Tag Archives: friends for life

21Nov / 2012

Two Disconcerts, No Photo Available

Disconcert #1 (long one)

Yesterday Bigfoot math volunteer Bubs’s class. Notice Bubs read library book while teacher give math instructions, then continue read when divide into groups.

Friend call “Hey B, how about you, me, and P?” Bubs not reply, although this premium favorite friend group. “Bubs?” Bubs blink at friend say Nah, I’m leaving. I have low blood sugar.

Teacher hear, ask classmate escort Bubs nurse’s office, meanwhile math volunteer job begin: help children plan 8-person Thanksgiving feast for as close to $175 as possible using Shaw’s sale flyer.

Bubs not come back, not come back, Bigfoot think must be low, must be recover on nurse fainting couch. Then Bubs come back. Sit on floor near group. Group already chose turkey, 99cents/pound. Already calculate cost. Already choose beverage: it Mountain Dew. Ten bottles, $10. Now time for choose vegetables. Boys discuss merits canned vs. fresh. Bubs move away. Sit alone, criss-cross applesauce on cold floor, chin on palm of hand/elbow on knee. Pale.

BIGFOOT: Hi! What’s going on?

BUBS: I’m not going to tell you

BIGFOOT: Why did you leave your group?

BUBS: (Scowls, moves away)

BIGFOOT: Should I leave you alone? I feel like something’s wrong (<–insightful)

Then awesome teacher approach, explain Hey Bubs, your group needs you! Come on, buddy. That  type friendly man chat. It work. Then teacher explain quietly Bigfoot it turns out he was angry that he had to wait so long to test his blood sugar, because someone else was in the nurse’s office, getting their I think it was a GI tube? changed, so it took a long time. But his number was fine. Anyway, it turns out he was just angry that they chose the drinks without him. Guess he’s not so into Mountain Dew.

Meanwhile, Bubs move away. Sit alone again, scowl Bigfoot, mumble something.

BIGFOOT: What did you say?

BUBS: I said I’m DEPRESSED because you did not put anything. Edible. In. My. Lunchbox. So I’m not going to eat ANYTHING for the rest of the day

BIGFOOT: Well, you’re in luck. Because I’m here today. And there’s still time before lunch. So you can tell me what you’d like and I will go get it*

BUBS: I don’t want ANYTHING. Everything you make is always disgusting

BIGFOOT: (having seen this extremely negative rage personality before, makes an unbelievable offer) How about if I go to McDonald’s, and get chicken nuggets and an icy Diet Coke, and drop them off for you in the office?

BUBS: I TOLD you. I don’t. Want. Anything. Especially NOT FROM YOU

BIGFOOT: How about EATS?

BUBS: No!

BIGFOOT: How about Five Guys?

BUBS: Nice job on wasting your life trying to name restaurants. You don’t even know any good restaurants

etc.

After math volunteer job end (Bigfoot recommend each group $4.99 clementines, Buy One Get One Free Boursin cheese, avoid pre-made Shaw’s pie. Very help), nurse call Bigfoot telephone. Hello, Bigfoot? It’s not an emergency. Before recess he was 79. When he came at 9:30 he was 252, no ketones. When he left math because he felt low, he was 119, and then just a little bit later he was 79 so I knew he was dropping so I got him to eat part of a Luna bar…

All pieces fall into place. Bubs read instead pay attention because BG mid-plummet. Does right thing: visit nurse. But # is normal. So return same dismal situation. Sit in math, more plummet. Feel worse and worse. Probably feel something along line of “I asked for help because I feel like shit and they told me I was fine.” Disconcert because: not sure how could be different, but this very sad.

Disconcert #2 (short one)

Pick up Rx refill @pharmacy. This trip Rx special. Because for 1st time in forever, pick up syringe refill. Because travel Thanksgiving. Because back up for pump is Lantus pen/pen needles + Humalog (non-pen) + syringes. Co-pay for syringes: $25.72. That weird amount for copay. Thought would be $5. Call Blue Cross. Very helpful. Say Bigfoot responsible entire cost syringes because name brand. Ask is there a generic brand I could get instead? Answer no but: you can get them at no cost from a durable goods supplier. Say what? Blue Cross Rep start rattle off names durable good suppliers.

