Social Studies

Tonight dinner table: Jack tenterhooks re midterm exam scores because determine make/not make high honor roll & high honor roll = Bertucci’s** dinner. Pacing. Checking for grades online over & over. Not up yet. Then “I got a 100 on my Social Studies exam!” (**Link = page w/ carb PDF download.) (<–Handy!)

BIGFOOT: Woohoo!

Bubs, cheerful mouth full black beans I used to be so good at Social Studies. Chomp, chomp. chomp. I was like, so far ahead! I used to be like, as good as Will and Peter and Lucien. Chomp. Gulp water. Wipe face back of hand. But now I’m so far behind.

BIGFOOT: (Record scratch noise) Hwuh?

BUBS: I’m like five books behind

BFOOT: Oh? I didn’t know you were behind…

BUBS: Yeah, and each book is a state, so I’m like five states behind everybody else

BF: Hmmm?

BUBS: (Still blithely chewing) I had so much low blood sugar! I missed Social Studies for like a whole month

LogFrog now tracks Social Studies-related hypos.

LogFrog now tracks Social Studies in blue and deodorant in red

Hrmm? Teacher not mention Bubs fall behind. Maybe not so bad. Maybe Bubs imagine. Or could be school low expectation for hypoglycemia days, no one care Bubs fall behind, esp. since no Social Studies NECAP. Maybe NBD Bubs insist Connecticut not New England. Connecticut is NOT in New England. It is part of the tri-state area. Maybe OK?

Uncomfortable this situation. One hand, not want Bubs stay after school make up work on hypo days bc feel like punishment. Other hand, not want hypo days become excuse poor school performance/maybe more genteel say become excuse not live up to potential. Hand #3, what is intelligence anyway? Hand #4, who cares about 4th grade Social Studies? Hand #5, but that set bad precedent for future school year. H#6, what are my priorities supposed to be here? H#7, are MY priorities really what matter in this situation? H#8 just for octopus/symmetry.

Meanwhile, Jack asking this might sound weird, but how do you know when you need to use deodorant?

BIGFOOT: When you start to have smelly armpits

JACK: Maybe I will have smelly armpits after basketball tomorrow. Will you tell me if I do?

BFOOT: Sure

BUBS: I already wear deodorant sometimes

BF: You do?

BUBS: Yeah. I rub Dad’s on sometimes, but only because it smells so good. Not because I smell bad

BF: I’ve never noticed that you have it on

BUBS: The fragrance stays in my armpits pretty much, so only I notice it

SCORE

Social Studies: five states behind

Deodorant use: five years ahead

***

Pardon our bloody smudges

Pardon our bloody smudges

Also meanwhile: very cold outside. Be careful.

Drop

I tried to make this as zippy as a Dex7+ screen for you.

Same problem again. Not change site soon enough. Medium high/normal/high-ish all school day. After school change site.

Before dinner 370. Correction via syringe. Kick self not change site before agree Choco Taco (31g CHO) after school snack. (Too busy pat self on back for idea eat tantalizing dessert earlier in day as step toward better midnight.)

How do you feel? Fine. I’m fine.

GOBBLEDYGOOK: 60 minutes pp: 270. Too fast? Optimal speed? ISF 1:80. Dinner = 25g CHO. Correction 3u + dinner 1.5u (@ 1:15—not v precise bc syringe.) Difficult gauge lad physiology bc new Diary of a Wimpy Kid book arrive, just flop/read.

Maybe not worry speed, simple gratitude BG< 370. Maybe beer. Maybe herbal tea. Maybe cocoa. Maybe half cocoa, half coffee.

I am doing my best.

Meanwhile, Bigfoot reunite w LogFrog bc need help adjust doses + wish good impression new endo + LogFrog email reports so, so tidy. LogFrog app improve? Easier use. Nice. Recommend for any family dongle problem.

High BG lethargic or Greg Heffley lethargic?

