Two Disconcerts, No Photo Available

Disconcert #1 (long one)

Yesterday Bigfoot math volunteer Bubs’s class. Notice Bubs read library book while teacher give math instructions, then continue read when divide into groups.

Friend call “Hey B, how about you, me, and P?” Bubs not reply, although this premium favorite friend group. “Bubs?” Bubs blink at friend say Nah, I’m leaving. I have low blood sugar.

Teacher hear, ask classmate escort Bubs nurse’s office, meanwhile math volunteer job begin: help children plan 8-person Thanksgiving feast for as close to $175 as possible using Shaw’s sale flyer.

Bubs not come back, not come back, Bigfoot think must be low, must be recover on nurse fainting couch. Then Bubs come back. Sit on floor near group. Group already chose turkey, 99cents/pound. Already calculate cost. Already choose beverage: it Mountain Dew. Ten bottles, $10. Now time for choose vegetables. Boys discuss merits canned vs. fresh. Bubs move away. Sit alone, criss-cross applesauce on cold floor, chin on palm of hand/elbow on knee. Pale.

BIGFOOT: Hi! What’s going on?

BUBS: I’m not going to tell you

BIGFOOT: Why did you leave your group?

BUBS: (Scowls, moves away)

BIGFOOT: Should I leave you alone? I feel like something’s wrong (<–insightful)

Then awesome teacher approach, explain Hey Bubs, your group needs you! Come on, buddy. That  type friendly man chat. It work. Then teacher explain quietly Bigfoot it turns out he was angry that he had to wait so long to test his blood sugar, because someone else was in the nurse’s office, getting their I think it was a GI tube? changed, so it took a long time. But his number was fine. Anyway, it turns out he was just angry that they chose the drinks without him. Guess he’s not so into Mountain Dew.

Meanwhile, Bubs move away. Sit alone again, scowl Bigfoot, mumble something.

BIGFOOT: What did you say?

BUBS: I said I’m DEPRESSED because you did not put anything. Edible. In. My. Lunchbox. So I’m not going to eat ANYTHING for the rest of the day

BIGFOOT: Well, you’re in luck. Because I’m here today. And there’s still time before lunch. So you can tell me what you’d like and I will go get it*

BUBS: I don’t want ANYTHING. Everything you make is always disgusting

BIGFOOT: (having seen this extremely negative rage personality before, makes an unbelievable offer) How about if I go to McDonald’s, and get chicken nuggets and an icy Diet Coke, and drop them off for you in the office?

BUBS: I TOLD you. I don’t. Want. Anything. Especially NOT FROM YOU

BIGFOOT: How about EATS?

BUBS: No!

BIGFOOT: How about Five Guys?

BUBS: Nice job on wasting your life trying to name restaurants. You don’t even know any good restaurants

etc.

After math volunteer job end (Bigfoot recommend each group $4.99 clementines, Buy One Get One Free Boursin cheese, avoid pre-made Shaw’s pie. Very help), nurse call Bigfoot telephone. Hello, Bigfoot? It’s not an emergency. Before recess he was 79. When he came at 9:30 he was 252, no ketones. When he left math because he felt low, he was 119, and then just a little bit later he was 79 so I knew he was dropping so I got him to eat part of a Luna bar…

All pieces fall into place. Bubs read instead pay attention because BG mid-plummet. Does right thing: visit nurse. But # is normal. So return same dismal situation. Sit in math, more plummet. Feel worse and worse. Probably feel something along line of “I asked for help because I feel like shit and they told me I was fine.” Disconcert because: not sure how could be different, but this very sad.

Disconcert #2 (short one)

Pick up Rx refill @pharmacy. This trip Rx special. Because for 1st time in forever, pick up syringe refill. Because travel Thanksgiving. Because back up for pump is Lantus pen/pen needles + Humalog (non-pen) + syringes. Co-pay for syringes: $25.72. That weird amount for copay. Thought would be $5. Call Blue Cross. Very helpful. Say Bigfoot responsible entire cost syringes because name brand. Ask is there a generic brand I could get instead? Answer no but: you can get them at no cost from a durable goods supplier. Say what? Blue Cross Rep start rattle off names durable good suppliers.

