the equipment works by himself, but I told him we’d better have Mom here with us for the first time.” Then, in voice like Broadway musical aside, “He is so savvy.”

Pick up time, more savvy-savvy-savvy. Nurse offer Cliff Notes version life story: turn out nursing second career for Sub Nurse. Have “rich background in Rhode Island schools,” as administrator and guidance counselor. Bigfoot say, “Wow! That’s really cool.” But think, you are frightening me. Then Sub Nurse ask, “When will Bubs be on the pump?” As if plan not return our school until that time arrive.

It a huge relief Dream Nurse back on scene today. Bigfoot really enjoy Dream Nurse daily email with blood sugar numbers and play-by-play commentary: Bubs had only 16g carbs for lunch (the crackers, the roast turkey, and some of the nuts), but gave him a whole unit since he was veering a little more toward the high side. That not actual quote, but it true she specify roast turkey—as if in deference Bigfoot prowess cook turkey not purchase Sara Lee Honey Turkey in resealable tub—and describe nuances dosing decisions.

Bigfoot tell Dream Nurse, “Sub Nurse was a real character! (I mean that in a nice way.)” But it not true, Bigfoot mean it in bad way.

Next week, whole family have appointment see Coro Center nurse Terri for pump class. Bubs not allowed use pump until February, but Dr. Doughnut allow Bubs get pump sooner, avoid hazard of potentially large 2012 insurance co-pay. Now that luxe insurance chapter of life coming to close, Bigfoot relish opportunity get free items.

Oreo Astronomy + Flu Shot

Still not sure about gibbous

<—THIS why Bigfoot must remember take one day at time. Jack come home science project: eat frosting many Oreo cookie, create diagram phases of moon. See picture? That how many Oreo. It whole plate regulation Oreo. This not mini-Oreo on cake plate. Mind jump ahead to Bubs in fifth grade, have to use small plastic knife carve frosting from cookie, discard frosting to side of plate, project get messy, hands get sticky, Bubs hate sticky hands. Sad scene.

Bigfoot hope current elementary school principal (who not allow any food ever—no cupcake, no candy corn math, no happy birthday baby carrot snax) and nurse (who offer better care than any medical person in life, ever) decide change career, develop yen focus on 4th and 5th grade, eventually realize enjoy career middle school grade 6, 7, 8 best. By 2017 Bubs be OK on own for day.

Today flu vaccine clinic after school. Jack enjoy nasal mist method, Bubs ineligible this variety, have to take needle. Bigfoot notice pride glimmer Bubs’s eyes—it huge needle. Needle nurse try make conversation ask, “Do you know what type you have? Type One or Type Two.” Bubs tell her Type One, politely glance at Bigfoot disbelief can you believe this? When vaccine syringe loaded, Bubs sigh, modulate volume perfectly benefit others hear I guess this’ll be just like Lantus, but in my arm with tone “another day, another dollar.” Bigfoot have to look away, not want to see needle tip poke through skin, come out other side skinny little arm.

Later on, Bubs ask, “Can you believe she thought I might be a Type Two?” This becoming issue for Bigfoot and son: revile Type Two sufferer. It easy hate fat person abuse body, take health for granted, bring disease on self. Meanwhile, hold self in high esteem of true title holder, #1 Diabetic. Bigfoot know in brain this not fair. It not based in science. But notice not put forth much effort squelch Bubs sneer attitude toward Type Two diabetic population. Type One/Type Two kind of like gay and transgender—it good support each other for benefit of all, even if tension burble underneath, think own group true victim.

Book report plus note from teacher

This woman also had bird plums, not pictured.

Favorite book in house, for long time, What I Eat: Around the World In 80 Diets. This tour of world arranged least to most calorie consume typical day. No political commentary, no “free Tibet,” no “Americans so fat.”

Many area of world use Knorr bullion products in exotic flavor. Maybe have pile of grain, fermented yak milk, dry cheese curd, and Knorr mutton-flavor bullion. Often foods on list reader not know what look like. Bigfoot sons like read list of foods, try locate each thing in portrait. This a fun game. One woman drink own urine.  That an exciting page. Every day Bubs want read this book.

Bubs and Jack always like Indian Shaman guy meal best. Very skinny, elderly man consume only boiled water from dainty brass kettle all day, then have one meal curry, dal, rice, naan, fried puffy bread too. Bigfoot try recreate this Shaman meal. Boys not impressed—fried puffy bread missing.

Bigfoot glad no portrait What Bubs Eat this week. Pretty sad what he eat at school. Nurse agree Bigfoot eat real food at home, it OK eat power bar lunch. Home: oatmeal, milk, maple syrup. School: graham cracker + peanut butter. Mini Luna bar. Chocolate milk. Cliff protein bar. Sobe Lifewater Zero. Home: Banana + peanut butter + rice cake. Cookies. Milk. Apple. Carrot. Beans + cheese + tortilla. Mint Oreo ice cream.

At school Bubs only eat food in wrapper, not have to touch. Every day Bigfoot put apple, cheese, almonds in lunch box but it just a good mommy show. Bigfoot eat almonds, cheese and apple when clean out lunchbox in afternoon. Love room temperature Babybel. So salty.

Iran. Yum.

Meanwhile, Bigfoot write note to thank Bubs’s teacher for allow nurse teach class diabetes facts. That not true, it only email note. Bigfoot in awe this teacher, she so competent and firm, also all children love, also adorable and very neat appearance. She write back: I am so lucky to have [Bubs] this year!  He has become a wonderful addition to our classroom family.  I love when he starts talking about a topic he is passionate about (like Legos!) his whole face lights up from behind all that hair!!!  He is a polite young man! This illustrate something Bigfoot not understand elementary school teachers: they really like children or it a coping mechanism for dealing most irritating population nine months year?

Bigfoot usually spend time with children scheme get time alone as fast as possible. Grit teeth through teach make pancakes. Try muster some interest sports chat. No natural talent Lego Star Wars ship. Food book always enjoy time together.

Bigfoot say other thing

Bigfoot sure this not right placement Pinterest button

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