Graph in picture, above, not so helpful except for make parent glum, but non-graph email report very easy for doctor/anyone read.

Yesterday Jerry the Bear video take Bigfoot breath away. For brief time. Not sure recommend watch video. Not good for tender heart.

Video first time out loud why so hard teach child importance health care: the ramifications don’t happen until later in life; it’s not something you can rationalize to a child, it’s really abstract and it’s scary…Realize Bigfoot never/rarely admit self future maybe health problem, always think day-to-day how feel, no pass out hypo, able concentrate school, carry Skittles pack, wash hands, micro micro micro. Jerry the Bear totally macro.

Dongle Problongle

The scribble represents a professional opinion of the idiot gentleman's blood sugar data.

How know dongle work/not work? Bigfoot kind of worn out on Diasend software. Dongle. Hold dongle to small rectangle on Ping, wait for magic happen. No happen. Dongle OK? Dongle-Ping communicate at all? This a secret? Ping-dongle making baby?

Today need communicate many days Bubs’s #s to Coro Center. This not problem when use LogFrog app. But when begin use pump, start 8 1/2 x 11″ paper log, preferred method of Coro. This log track more detail than LogFrog. Many category data. Today attempt transmit data via breezy email message:

Hi Dream Team,
I haven’t been in touch with Bubs’s numbers since 4/11. Now I am hoping for help adjusting his night time and mid-morning basal rates. He has been waking up high. Mid morning he has often been low. My thought is to scooch up his night time basal by 0.05u/hour and to change his morning ratio from 1:10 to 1:12 or 1:15 to see if that helps. (At this point should Bigfoot Spouse and I just be making these kinds of little tweaks without checking in with you?) PLEASE DON’T BE ANNOYED THAT I’M ASKING I AM JUST SO CAUTIOUS YET AM REALLY VERY CAPABLE PLEASE LOVE ME AND THINK I’M AWESOME
 
I’m going to include all of the possibly relevant information I can think of and hope to hear back from someone tomorrow or soon. Thanks! (I am going to attend an Animas Diasend workshop in May, so I hope to soon have a better way to share this data with you. I am sorry it is so cumbersome!) PLEASE LIKE ME AND THINK I’M THE BEST PATIENT PARENT EVER AND TALK ABOUT ME AT YOUR STAFF MEETING IN GLOWING TERMS. IF POSSIBLE, ALSO SAY I’M PRETTY.

Coro call back: want Bigfoot fax 8 1/2 x 11″ papers. Lazy Bigfoot call back I do not have a fax machine read between lines: I’m too lazy to drive to Staples. Or I don’t care enough about my child’s health enough to buy a fax machine. Or Get the fuck out! A FAX machine? Do you also want me to dictate the numbers into an 8-track cassette recorder?

This tidy sample page is from Ping day 3.

Pumping one month: this awkward phase. First week, call daily with numbers. Review over phone. 2nd week, call two/three times. Review over phone. Week three…that about last time interact w/ Coro. Crap. Even if had fax, would need to rewrite each 8 1/2 x 11″ paper because so messy, also Bigfoot Spouse often omit certain info, and Bigfoot know what Spouse intends imply with blank space but it impossible non-marriage partner intuit true facts from 3AM scrawls/absences scrawls.

Perfect solution: Diasend! This graphic take Bigfoot breath away. But Diasend dongle not give any clue working. Informational videos adorable but in Swedish. Ah, here in English. Still adorable but not help Bigfoot with dongle issue. Best part in any language: features slim patient. Thank you, Sweden.

Suspicious: never ever hear any real diabetes person speak or write of Diasend success. However, Diasend web site sleek, informational video adorable, Sweden good track record machine-making (who not love 1980′s Saab) <—all bode well. In May, Bigfoot attend official Diasend lesson, fingers crossed dongle inspector on faculty.