Disconcert because: Bigfoot consider mail-order diabetes supplies territory of Actual Diabetes Persons. Such as: people meet at Friends for Life (experts), old people, Type 2s, people who can’t drive/no legs/blind, Wilfred Brimley. Today mark day Bigfoot cross over into Actual Diabetes Person.

*Defensive N.B.: Bigfoot not usually so coddle, but Cognitive Behavior Diabetes Therapist teach Bigfoot how bend away conflict this manner when child so insanely unreasonable.

got more cheddar than some super sized nachos

It's expensive to keep our ducklings alive

Something happen 2012: Bigfoot family see price diabetes first time. When diabetes adventure begin August 2011, Bigfoot family already meet $3000 insurance deductible; everything label with price tag $0.00. Hospital: $0.00. Medicine: $0.00. Equipment: $0.00. Yesterday, after read Six Until Me, Bigfoot learn this not very close approximation actual cost.

Drugstore dot com list 5-catridge pack Humalog: $628.28 – save 18% ($136.74). Bigfoot obtain 5-pack each month. Lantus: $125/bottle. Holy crap. Bigfoot currently have $3000 insulin in fridge. That legal? And test strips: $120/100 strips. Fucking ass hats! Also have Animas insulin pump in basement ($7000.) Dexcom CGM on way tomorrow ($2000?)

Please watch this movie

One part brain, feel lucky. Other part, feel sure insurance system brink collapse. (When Bigfoot run insurance company, light cigar; sign initiative giant Mont Blanc pen: DUMP THE TYPE ONE DIABETICS ASAP.) And third part brain, feel disgusting hog resources.

Watch Life for a Child movie. Spoiler alert: Rural Nepalese diabetic child test blood sugar once every few months, travel six hours on foot/bus, faint on way, father scoop water buffalo dung bare hand earn money live close enough hospital keep child alive, keep vial insulin in twist-tie baggie in hole in floor fill with water—no fridge. Rural Nepalese cuisine look good though: rice + curry.

Bigfoot have idea for Blue Cross Blue Shield Rhode Island: offer $5000 diabetes supply Nepalese baby if Bubs forgo insulin pump. BCBSRI keep $2000 savings for cigars/Mont Blanc pens, Bigfoot not need learn insert tube Bubs’s abdomen, Nepalese baby test blood sugar 5,000 times over course 4 year when Bubs eligible insulin pump again.

Low Blood Sugar vs. Sportsmanship

Not 61, not 52, not even 74: 124. Just a bad mood.

Bubs flop out on floor halfway through fencing tournament. Bigfoot impress self: stay calm, cool, enter emergency mode. Low blood sugar! Test. Bubs get 124. Damn.

Bigfoot fondest wish blame bad sportsmanship on blood sugar, but it not possible this day. Fencing teacher encourage Bubs finish tournament, feel “sense of accomplishment!” Reluctantly agree.

Small people fencing fun to watch, only because when score, see cute little gauntlet fist pump and hear “yessss” through spooky hornet mask. At end, Bubs win green “Sportsmanship” ribbon. Bigfoot have hard time not laugh when Bubs cry, “I didn’t even win eighth place!” Tears streaming down red, red face.

In car, test blood sugar again: 71. That low, but not low enough explain away ferociously pissed off mood. I HATE FENCING! and YOU HATE ME, THAT’S WHY YOU MADE ME COME! and FENCING IS SO STUPID!

Bigfoot ineffectually say over and over, “No, it’ll be OK. You know I love you. Come on, it’ll be OK. Oh, honey. You know that’s not true” in allegedly soothing voice, try channel Ma Ingalls. Half Pint freak out sometimes too.

Meanwhile, Bigfoot complete 2011 insurance medical supply hoarding cycle. Most impressive: lancet tally—1,122. Probably last three years, since Bigfoot, Bigfoot spouse, and Bubs never remember advance barrel until lancet too dull penetrate calloused fingertip.