Disconcert because: Bigfoot consider mail-order diabetes supplies territory of Actual Diabetes Persons. Such as: people meet at Friends for Life (experts), old people, Type 2s, people who can’t drive/no legs/blind, Wilfred Brimley. Today mark day Bigfoot cross over into Actual Diabetes Person.

*Defensive N.B.: Bigfoot not usually so coddle, but Cognitive Behavior Diabetes Therapist teach Bigfoot how bend away conflict this manner when child so insanely unreasonable.

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10Jul / 2012

FFLow

Yesterday after camp: Whole Foods, Bubs hungry. Like look of greasy pork spring roll in deli case. Bigfoot toss test kit on top of food-heaped cart, tell Bubs test, order spring roll. Leave deli counter for goat cheese department. Come back. Done! BG 157, spring roll in cart. Bravo. No one FFL tell Bigfoot specifically leave child at deli case, but FFL in general encourage independence. Nice. Consider Bigfoot Moira McCarthy-ized.

Next ask Bubs bolus/15g carbs. Bubs I don’t want to bolus for myself. This strange–OK with bloody BG part but not OK with button-pushing part? Bigfoot not make big deal, not goad, not even encourage. Think maybe abandon at deli case use up independence for day. Refined attitude also courtesy FFL. Going with flow. Pat self on back.

Arrive home, Bigfoot Spouse making watermelon margarita. WTF? This summer Bigfoot Spouse become expert mixologist for margarita: Cointreau, lime, ice, tequila. Salt. Blend. Yes, blend! Not be such snob. Delicious. But why mess up w fruity? Rim glass with sugar no salt. Bewilder! Try channel FFL. Try go with flow. Drink sweet cocktail. Still regret. Important lesson: even if master of go w flow, bad drink still bad drink.

Winner of Worst Tasting Fancy Yogurt Award: Siggi’s Icelandic Skyr Grade A 0% Milkfat Orange & Ginger

This week Non-D camp take place Brown University, very slummy fraternity building. Bathroom sink handwritten sign re plumbing problem–penmanship like roadside stand. (Hypothesis: expensive + prestigious = crappy dorms. Expensive + less prestigious = fabulous dorms, grand piano in parlor.) But Bigfoot not sit in Buxton House. Picnic table in shade outside building. Perfect place for work. Camp 9am-5pm. Bubs and West Bay Bubs use Bigfoot as school nurse. Come out if feel low (not happen yet). Help w/carb count + meal bolus. Very glad diabetic friend here, make diabetes less weird.

Weird part is people think Bigfoot part of camp staff. Stop by picnic table Sorry we’re late! BIGFOOT SMILING GENEROUSLY: I don’t actually work here. THEN, TO ANYONE WHO LINGERS FOR MORE INFORMATION: I’m just here because my son and his friend have Type 1 diabetes. I help them with their insulin and stuff. ONE SPECIFIC LATE PERSON: Oh! I can relate. I have diabetus type two! BIGFOOT HEAR SELF SAYING OUT LOUD ACCIDENTALLY: I won’t even say the stupid thing I bet everyone says to you. About how slim you are. LATE PERSON: Well…I’m sort of frazzled because my daughter has some legal issues and I didn’t even know the way to camp, and I’m just filling in for her. BIGFOOT, GRATEFUL LATE PERSON OVERLOOKED STUPID THING SAID OUT LOUD AND THEN TRUMPED IT WITH TMI RE DAUGHTER’S LEGAL ISSUES: Now that your grandson’s inside, you can go get a nice, relaxing drink (subtext=please offer to bring me a latte. This disgusting Icelandic yogurt left a terrible taste in my mouth and I can’t unscrew the lid on my grapes) LATE PERSON: Now that’s an idea I can get behind!

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09Jul / 2012

FFL Nuggets

Zero carb Sno-Cones.