Meanwhile, Dr. Doughnut advise pretty much same thing Bigfoot predict. That not technically true. Actually Dr. Doughnut advise lower I:C ratios throughout day and increase night time basal more than Bigfoot have cojones suggest. Gulp!

Magic screen

What would Magic Screen do?

Today Bigfoot upgrade phone, renew contract AT&T. This not strictly necessary, but iPhone 3 so slow for look up carbs Bigfoot family decide it time get better device. Calorie King book not an option–King/author resemble pedophile Bigfoot know in New Jersey. Try putting dog sticker over King/author face but always peel away–cover glazed in silicone.

While at Apple store, ask Genius whether possible view LogFrog on computer screen not just teeny phone. Genius conduct research, say LogFrog only for iPhone and iPad. Bigfoot seize idea: need iPad for medical purpose. $20,000 dog currently out Bigfoot reach but $500 magic screen? Can handle.

Get home so excited for revolution in health care. Think Bubs will love this! And he’ll learn to manage the data on his own and develop good habits that will serve him well for LIFE! Think little bit, maybe I can fall asleep each night admiring Joanna Kay Sliberman’s super relaxing Pinterest boards of books arranged in Roy G. Biv order. Pinterest also excellent medical benefit—top resource low-carb recipe/wooden whale tissue box cover in perfect shade of buff turquoise.

I do not have this cover. I would like this cover.

Imagine heart sink when see LogFrog on iPad: iPhone size rectangle, surround by black. Can tap “2x.” Enlarge, but look so ugly. Blurry. Not want aware pixel when gaze upon shiny new screen. Pinterest look shitty on iPad too. Much pixel awareness. See pixel cluster on iPad like bite into dry flour lump in brownie.

Please say this just Bigfoot technical difficulty. Never heard person not delighted to point of smug over happy iPad times.

Meanwhile, Bigfoot get Diabetes Buddy app for iPad. ($5.) Very sleek on screen. Easy use. Only flaw: carb gram require decimal. Not 15g, 15.0g. Enter zero take precious seconds Bigfoot life, not imagine person measure half gram carb. Other flaw: prominent feature for track weight loss, remind Bigfoot desire disassociate Paula Deen/Mike Huckabee chronic illness group.

Other meanwhile, iPhone 4S huge hit for boys: Temple Run game (free!) plus ask useless voice feature “Siri, did you FART?”

Hello, Anxiety Clinic Patron

Habit enhancing drug

Bigfoot not want betray privacy, but often see known persons Hasbro Pediatric Anxiety Clinic. Just for record, Bigfoot not say large hello because not sure etiquette. Seem preferred pretend not see known person this place, like evangelical Republican bump into colleague at gay club.

Of course Bigfoot child anxious: have diabetes! Of course Bigfoot not embarrass when spotted Pediatric Anxiety Clinic waiting room. Bigfoot only embarrassed when therapist notice fiddle obsessively cuticles, can’t stop fiddling even when notice therapist notice Bigfoot notice therapist notice.

Other minor embarrassment occur waiting room, Bigfoot son play Doodlejump on iPhone 3G (understated retro, if hang on bit longer), other families in waiting room use iPad; many dyad parent and child each have own iPad. Today Bubs only have National Geographic Kids magazine, Wolves! issue because Bigfoot urgently need email friend just spotted Pediatric Anxiety Clinic, explain why not say bigger hello.

Hello!

Meanwhile, Bubs high all day. Dream Nurse posit maybe coincidence home insulin and school insulin simultaneous stop function well? Dream Nurse dismiss theory, can’t jump conclusion one day high blood sugar. LogFrog graph so ugly–all spiky up high, only one normal, a 158: C minus of OK blood sugar. F, F, F, F, F, F, C-, F. Good night, sweetie-beans. Bigfoot check Lantus bottle. Magenta Sharpie “12-18″ on label in Bigfoot best handwriting. No one ever solve mystery intended meaning: this date for open on or throw away on?