Stocked

The Pump. The Pump. The Pump.

A disturbing story about whacking a young duck

Today see Coro Center Diabetes Nurse Educator. Love this nurse. See nurse around town. Cute curly hair, very short. This nurse stop to pee in Bigfoot area Shaw’s supermarket (bathroom) when on long distance run. This nice nurse show three insulin pump samples.

#1: 1950′s-thick Kotex, egg shaped/size of duck egg. Remote control in Walmart blue with Oldsmobile dashboard texture

#2: not waterproof, cool transparent design

#3: waterproof, look like iPod if created in late 90′s (jellybean iMac era)

Bubs choose #3. That not true. Bigfoot and Bigfoot spouse choose #3, Bubs stick Kotex egg over belly button, it fall off.  Then play Doodlejump on phone. Meanwhile, as if need pretend consider options, Bigfoot spouse stick Kotex egg on arm, say, “Well, this doesn’t hurt at all.”

NURSE: you know, there’s no needle in that one

BFOOT SPOUSE: ah, I see. So it can’t just atmospherically secrete insulin through my pores

NURSE: no.

Actually look more like Zune or Rio.

#3 name Animas One Touch Ping. Ping, like ping pong. (Bigfoot favorite sport.) Ping like storybook duck, pretty sure duck Ping receive corporal punishment (lead pipe?) when tardy arrival Yangtzee River. So Bigfoot fill out paperwork, fax to Animas tomorrow. Bigfoot also fill out paperwork Dexcom continuous glucose monitor. Although Nurse say Dr. Doughnut believe CGM a useless device, Bigfoot wish get one while insurance pay 100% cost.

End of meeting, Bigfoot ask, “Are there any other expensive gadgets I should request before our insurance changes?” Not say out loud, but stall while rack brain for idea more thing ask have.

Remember 1980s SNL skit The Pump? Bigfoot remember jingle, “the pump(…)the pump(…)the pump(…)” but not remember premise. Now see it about lung cancer and syphilis. Eddie Murphy play smoking doctor hold spray bottle anti-cancer treatment. It not funny, but jingle run through head all week.

Blue Cross usher Bigfoot to exit from insurance heaven

I thought you were my BFF.

Yesterday Bigfoot spouse learn Blue Cross change insurance rules. Begin 2012, no longer free ride after meet Out-of-Pocket maximum, now have copay for all prescription. Bigfoot like take opportunity hoard free drugs and needles, squirrel away as many as can before December 31. But it tricky.

Bigfoot realize Bubs spoiled with luxe, open bar access fancy no-see-needle lancet system and fancy fresh insulin on tap, but new ordinary insurance status feel cruddy.

The $40 copay Rolls-Royce of lancing. Witness the civilized 6-lancet drum, which magically keeps anyone from ever having to see a needle.

Not get all political, but Blue Cross blame new rule on Obamacare, which make illegal charge copay ordinary customer for preventative care. Before recent change, Bigfoot family in superior category bubble away from ordinary customer who pay for annual physical. Now they not pay. Blue Cross decide make up for lost income this way: pop bubble, make all people pay for more shit. Result: torture darling skinny little diabetic children with cheap, visible-style needle lancet.

Take long view, this not real problem. If Bubs not like cheapie $10 copay lancet, Bigfoot pay-fancy lancet $40 copay. Bigfoot family survive. Still feel bad because realize footing insecure: maybe insurance take away more and more until boil syringe on stove and reuse like ancient times. If not like insurance rules, not as if have alternative. Once begin down deprivation road, pretty sure wind up on road Cormac McCarthy The Road.

The ballyhooed $10 copay lancet device. It doesn't look so bad, but needles come shooting out of it.

Bigfoot realize lucky have affordable access health care. Realize posh-for-some insurance system not fair. However, Bigfoot more comfortable in unfair system with Bigfoot family near tip-top, not feel at ease in so-so system for all. This not match Bigfoot stated ideology. Bigfoot a total hypocrite. In addition learn Bigfoot hypocrite for health care policy, also become pro-death penalty after read about Penn State pedophile case.

