BEACH CAMP

To make this snack feel like something new, I applied the Ansel-izer on Camera+. Mmmm graham crackers with peanut butter.

Today first day beach camp. One million friends on beach. Waves, play kadima, pickle, frisbee, dig holes, pizza goldfish, etc.

  • Paradise. All day BG#s just near edge of low–lots of 80-99mg/dL’s. (All day not true. One 70)
  • After few million waves, Bubs wash ashore, eyes closed, cheek on boogie board. Looooooooow. Not afraid. Dry off. Test. Not low. Eat snack. Back in water. Fine
  • Bigfoot observe Bubs out of water/plug back into pump, then hand pump to buddy. Ask buddy, Could you put this into the zipper pouch on my back? I can’t reach it. Buddy initially perplexed. What is it? Bubs tell buddy It’s an insulin pump. Come on. Let’s go. Perplexed buddy shrug, figure out how fit pump into tight-stretchy Spibelt
  • Everybody so much fun beach camp again tomorrow!

ADDITIONAL OMG AWESOME THING:

Principal at Bubs’s new school = parent of teenager with T1D!

Weekend = Almost Perfect Fail.

Butter, 11 months before surgery.

While visit Cape, Butter with babysitter. Dog bite Butter (dog.) Biting dog name Sugar! Bigfoot know—seems like should get along, make shortbread. But now Butter in surgery. (Sugar fine.) This how come to pass BG disaster du jour. No one test Bubs until 10AM. Part because somewhat distraught. Part because distracted: one person drive to vet while other person drive Jack to camp. Other part because not equipped handle extraneous intrusion—only can do diabetes.

395.

Of course Bigfoot not able hold tongue. That’s why we test him as soon as we get up! & other sharp wisdom. Realize it not matter how got this situation. Now dog in surgery! Son super high blood sugar! Who can say how many hours Bubs exist this height. Check notes: 10PM 168. 12AM 192. Correction 0.15u. Then: nothing.

Now in complicated math tangle.

So.

10AM 395. Correction: 2.15u.

11AM 321 (correction probably working=good); eat 50g CHO, bolus 2.5u.

12PM Just checking in, make sure correction still working. 431! Crap. No ketones. Yay.

Inject 3u old-school syringe; trou already drop (site change) so not mention re-introduction of Mr. Orange Cap.

New site, new insulin. Prime. Fill cannula. Await improvement.

Look at that vast empty space. 

12:30 eat 78g CHO. Pump recommend 3.9u if BG normal. Bigfoot bolus 3.9u, assume syringe correction will gobble up 300 mg/dL of 431 mg/dL part of situation. So consider BG normal for math purpose. Yes?

OCCLUSION! NO DELIVERY! Hard not imagine pump speak all-caps message in whiny, beleaguered grocery clerk voice. PRICE CHECK AT AISLE NINE! Check site. Check tubing. No occlude. Try bolus again. PUMP NOT PRIMED! NO DELIVERY! PRICE CHECK AT AISLE NINE! Prime already perfectly primed pump, try make pumpbrain happy. Fill cannula with 0.05u for good measure, keep up ruse of correcting failure to prime. Bolus 3.9, 3, 2, 1, 0. Ahhh. Breathe.

1:30PM 165. That really fast: down 100 points per half hour. With beans, cheese, whole wheat tortilla, chocolate milk in equation too. Plummet or normal? Maybe 3u in syringe too much. Because probably something got through with earlier correction. But how much? Crap. Not know. No way know. Breathe.

Also now Bubs feel like total crap, look like damp noodle. Pallid with rosy hint of slight sunburn. Breathe. After lunch, play ping pong. After few serves, decide just want to volley, no score. OK. After few volley, need move table into shade. After volley in shade, move to swing set. After swing, play Creationary. After 2 turns each, depart from game not say anything flop on couch, stare at ceiling. Bigfoot sure BG skyrocket from lunch, decide most likely all of insulin in fridge spoiled—maybe too cold? Must be why Bubs feel so noodle. That when see 165.

Now will check every 30 minutes. This experience make Bigfoot think pump too conducive mystery. Long for straightforward days syringe. When only way child not get insulin is because adult forget.

GOOD THING(s)

  • Dream babysitter BACK IN ACTION! Walks, sees, everything OK
  • Delicious smell of peanut butter graham cracker on child breath
  • Handsome man painting front porch bring Bigfoot iced coffee
  • 1h. after 165, 89. Italian ice ready for low
  • Always more opportunity handle novel situation w. smart/graceful: water slide party at 4PM

Pump it (louder) [6x]

Did you notice something new---this? Oh, pardon me. I didn't notice my shirt was hiked up like that.