Ph.D. in Get Rid Of Thing

Nothing to see here

Bigfoot top expert in get rid of item. Maybe item useless, maybe not. Strategy is get rid of thing, deal with regret in future (if ever). Regret never arise**, especially since live small quarters. So why so hard decide save or recycle Bubs’s first diabetes blood sugar notebook? Decide ask spouse, who often have trouble get rid of items.

BFOOT: Do you think we would ever want to look at this? I mean, it’s just notes. We won’t ever need these numbers again

BFSPOUSE: The only time we might want it would be to show a family that has just been diagnosed

BFOOT: But is it even that good? It’s a mess

BFSPOUSE: It’s full of bad memories

BFOOT: Yeah, I’d just tell them to get a LogFrog. And if someone wanted to see how to keep a paper record, I could show them how we did it, but I wouldn’t need this as an example

Spouses agree. Get rid of. But very hard put book in recycle basket. All different style handwriting, fuchsia Sharpie, dull pencil, dried out old ballpoint, grand era of remembering keep black Uniball micro in bag; crazy number, so high, so low; math scribble for carb tally; era of get up 1 AM, 4AM; first time stay in range full day…

Nothing to see here, until February

Bigfoot probably put notebook in bottom sock drawer. Not want look at again, but want to know there. More than newborn footprint hospital, want hang on this record. Sentimentality a mystery.

Meanwhile, December 23rd Animas pump arrive. Not use until February, maybe not until March. But whole big box sit in house, wait politely in tidy package for snork into Bubs’s abdomen. Teeny hose make stomach flip. Hook-angle needle. Word “infusion.” Image on boxes of couple give Eskimo kisses, girl play tug-of-war. Everyone enjoy exhilarating fun with insulin pump. Complimentary alcohol swab inside, have fancy name, something like—not alcohol swab–”intravenous preparation pad.”

—–

**That not true. Some regret arise:

1. Photos from Turkmenistan

2. Bubs’s East Side Nursery School yearbook

3. Unopened pack “Staples” brand unlined index card

4. Ice tongs

 

(BLEEEP) in Bed

Bigfoot try so hard not mention new terrible thing. Not mention this other parent diabetic child, not even mention this to other parent diabetic child live in Bigfoot own home. Why make catchy rhyme, so terrible thing? Whole thing BS: …found dead in the morning in an undisturbed bed after having been observed in apparently good health the day before. No cause of death can be established. This is the typical situation of the “dead in bed” syndrome, a very tragic outcome which leaves the family with many unanswered questions: Why, when, how, could it have been avoided?

Now we REALLY need one of those hypoglycemia sniffing dogs.

On plus side, it rare: a number of young people with type 1 diabetes have been found dead in the morning without previous symptoms of illness, hyper- or hypoglycemia. The number of deaths of this kind per 10,000 patient years has been estimated to 2-6. For a population of 100,000 persons with diabetes, this represents 20-60 deaths per year.

Semi-plus side, seem mostly UK endocrinologist study it. Maybe Bigfoot forget about it soon.

Father and son at the statehouse, enjoying Lincoln Chaffee's holiday tree.

Meanwhile, three good event. 1: Bigfoot and Bigfoot spouse go on first date since August 9th (dream babysitter have 10 year old diabetic daughter.) 2: Bubs finally meet legendary Dream Teen: supercool boy, varsity hockey, diabetic since age 8, know how babysit. 3: Bubs and Bigfoot begin use FrogLog or LogFrog app, keep track blood sugar, carbs, insulin, activity. Frog create satisfying graph. Person at company agree add fencing icon to exercise section. Nice. Bonus good event: Christmas lights everywhere.

And one neutral event: Shane at Animas wrestling Blue Cross Blue Shield get money for Ping pump. Bigfoot never consider what happen Blue Cross Blue Shield say no. Why have think it over so many days?

Bigfoot say other thing

Bigfoot sure this not right placement Pinterest button

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