266, 213, 321

pffffffffft.

Happy, play, brothers work together set table no fight over who light candle, who sit where. Have polite little boy over to visit, Star Wars afternoon easy, mellow. Everything about today good.

Of course that not true—Bigfoot develop small sore on gum after drink too much Vietnamese coffee. Also one person knock kitchen stool over, create hole in wall, Bigfoot go in Sherwin Williams buy whipped spackle, disappoint salesperson with meager consumer need. Also blood sugar numbers very poor.

So careful record all metabolic data. Bigfoot and Bigfoot spouse do best count carbs, use legendary precise metric system on scale, weigh glass of milk, weigh slice of bread, weigh peanut. Hold needle in injection site count ten before remove, give insulin no opportunity leak back out.

We can't cure your disease; instead, have some extremely humungous eyelashes. OK?

High blood sugar bedtime feel very bad. No one on guard. Sugar have free reign for many consecutive hour. Nothing happening distract sugar from evil plot destroy health.

One other bad thing, Bigfoot being targeted as Inadequate Eyelash Sufferer. This add new material Bigfoot busy mental anguish schedule. Many internet ad campaign explain eyelash loss happen with age, Bigfoot need prescription drug Latisse stimulate growth long, lustrous lashes of tasteful drag queen or Egyptian six-year-old boy. This a video ad campaign. Assault Bigfoot high volume when least expect it. Doctor in ad trust it; moreover, this very pretty doctor use it too! Product may cause change in eye color. Permanent staining on eyelid other side effect. Bigfoot think that OK—maybe look like Tammi Taylor eyeliner. Very robust staining, look like M. Bachmann.

Lately boys play question game: would you kill Butter if it would cure diabetes? YES INDEED. Which would you rather have, a hundred million dollars or no more diabetes? $100,000,000. Would you rather go on a Disney Cruise or to just plain Disney World, but you get to stay in the nicest resort? IT’S A TIE.

 

Diabetic Robot Doll glimpsed at Coro Center

Yesterday afternoon Bubs have first appointment at Coro Center.

It very simple appointment with no blood test and enough odd features to keep diabetes world fresh and exotic. Begin with: Bubs get measured centimeters; nurse offer translate result with calculator: 53.9 inches. Bigfoot say “Wow, hey, so 54 inches!” Nurse say, “Well, sure, 54 if you want to round up.” Point nine. In what math style round down move consider for point nine? Anyway, Bubs seem have grown. That nice.

Bigfoot and family escorted to exam room. It have door adjoin messy conference room. This door ajar. Bigfoot spouse give eyebrow waggle/head tilt to Bigfoot, suggest stealth peek into conference room. Bigfoot intrigued, think see someone we know, maybe celebrity James Franco. Incorrect! It Chucky doll who sit in this room. He fascinatingly terrible to see. Bigfoot try take picture, unable get good angle.

Bigfoot in control group for Chucky doll study, Bigfoot role in study reveal how much information parent absorb from human teacher unassisted by Chucky doll. Bigfoot think never have opportunity see Chucky. Now feel sad for parent in study have to work with Chucky doll. It very disturbing. Imagined he more freckly, wide-eyed like ventriloquist use. This doll much worse than imagined. Leaders of this study must feel, “We sure fucked up with this hideous dummy, but I guess things will look even worse if we stop the study halfway through!” Part of Chucky problem is skin texture and tone of death. Other issue is, although he dressed in jeans and a graphic tee from Lands’ End, also have thick foamy neckbrace, as if misfortune of whiplash added to Chucky backstory, possibly to make seem weaker/ less terrifying.

After one hour wait, but who counting, Endocrinologist enter exam room with whoosh of enthusiasm, Bubs shyly lean against father, hide his face against neck in casual, “I’m not afraid, this is just how I like to stand” pose. Doctor say, “So! How’s it going?”

BUBS: Good

DOCTOR: Really? Are you kidding me? I want you to tell me what you hate the most

BUBS: Lantus

DOCTOR: Does it sting?