Bigfoot fairly strung out on FFL. Learn so much. Meet new, outstanding, life-changing persons. Mind boggle.

Conference creator, founder, organizer Laura Billetdeaux email attendees for feedback. What work? What not work? Main problem = thick T-shirt fabric. FFL maybe upgrade foxy cling d’American Apparel? Other bad parts this conference involve graphic design/popcorn ceiling Marriott bedroom/Pepsi-oriented soft drink cast Walmart-y pall over FFL snack buffets. It always easy Bigfoot find thing complain about.

Everything else awesome. People awesome. Sports Central awesome. Volume/quality red raspberries AMAZING. Tower of Terror make Bigfoot hurl, but that not FFL problem.

Last night arrive home, decide better write down everything learned, synthesize scribbled notes –> legible document, follow up on knowledge. It necessary mention Bigfoot not science/endocrine expert? Yet this = 100% medical advice. Take or leave at own risk. But take, because all good advice.

Joe If you like diabetes, there’s something wrong with you Solowiejczyk

Bigfoot have a lot say about how much love Joe Solo but instead list top nuggets:

Here’s adorable Joe (look at those awesome eyeglass frames!) after greeting Bubs. “So what do you think of this diabetes bullshit?”

Recommend Xanax or valium, not allow parent stress/fear/agony become icky sauce on child’s otherwise happy life. Also recommend agree with child it suck, then sit on child and inject. Never bribe. Also recommend punish teens when not comply treatment plan: Teenagers are not afraid of amputations, they are afraid of losing Facebook.

Day after meet Joe, Bubs wake up say I think I’m going to be a lot like Joe when I grow up. And upon learn Joe Solo favorite ice cream = chocolate chip cookie dough, order chocolate chip cookie dough at Marriott scoop shop.

Moira Let yourself be scared to death McCarthy  

Main MM thing=let child take lead. Kids are usually ready before the parents. Don’t let a frightening situation end their freedom.

And this: treating diabetes for a perfect A1C is easy: lock them in a room, and hook up an IV. Treating diabetes while having a life is the hard part.

In one teenager OK-A1c story, MM permit daughter buy everything in Vineyard Vines. Bigfoot so fond rich preppies totally oblivious rich preppitude, make feel included glam life, almost feel squeeze of madras hair band on skull.

(Not MM, but other presenter–not remember who–show photo entire Ray-Banned family aboard yacht, say This is my family. As you can see, my family is just like your family. Then elephant in room fart, amazing fart sound miraculously like speaking tuba: they do look just like my family, but our yacht has navy cushions with white piping.)

RICHARD Keep your eyes on the prize RUBIN 

Prize not controlling your child’s diabetes, prize = help child learn how

Instead of looking at high BGs and figuring out what went wrong, look at normal BGs and figure out what went right so you can replicate that

Consider mistakes experiments. With every mistake you get information for your next experiment.

GARY Put vinegar in their Cheerios SCHEINER 

Spike in BG serious bad. Immediate problem: tiredness, difficult concentrate, clumsy for sports, mood swings. Long term: kidney disease, eye problems… Scary example, hope not read note correctly: begin kidney disease in average of 14 years (for Bubs that’s 22) if BG >200 after meals. HOLY SHIT!

BUT…test BG one hour postprandial. In school children spike of +100 = acceptable. PHEW.

Here what can do:

  • Bolus a “down payment” 15-45 minutes before eating a meal if BG over 80. If under 80, bolus at beginning of meal. Once you know more specifically the amount they’ll eat you can “pay the balance.” (i.e. with a 2nd bolus)
  • SPLIT THE MEAL—eat half, then eat the rest 60-120 minutes later, even though you bolus for the whole thing at the beginning
  • VINEGAR—slows the carbs down
  • EATING VEGETABLES before higher-carb food slows down the carbs
  • ACTIVITY AFTER EATING: sports or vacuuming or lawn chores or walking dog. Activity delays digestion, uses some glucose, makes insulin work faster.
  • WARM THE INFUSION SITE or shower right after insulin—to get it working faster
  • CONSIDER AN RX for SYMLIN. Diabetics are not just missing insulin, but also amylin. Amylin decreases appetite and slows gastric emptying (i.e. so the glucose from the meal hits more slowly.) This is an additional shot. It is not approved for use in children, but neither are many other things we give children

Bigfoot totally taking Gary advice. Not pursue Symlin, only because can’t bear add in new shot.