This day end Lazer Gate party. End again car ride home, Pump It song repeat, reenact JustDance3 choreography (Fall River stoplight companion admire very impressive sight.) End again spouse miss exit, drive East Providence for bonus opportunity Pump It dance. End again drop friend off his house, sweet dog run out snuggle Bigfoot knees. End again pull in home driveway. End again realize not yet open birthday gifts. End again shower. End again realize need remove pump. End again inject Lantus. End again BS #80. End again glass of milk. End again notice never unpack lunchbox. End again dog diarrhea. End again surprise find out basketball game 8AM tomorrow, season not actually end although obtain congratulatory achievement ribbon week ago. Still in head pump it (LOUDAH!) End again BS #87. End again peanut butter cracker. Never end.

Pump It excellent theme song; this insulin pump day one. Only pump saline. One week saline. But wear pump.

Bubs love pump. Terrified cannula insertion, but get over quickly. Love pump. Want people notice, hope casual passerby might venture ask who is that young man and what is that enchanting gadget?

"Crack it like a lobster claw" is the official method for opening the angled infusion set. Each is larger than a standard deodorant stick.

Bigfoot hate pump. Hate many, many feature this pump. Hate reminder/chime noise. Hate automatic return main menu if do certain move. Hate sticker for body–require improvised rigging or not adhere. Hate up-down button scroll through menu. Not even click wheel! Approximately 1993 Gameboy Tetris level sophistication. Hate complicated fill cartridge. Hate giant needle suck in insulin. Hate flick air bubble. Hate word “tubing.” Hate acronym “ISF” thrown around as if standard expression—hate “insulin sensitivity factor” thrown around as if common parlance. Bigfoot never learn ISF concept. Just other expression correction factor? Who zoomin who?

Hate alleged really cool feature Animas teacher rave: Did you know about the integrated Calorie King databank? You do know the Calorie King, that great book we all love? Bigfoot hate Calorie King–immodest yellow crown, expression on face, slogan, book. It true, Animas pump have Calorie King favorite 500 Arby’s, Burger King menu item pre-programmed into EZ-carb feature—how grand! Bigfoot hate “EZ” for easy. Hate educational DVD pump demo–spokesmodel many close-up hands/pump, fingernail not even 100% clean/trim. Hate pump homework. Hate practice button punch. Hate need teach Dream Nurse use pump Monday. So soon! Hate pump.

Love pump, know best possible health choice from paltry/shitty options. Love pump, Bubs excited wear. Bigfoot also love dogs, love bed, love sleep, faith better tomorrow.

Secret: no secret

Speedos: back in a big way, but only for those with small buns

Swimming exuberant joy but so tricky. Bigfoot learn importance give medium-ish, sweet-ish snack, no insulin, before swim. Snack lesson end problem of hypoglycemia while swim. 100% effective. Experience brief feeling mastery.

With advance medical knowledge come awareness of new, worse issue. Swimming make blood sugar drop hour, hours, or many hours after swim also (i.e., in addition during swim), never know when happen. Last night, Bigfoot and Bigfoot Spouse try watch Daily Show Hulu. Bubs keep calling out with update re: loose tooth. Bigfoot notice time 10:00PM. Very strange Bubs still awake. Go without saying Bubs not worry, think parents have safety all wrap up with bow. Bigfoot use ice cold feet for push spouse out of bed, force test Bubs’s blood sugar: 64. At 8:30PM was 111. At 6PM dinner time, 121. At 4PM pre-swim: 143.

Treat low: glucose tabs. Wait 15 minutes. 10:15PM. Tooth come out. BS=81. This not seem safe for sleep. Make spouse go into icy kitchen, make peanut butter cracker snack. Convince Bubs eat peanut butter cracker, very difficult because tooth missing afresh, bloody gap. Test again. 10:30PM: 84. How know not drop low again? Not know. Make spouse go make more peanut butter snack. Eventually BS=ninety-something, everyone fall asleep even though Bigfoot pretty sure that not endocrinologically correct procedure.

I love this bench. It is warm, and I can read magazines or Mindy Kaling's book. I love swimming.

Today, Bubs write to Coro Center nurse, describe swim sugar problem, ask for advice. This what she write back: You treated the post swim situation perfectly!!  [Bigfoot appreciate positive comment so much, eyelashes elongate, curl/hair take on more lustrous sheen upon read this line.]

In regard to your question regarding how to manage potential delayed lows following swim, I have a few suggestions.  I would check his BG more frequently after swim to get a better idea of when (if) he drops.  [At 9PM: Bubs score 174. Maybe Bigfoot give too big snack? Also, snack peanut butter ice cream---not good choice. Probably should be grilled chicken panini, string cheese, whole grain cereal.) If he is having delayed lows (and if swim is after dinner) you could try giving him less insulin with dinner on swim nights.  Another approach would be to give him a post swim snack that includes both carb and protein.  Unfortunately with exercise there are general guidelines but experience will be your best teacher.

Bigfoot read this a few times, hunt for valuable kernel. Where guaranteed method for not kill child? Where reassurance Bubs wake up, give rousing call for help if feel low in sleep? Read and read. This a Yoda thing?

Bigfoot say other thing

Bigfoot sure this not right placement Pinterest button

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