BUBS: (nods)

DOCTOR: So! On a scale from zero to ten, where zero feels great and ten is the worst thing you’ve ever felt in your life, how does it rate?

BUBS: About a…six

DOCTOR: You tell your parents to roll that bottle of Lantus between their hands for a little while before injecting it. You’re not keeping it in the fridge are ya? You want to warm that up a tiny bit.

Next doctor and Bubs have conversation about not important eat at regular times, just match insulin to carbs, everything fine, don’t let parents make you eat if you don’t feel like it. In Bigfoot world, children must eat balanced breakfast before school. In endocrinologist world, children must eat doughnuts at all time of day so they not feel deprived of normal childhood. At one point in this discussion, Doctor used phrase, “doughnut after freakin’ doughnut” and Bubs looked shocked. Whisper to me, “She said freakin’ doughnut.” After spouse and Bubs left (Bigfoot stay behind to participate in Chucky/no Chuck study) endocrinologist apologize with a guffaw for saying “fucking doughnut” in front of Bubs. Now even Bigfoot shocked. Permanent image of—never mind (cinnamon sugar).

Doctor go on to say Bubs not need blood sugar test so, so often, now only upon waking, before eating, and before bed. No need check 2 hours postprandial. Bigfoot not say it out loud, but still want to know those numbers. Tracking numbers only thing Bigfoot have for diabetes skills.

Doctor call in nurse Jean (Julianne Moore as Jack Donahghy’s ex on 30 Rock, with Malden accent and unexpected squint smiles intersperse conversation). She present Bigfoot family with two free sample from Eli Lilly Pharmeceutical company: insulin delivery pen allow for half-unit precision.

These pens large fountain pens, fake leather boxes with fake velvet interior, snap-shut case. Bubs thrilled with this technology. Name on box say “Luxura” something—he impressed by this. Think it a Lexus for insulin.

For Bigfoot no-Chucky part of study, answer questions probably designed to be easy. Study administrator ask, “Can you describe for me what ketones are?” Bigfoot explain, “I know when they can happen, and I know what to do about them, but I honestly have no idea what they actually are.” Study administrator sigh. “I am sure I told you this when we first met in the hospital.” Bigfoot have to admit not remember anything from that time.

Other question in study seem design for tell parent not page doctor on call when child throw up. Only if child throw up and have ketones. Not trace ketones, not small ketones, but only if moderate or larger. Bigfoot not remember any of that, Bigfoot plan call if Bubs throw up because will be so confused. It apparent this annoy Administrator, but it for sake of Chucky experiment, it not time to correct ignorant parent, only note ignorance on clipboard of data.

At end of questions, administrator hand Bigfoot $90 in rumpled, warm cash money–Bigfoot pretty sure Chucky himself peed on it, then put it through the dryer, creepy laugh and watch it spin dry.

Kwikpen at America’s Douchiest Colleges

Juniper

Bubs need smaller dose insulin now. Ratio one unit : forty carb. This mean Bigfoot need use one unit dose some of time, but Kwikpen release only unenthusiastic dribble drop, not genuine unit. For two-unit dose, Kwikpen spray with gusto. For one unit it say, “meh. I’ll give you a little droplet, I guess.”

Bigfoot ask endocrinology nurse this seem correct? She say she never try Kwikpen only one unit, “I’ll get my Kwikpen out right now and see.” Bigfoot hear rummage-rummage sound, then, “OK, I’m priming it with two units, yep, and there’s a nice spray for two units. OK, and yup. For one unit I do get a definite spray, but a much shorter spray of course, and then a droplet. Your pen may be defective.”

Bigfoot huge fan of Patagonia return policy, also L.L. Bean, so ask, “Do you think I can take it back to CVS for a new one?” Nurse say, “Sure. They’ll alert the manufacturer that there may be a problem with that lot.” Bigfoot call CVS. They say come to store, pick up new case Kwikpen (5-pack) right now. Bigfoot feel pretty sure new pen also not work but that may only be craptastic mood, not rational thought.