Bigfoot also attend session on social media w/Kerri (already known awesome, life changing person) and Scott (new awesome, life-changing person–no need click on link, it the same Scott everyone else already know/love). Bigfoot enter session late. Everyone recommend hashtag #dsma Wednesdays at 9PM. One person mentioned pump broke in bra while dancing. Not sure how related, but Bigfoot write down that sentence.

At Pepsi-dominated conference, Kerri + Scott both enjoy icy Diet Cokes. Bigfoot almost grab Scott’s because not even drinking! Torture.

If you read it from the back, it spells out HUMALOG IS THE DEVIL

Graphic design awards: GLOOKO cable for iPhone + Glucolift non-GMO, gluten-free glucose tabs

Bionic pancreas: hope Bubs = in trial at Camp Joslin July 2013

Jerry the Bear from Rhode Island. Adorable young inventors in bear suits.

Pretty much everything else was normal ugly cheap crap and drugs. Best of cheap crap = Novolog elecrtic fan w/ light-up message.

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02Jul / 2012

Pack for FFL: 1st attempt

Warning: this not interesting. Only not want lose/maybe good reference for next time. This what Bigfoot think need for five nights in Orlando. Using one small wheelie bag + one additional carry-on per person.

For Bubs:

PSP/charger/headphones/games

Lego magazine

3 swimsuits

goggles

4 Bermuda shorts

2 sports shorts

2 pr. pants

6 T-shirts

1 long sleeved T-shirt

1 Lacoste shirt (=formal wear)

7 pr. underpants

stuffed animal (to be selected)

Nicholas book (which one?)

Disney lanyard w/ collectible pins (can not find!)

 

For Bigfoot:

computer, case, cord (I said I’d work–I already think that was dumb)

phone, case, charger, headphones

The Absolutely True Diary of a Part-time Indian

State of Wonder

3 swimsuits

5 sundresses

2 skirts

2 T-shirts

2 pr. shorts

underwear, bras

ball fringe heels

sunhat, sunglasses

contact lenses + accoutrements

eyeglasses

Tylenol with codeine

Ativan

cosmetics

deodorant

razor

nightie

mommy cards for Bigfoot

necklaces

one bangle

one watch

Sharpies + drawing paper

ponytail holders

 

For both:

Boarding passes

photo ID

TSA diabetes regulations

letter to TSA from Dr. Doughnut

1 share-able better sweater

1 UNO game

toothbrushes, pastes, shampoo, sunscreen, hairbrush

cash money

credit cards

coupon for free Legoland admission

insurance cards

HSA credit card

AAA card

Lego VIP card

baseball cap

 

Packed for Diabetes

10 kachunkers

10 tubings

10 cartridges

current vial insulin

unopened vial insulin

spare unopened vial insulin

Lantus

frio pack

little cooler

30 syringes

alcohol swipes, IV prep pads,  adhesive-dissolving pads, hand wipers

175 test strips

Ping meter

spare meter

pump batteries

meter batteries

spare meter batteries

finger pricker + lancets

spare finger pricker

glucagon set

Starbursts

mini luna bars (box)

granola bars (box)

headlamp

pen + record chart

ziplocs

 

 

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01Jul / 2012

FFL Anticipation + Bigfoot Summer Book Club: BREAKTHROUGH

Read this book—even if only to ogle photos!

On the history of the discovery of insulin.

ANGLE: Guys who figured out how make pancreas extract from dogs = petulant, insecure bastards. T1 family quite lucky all work out. Also: dogs = lovely, loyal. Bonus: photograph 10,000 tons of cow pancreas—in heap on barn floor, like pile of hay —> it for science.

Bigfoot not know turn of century treatment diabetic children = starvation. Parents send child live at diabetes place, eat one tablespoon thrice boiled green bean, one egg, one tablespoon cream/coffee. Usually live one year or so. Pass time make scrapbooks food pictures, play game “If I Could Eat Anything in the World, I Would Eat…” Come away from book feel very grateful insulin.

Guess main point of Breakthrough is personality of Frederick Banting. For example, refuse read science experiments of others, only want plow ahead with own idea even if redundant. Maybe main point is: isn’t it incredible this uncooperative, mediocre-seeming person was actually a superstar? But most memorable = sweet Marjorie the dog. Banting remove Marjorie pancreas, keep alive w/new extract, no one believe really took whole pancreas out, Banting kill Marjorie prove no pancreas in there. (SPOILER ALERT: pancreas in there.)

One million pounds of pancreas. No need to put it on a plate.

Spent yesterday Duckfat/Peak’s Island w T1 adult friend, dx age 7, now 40. Ask so many questions, make Bigfoot happy this woman no problems, never ketones, never hospital, never glucagon, two times “didn’t wake up.” (#1: Middlebury College. Friend squeeze orange slice in mouth revive. #2 France. Foxy French husband rub honey in mouth.) As child, no finger prickers, only pee-on strips. If high BG, no remedy except run around house 20 times. In high school, get finger pricker. Still no remedy high BG. In college, begin see endo at Joslin. Head of pump program, but never recommend pump because such good control NPH. If something works for you, don’t change it. French endocrinologist agree. When meet, only discuss literature/upholstery fabrics.

Now home, Bigfoot try remember be here now/meet self where self exist, but feel tiny bit hairy ogre ask so many diabetes questions. Bigfoot #1 hobby = diabetes; Boston/France friend’s #1 hobby (i.e. career) = wine sales. All day Bigfoot slip back into diabetes topic, then apologize, then friend say really, it’s okay. I never have anyone to talk to about this stuff. Or well it’s normal to have a lot of questions, it’s your first year. But huge relief get home, talk diabetes-diabetes-diabetes with spouse, also so eager get FFL where maybe other person even more myopic focus diabetes. Will be huger huge relief such person exist—maybe by dozens, hundreds.

Still not sure how pack FFL. Advice: bring twice as much as you could possibly need. (= 4 kachunkers/day?) Bigfoot need grow pair, just start pack.

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29Jun / 2012

Moonrise, Moonset

For the purposes of this post, the image of Dream Babysitter will be portrayed by Wes Anderson. But they look nothing alike.

This week Dream Babysitter ketones. Not able come for Bubs tennis lesson yesterday. Think will feel better in evening for Bigfoot/Bigfoot spouse attend après falafel 8:30 screening Moonrise Kingdom. No. Still sick. Think will sleep, feel better in morning, come for tennis lesson. No. Still ketones. In text, voice mail refer this process “battling ketones.” What? How? Think will rest for day, come in evening, Bigfoot/BSpouse try again falafel/Moonrise combo. No. Dr. Doughnut send Dream Babysitter to hospital.

Not admitted to hospital, only tests. What tests? Dream Babysitter so kind. So apologetic miss tennis lesson/babysitting. Bigfoot not care those things, only sad nice boy feel crappy. How Dream Babysitter feel these ketones floating in body hours, days. No idea. Barf? Headache? Shiver?

Dream Babysitter very desirable summer home house guest Maine, Aruba, also tennis teacher/babysitter. Also have girlfriend! No time for sick. This happen often? Hospital? Dream Babysitter afraid? Maybe hospital de rigueur for diabetic teen jock. Want ask million questions.

And the image of Boston/France Diabetic Friend will be played by Hope Davis. They maybe do look a tiny bit alike in the hair.

Meanwhile, Bigfoot relieved not required go out have fun/film/falafel. Leave for Maine in morning. Early. Alone but w Hope Davis narrated audiobook. Meet 1990′s Boston/France friend lunch. Diabetic! Since age 7. Not 100% sure but think this friend use 2 shots/day (NPH?), no bolus, no basal. Or NPH is basal. Mystery. No one know. Could be French thing. Impossible find information this drug.

When Bubs diagnosed, Boston/France friend say something like, “This reminds me to ask my endocrinologist about Lantus.” ??? This friend very chic. Very hip. International wine expert. At wedding, actress from well-known crime drama sing w/accordion to tune of Roxy Music “More than This,” customized lyrics re bride’s disappointing old boyfriends. Endo at Joslin. Not sort of person typically unable access medicine. Why so old school treatment? I guess I’ve just always had such good control, they never wanted to change my treatment plan. Something like that. ??? When we were working together, I gained a lot of weight because my insulin dose was too high and I had to eat all of the time to keep up with it.This for real? Tomorrow try not ask million prying question. Question #1: Maybe NPH work better for Bubs? Not many good #s lately.

After Maine, begin obsess FFL. Only one day btw. Maine/Orlando. Not much time for obsess. Hope find cheat sheet diabetes packing list by Monday. Ten kachunkers too many, too few five days? Maybe ten just right. One unopened vial Humalog, maybe two. Syringes. 50? Backup vial Lantus. Lantus pen. Two cases test strips (200). Maybe 100 enough.

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24Jun / 2012

Jam up the pump little more

Sachuest was a daughter of Metacomet, famous for destroying pilgrims’ muskets with sand that she secretly gathered in a hollow gourd from this place, originally known as 2nd beach

Middletown, Rhode Island Bigfoot favorite beach: 2nd Beach. Go every day if not too hot, not raining, not have camp, not at FFL conference. 2nd Beach (AKA Sachuest Beach) perfect boogie board, kadima, pickle, jackpot, taps, soccer. Broad. Flat. Right size waves. Always comfortable temperature air/water. May even need jacket 2nd beach when disgusting hot day other part Rhode Island. Showers. Toilets. Snack bar. Plenty life guards.

Persons who enjoy rolling in sand and/or digging holes using only their buns may be especially susceptible to pump jams

Perfect sand for digging giant hole. Brown sugar sand. Tiny grain, dense. This sand also perfect for clog infusion site. So much that on 2nd trip as insulin pumper, Bigfoot bring four spare ka-chunkers. 2nd beach = pump jam.

Another feature of 2nd beach: The Kindest, Most Agreeable, Fun Boy is almost always there, just to the right of lifeguard #5

Wish followed advice from last time express shock re grit in site. Recap: can of compressed air. Or advice from comments on Gritty Little Infusion Sets. Recap: Opsite Flexifix, IV3000, Tegaderm, Matisol, “skintac, tegaderm, skintac, sensor, skintac, tegaderm in layers;” some of advice may be only re Dexcom. Bigfoot not yet gather energy figure out where buy* specialty adhesives; fear will be medical supply shoppe w bedside commode, flesh-tone compression socks.

Main thing about beach: Bubs so happy. Also notice learned trust Bubs come in from water if feel low. Today trot over, dry hand on towel, test, 68, eat 3 Starbursts (all independent w brief consultation re Starburst location) run back in. This probably not 100% correct procedure, but Bigfoot not check again. Trust will come in if feel low again, notice strange sensation: relaxation, put nose right back in New York Times crossword, fill in G R E E N H O U S E G A S E S. Holla.

Issue now: decide new normal pump program. Summer days very active, more than school. Except for over-hot/rainy summer day sit still with Lego, barely move, much less active than school. Today so active, probably good day for temp basal. Never think of for daytime. Ever temp basal ++some%? Need look into decrease normal basal for summer, then do ++temp basal for lazy summer day. Think now if too much basal, eventually person grow fat from life-saving Starbursts/Gogo Squeeze. Better –temp basal. If only little bit easier. Hard imagine Bubs become fat.

Other issue: rent car for FFL even though hate driving? Will feel trapped at hotel if no car? Not plan on leave much—only LEGOland—but once at conference will Bigfoot want drive to A-list burrito, five miles down road? This not seem appropriate question FFL ListServ. ListServ population very keen on Disney road trips, teenage dress code. Bigfoot more keen on hotel pool, LEGOland, maybe burrito if excellent/not too far away/not Chipotle.

*(Actually, it not so hard, can order here. $38-ish for 4″ x 11 yds—>maybe enough for 200 on/offs or approx. 40 trips beach?)

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12Jun / 2012

New Impossibles

Don’t google it. Looks like it was a movie in 2009, and the title is longer and gives away the secret of what the creepy garage man is.

Tonight for bedtime flop out, Bigfoot/Bubs not able stop read Skellig. Mother/sons agree: not like this book. Jack walk away at beginning, prefer Grammy’s Drew Barrymore wedding People magazine. Skellig-world everything so creepy. New baby in family sick. Dead pigeon in fireplace. British, but drink Cokes. Nothing funny happen. Only very curious find out what happen next. Maybe creepy bug-eating garage-dwelling man = bat. Maybe zombie (yawn!) Once find out, not need read more. Short chapters. So hard stop. In between Chapter 6 + Chapter 7 Bubs address new diabetes concern. I feel really bad for Type 2 people. Not to be rude or anything, but it’s sort of all their fault.

BIGFOOT: (Totally knowing what he means) What do you mean?

BUBS: Well, it’s sort of their fault because they’re like “Let’s get all junked up on this delicious food!”

BFOOT: But it’s bad luck too. There are a lot of people who eat junk food who never become diabetic, and people who become diabetic who don’t eat junk food at all (NB: not actually say final phrase out loud. Add in for transcript, attempt demonstrate knowledge + equanimity)

BUBS: Junked up and chunked up! Hi! I’m so chunky! But I can’t stop eating this food! Nom nom nom nom

BFOOT: It’s not that simple

BUBS: I know but it’s like everyone will think they’re fat and blame them

BFOOT: Well, people who don’t have good information could blame us too

BUBS: Keep reading

That was nice sentiment Bigfoot share in between chapters super-creepy book.

I didn’t make these. This is what came up on google images for Babybel. It’s from cute food for kids dot com. Dang. That really is cute. I get to be the one on top, to the right!

Meanwhile, this summer = 1st Diaversary. (Diarrhea!) Remember August 9th, 2011 everything impossible: puncture child with needle—>insane, inject medicine kill if make mistake OMGAYFKM?, squeezing out blood (quease), never eat w. no math except Babybel cheese (but I bake such good bread! This can not be happening.) Next level impossible: ka-chunk on infusion set (bigger needle—>new quease), fill insulin cartridge no bubbles (c’est impossible), communicate complex information to machine use only up/down arrow + OK button.

Fast forward now: Bigfoot can do all of above. ((Tip hat.)) Feel normal/normal-ish, if incompetent.

So much still feel impossible. Current list daunting:

  • Take Dexcom out of box, schedule lesson (but I really think it will hurt too much and beep too much!)
  • Bubs ride bike to school alone or with goofball child/no adult hoverer
  • Bubs carry sugar meter + Sweetarts on own person
  • Teach 1 – 2 grandparents glucagon
  • Read Animas manual* (big spiral-bound one)
  • Read Pumping Insulin
  • Learn combo-wave thing like Joe
  • Feel OK w. no sleep

Other big difference since August 2011. THEN: Are you kidding me? Why would I want to be around a bunch of diabetic people? NOW: How many days until the conference? (ANSWER = 22.)

* Look like Spanish for pump = bomba? Ricky Martin maybe comment difficult manage diabetes, despite insurance coverage para la bomba. (Mas de una poca de gracia se necessito para bomba de insulina funcionar. IBHO.)

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04Jun / 2012

FFL Blogger: Bigfoot Make Running List

I’m afraid I’ll wind up in Conference Room X

Bigfoot sort of shy, need scope out possible conversation partner FFL in advance. Bigfoot spouse not attend, definitely wish enjoy beverage, competitive ping pong some adult some point w/o join FFL Eyes Wide Shut key party. (Listed as Informal getting-to-know-you by the CWD cabana at the pool.) (?) Keep running list attendee blogs here, refer back when need reading material middle of night.

This list. So convenient.

Allison Blass – http://www.diabetesmine.com/

Tim Brand – http://www.bleedingfinger.com/

Leighann Calentine – http://www.d-mom.com/

Jessica Collins – http://www.meanddblog.com/

Denise and her Bean- www.mysweetbeanandherpod.com

David and Elizabeth Edelman – http://www.diabetesdaily.com/edelman/author/Elizabeth/

Karen Graffeo – http://www.bittersweetdiabetes.com/

Scott Johnson – http://scottsdiabetes.com/

Tom Karlya – http://www.dlife.com/diabetes_resources/experts/tom_karlya/tom_karlya_bio

Katy Killilea-http://bigfootchildhavediabetes.com/   <—-as if.

Melissa Lee – http://www.sweetlyvoiced.com/

Sara Nicastro – http://momentsofwonderful.com/

Brian Quinn – http://notmycell.blogspot.com/

Wendy Rose – http://www.candyheartsblog.com/

Heidi V. Shell – http://d-logger.blogspot.com/

Courtney Slater – http://cslifewithd.blogspot.com/

Christopher Snider – http://tobesugarfree.com/

Kerri Sparling – http://sixuntilme.com/

Scott Strange – http://strangelydiabetic.com/

Lee Ann Thill – http://www.thebuttercompartment.com/

Ginger Vieira – http://living-in-progress.com/

Kim Vlasnik – http://www.textingmypancreas.com/

Jacquie Wojcik – http://badpancreas.wordpress.com/

Bennet Dunlop – http://www.ydmv.net/

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02Jun / 2012

Numbers + Ping Pong cookies

Put question at top in case can’t slog all way through: Anyone there know list for FFL attendee blogs? Bigfoot wish get to know some characters in advance. Only know Neurotic City, Six Until Me, Moments of Wonderful. More?

 

ANSWER: join the fb page!

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Think juice is for babies? Too tired to chew?

Not so good diabetes control when Bigfoot start and end day spooning frozen lemonade Bubs’s mouth. In bed. Guess new basal rate high enough. High enough+. On pos. side, Minute Maid frozen lemonade= perfect for treat lows for child too tired chew + dislike juice.

Last night heaven. Asleep face down on top of duvet, fully dressed 8:15PM. Awake 8:30 IN MORNING (under duvet + in nightie!). Bigfoot ask for time (it 8:30AM!) leap from bed, so eager look in mirror. Minor disappoint. Still eye bags. That OK.

For the record, I married a much older man.

Thursday evening throw Bigfoot Spouse low-effort Birthday Ping Pong Party with Beer and After School Snacks. Subtext that invitation: we like you and want to see you and we want to play ping pong, but please keep your expectations extremely low for the food. Famous cookie baker arrive w. huge platter ping pong paddle/ball cookies; physics teacher arrive w. charcuterie; librarian 1 arrive w. fancy cheeses/crackers, gourmet pizzas, record albums; librarian 2 arrive w. blueberry lemon cake; other persons bring nice food/Bigfoot too self-absorb notice or thank; Bigfoot place store-bought Chex Mix in bowl. Regardless low effort, so tiring. Next day can barely stand up, barely think straight for describe Baccarat crystal champagne flutes. (Best sentence of day: Made in France.)

After eye bag check, review #s. Bedtime 121. 12AM 132. 1AM 117. 8AM 122. Not believe such numbers possible! Maybe everything perfect now forever.

Today Bubs invited visit West Bay Bubs. Most anxiety for Bigfoot is what if parent feel must entertain Bigfoot because Bubs want Bigfoot stay even though West Bay Bubs’s parents physicians with diabetic child + tony address + know what’s what but really barely know them, so can you stay?

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Bigfoot sure this not right placement Pinterest button

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