CVS pharmacy staff very kind for diabetic family. No one CVS ever show concern when Bigfoot present mundane ailment such as psoriasis, dandruff, yeast infection, depression, conjunctivitis, anxiety, seasonal allergy, sinus infection, louse infestation, migraine. Not ailment of Bigfoot self, of course. Bigfoot never have problem—it amazing. Young man pharmacist trainee even help Bigfoot find blood glucose meter replacement battery. Here is hint: it reside in battery department. Official diabetes medicine snake icon on package.

Many part of day quite fine. Bubs and Jack swim with friends indoor and then outdoor at YMCA, fun ladyfriend by side listen Bigfoot rattle off long list of problem and anxiety, not give advice, just agree it suck.

Later in day visit Juniper on Thayer Street for addictive tangy frozen yogurt top with assorted fruits microdiced by family of Korean perfectionists. If not enjoy fresh microdice of fruits, may choose Fruity Pebbles cereal. Juniper yogurt contain many carb, so no need try make Kwikpen deliver one unit. That a relief.

Entire conversation with endocrinology nurse take place in Urban Outfitters books section. Bubs’s open blood glucose chart block other patron access to America’s Douchiest Colleges. Bigfoot not notice Bucknell University listed, it probably not rigorous enough land in glossy humor book, but Bigfoot get caught in reverie of water polo team members wear woven leather belts with long, dangly excess belt hang along fly of Bermuda short—Bigfoot not 100% sure but Bermuda douche short circa 1993 probably even have pleat. This look remain popular in current era among some Sowams School parent, it kind of thrill rub shoulders with genuine, guileless douche in gymnasium-cafeteria. Almost same as come across Renaissance Faire Lord or Lady in Shaw’s.

Where Kashi Go

Frozen Chicken Scraps Kong: zero carbs

Bubs fine. Nice blood sugar. He never over 150 today, his lowest is 72. That a low, but it not so low. This feel some kind of achievement.

Bigfoot unable sleep for long time now. It terrible for stay positive. Mid afternoon Bigfoot eat avocado-kinawa salad, still hungry, eat yogurt, feel sick to stomach. It not hunger Bigfoot feel, it tired feeling Bigfoot mistake think hunger. No food bring Bigfoot back to full awake. Require sleep.

Endocrinologist say no need test Bubs at 2AM now. She say he be fine in night. He have correct Lantus dose. Bigfoot not so sure. What if have exciting, happy dream? What if sweaty nightmare? Blood glucose not drop in such case? How this differ from exercise situation, physiologically?

Bigfoot send email own physician, ask if OK take leftover Ativan as sleep aid. She say sure, as long as only handful of times, “Or, if you prefer, I could prescribe Ambien.” Bigfoot write back, “Yes, please. Ambien.” Not mention have been trying Ativan as sleep aid and it not work. Bigfoot not want move top position list “Warning: Narcotics Abusers/Possible Drug Salespersons” physician hang by fax machine communicate with CVS pharmacy HQ. (Bigfoot have large supply Ativan left over from old times when such hardships as “having to go on a cruise” qualify as unbearable stress.)

After drug exchange, Bigfoot still tired. Try eat Kashi Go Lean cereal with vanilla almond milk as energizer. That stupid. Kashi Go Lean #1 at enhance slug feeling. Try 2nd small bowl. Slug galore.

Other diabetes problem very small, not serious, not expensive, but give Bigfoot experience of not trust insurance company. BCBSRI say we using lancet and test strip supply too quickly. It true BCBSRI provide generous amount, enough for 10x daily blood test. Bigfoot explain need use many blood test strip and lancet for learning, check often, also make multiple error because new to scene. Meanwhile, school nurse need have large supply on hand for smooth function office space. Endocrinology nurse say she call Blue Cross, many hours pass. Care to place bet on result?

Bigfoot say other thing

Bigfoot sure this not right placement Pinterest button

Follow

Get every new post delivered to your Inbox.

Join 276 other followers

%d bloggers like this: