Doi Polloi + 3 More

Soccer, beach volleyball, and Tartar Tots (one kid pointed out it should have been tots tartare!) for lunch @9 for 22g CHO. Welcome back to camp.

Soccer, beach volleyball, and tater tots for lunch. Welcome back to camp.

Real People

D-camp open house. Wow! Bigfoot surrounded by normal D-people in the flesh. Not psycho obsessive crème de la crème hyper-aware/inform/diligent/intense/communicative/psycho/obsessive sorts Bigfoot accustomed.

BOY: Does Bubs have a pump?

BIGFOOT: Yes. Do you have one too?

BOY: No, I was only diagnosed a year ago so it’s too soon

BFOOT: He likes it

BOY’s MOTHER: We really want one, but his endocrinologist wants us to keep a blood sugar log first, and we haven’t been able to get to that yet

BF: The fuck? You’re not writing down every one of his blood sugars on a chart and saving it forever? <–Not say

Later…

ANOTHER MOM: Is that a CGM?

BIGFOOT: Yes, we just started this week. It’s really cool

A THIRD MOM: What’s it for?

ANOTHER MOM: It gives tons of data points, so you can see where there blood sugar is going, and it can warn you of highs and lows

THIRD MOM: So what would that be good for?

BFOOT: Well, it’s great at night—I mean, it wakes us up if he is going low

3rd MOM: And then what?

BF: Then I can give him juice or…to keep him from…being low, I guess

3rd MOM: Well, he shouldn’t be low at night anyway

BF: That’s true

These examples not for snobby, just…everyone family unique style D-care, all kids play in field jolly/smiley/thrive/run/soccer, meanwhile probably all parents think all other parents kind of insane.

This is still so new. I feel assaulted by the double arrows. Like they're jabbing me in the eyes.

This is still so new. I feel assaulted by the double arrows. It’s like they’re jabbing me in the eyes.

Clever Jujitsu for Unjust Double Monkey Schlongs

Double monkey schlongs! Check w. meter: 156. Ask spouse veryfastvoice what can I do? It’s saying he’s high and rising superfast and I know I can’t calibrate unless we have the straight arrow but I want the thing to know it’s wrong because it is so way off do you think I should calibrate anyway what do you think? Masterful Bigfoot Spouse reply—so smart—try remember for next time: you could wait. Until you see a straight arrow. You know?

Sure nuf Bigfoot follow sage advice. By end of day (24 hours post insert sensor) #s match up.

Crazy Purple Tea

It's exactly the color of the paintbrush water at a princess-painting party

It’s exactly the color of the paintbrush water at a princess-painting party

Pretty package.

Pretty package.

Clipper Tea so nice package. Also friend recommend. Bigfoot buy berry flavor, think Bubs might like alternative peppermint because on sale. Tasty w. bonus: freaky color when add milk. Not for faint-hearted. Excellent choice for child enjoy freakish color hot evening beverage.

Seems Like But No

No.

No.

Glad Press ‘n’ Seal wrap seem like yes but not remain on abdomen through duration one short shower. (Still await Flexifix Opsite tape.)

Home

The final carb binge, in which we stop for bagels on the way to pick up Bubs at camp

Bubs home. How camp?

  • All of the kids sweared a lot
  • A big kid called me a vagina
  • I didn’t take a shower all week
  • I only changed my underwear once
  • They MADE you eat
  • The pond was disgusting! It had lily pads in it
  • It was pretty fun I guess
  • We built a fort with sleeping bags! It was awesome
  • For snack today we had worms in dirt
  • I think I want to be a cartoonist with a ponytail

Bigfoot notice camp lower basal rates, numbers in range, think yucky camp food + homesick + excitement = positive metabolic. Even when run around beach all day (i.e. w/family), still high overnight w 0.95u/hour. Camp 0.65u/hour, not high. Now home, still set 0.65u/hour overnight—>high. Comfort of home = insulin resistant cells? Comfort of home = liver feel confident, relax, release more sugar? Also could be chocolate milkshake w. dinner.

Here we see him telling Joe, “A big kid called me _______________ and I didn’t take a shower all week!”

A dramatic running hug. It ended in a classic lift n twirl. The backback is full of swag–including a lovely new VerioIQ meter.

Right after camp, head directly Charlestown, visit cousins’ beach house. Body surfing Narragansett Town Beach, dinner Crazy Burger. When ask how camp, Bubs tell Great Uncle, “Everyone sweared a lot.” Bigfoot Uncle ask, “Were they dropping lots of F-bombs?” Bubs say yes, but only for polite—not sure meaning that term. “A big kid called me a vagina!” Overhear Bubs tell 2nd cousin-in-law, “Someone called me a vagina!” Bigfoot not overhear, but Bubs also share same camp memory brother, each cousin-once-removed.  All afternoon, assorted relative confess Bigfoot, Bubs told me that someone at camp called him an inappropriate term.

All week, Bigfoot enjoy camp Facebook photos. Flip through hundreds, search for glimpse child. Usually find Bubs beside West Bay Bubs. Face expression range happy happy, mild happy, mere calm. Think had fun. Think pretty happy time. Probably hear more happy memory as time pass. Probably tell worst part first.

Meanwhile, OMG. Catch breath, camp laundry, buy markers, give old tricycle young friend, edit nurse care plan, plan lunchbox Saturday/Sunday—>school Monday.

Shift

I think I won’t go. This is a good book. I think I’ll stay here.

Bubs at camp. Last minute half-hearted, “I think I won’t go;” as soon as see friend, so smiley, choose bunk, make bed, situate Ugly Dolls, hug goodbye, no trace of worry in eye.

Okay, I’ll go. Can you stay for a while?

Actually, I’m all set.

Bye. See ya.

The parents bravely leave.

Magnanimous Bigfoot + Spouse let Jack choose lunch location: Bertucci’s. Legendary carbs. Bigfoot beer, arugula watermelon salad + roll. Bigfoot Spouse: pizza, diet coke, rolls. Jack: root beer, pizza, rolls.

Just for placate or coddle neuroses, after lunch Bigfoot bust out Bubs’s meter in car for test: 203. Bigfoot 203. Think Shit, this meter is broken. When test Bubs before camp drop-off, 303. Gave big correction. Maybe should call camp, warn I just discovered that our meter is broken! He’s going to be hypo!

Maybe watermelon residue on finger. Wash fingers alcohol swipe, wash Fastclix too, test again 239. Shit. Either Bigfoot diabetes or Bubs hypo at camp.

For science, test Spouse: 143. Meh. High for non-D person, but maybe normal because lunch so carb. Then test Jack: 295.

Simple matter of: Bigfoot addicted to worry over blood glucose? As soon as Bubs out of sight, shift focus closest person?

But also: data. Data! 295 impossible non-D person achieve, even if root beer/pizza. 2 hour post-prandial, Bigfoot 163. 3 hour pp: 111. Insulin resistant? Not enough insulin? Freaky new kind diabetes? No follow-up test Jack, because not want Jack remember mother so crazy. (Jack A1c week or two ago: 5.4. Pediatrician assure not diabetic.)(Bigfoot also pass A1c test few months ago.)

Meanwhile, Bigfoot/Bigfoot Spouse home alone, only emotionally disturb dog for child. Upon see/hug dog, actually bury face in neck, exclaim you’re my only baby now, as if everybody die and feel so merry. Jack visit grandparents’ home for big screen TV Patriot’s Game + sleepover. Bubs at camp, maybe snug in bunk. This unbelievable luxurious feeling: now we can sleep.

This may not even be from a reputable source, but this is pretty much what every source said.

greed ÷ shame ≈ 145 (shame ≤ 1)

Huge hyperglycemia fit today, familiar from before diagnosis. Kicking, yelling Why do you hate me? Threatening, if you don’t leave me alone I’m going to EAT THIS LEGO. Two parent hold arms, sit on legs, try prick finger for test. Flailing. Look out! He’s going to break your nose! Bigfoot laughing because ridiculous scene, but also little bit afraid. Bigfoot Spouse make move for naked toe. Not my toe! Okay! I’ll test! Just don’t do my toe!

Bigfoot hand Bubs Fastclix—Bubs rip device apart, chuck Fastclix pieces across room. I’ll never test! You can never make me test! I’d rather die than do the stupid test! More wrestle. 350 lbs. adult power not enough get good angle. More struggle. Get test done: 332. Crap. Need injection. Bigfoot lie across Bubs while Spouse fill syringe. Almost as soon as inject:

BUBS: Wow, sorry I was so unreasonable back there

BIGFOOT: Are you feeling better?

BUBS: (Smiles weakly) I guess so. Actually, no. For this whole time that I’ve not been crying, I’ve just been trying not to burst into tears, you know what I mean?

BIGFOOT: Can I give you a hug?

BUBS: Yes, please. (Collapses tiny bit.) And I know that this is probably a no, but could you also make me a cup of tea?

D-camp tomorrow. Big orange duffel, sleeping bag, headlamp, new toothbrush, deliberate over which Ugly Doll, maybe Ugly Doll plus Ugly Pillow? Maybe three Ugly Doll plus Ugly Pillow, because Ugly Dolls are pretty small, you know? Ready. Leave for camp after lunch tomorrow—all summer camp feel far away. Now camp. Tomorrow. Metal bar press down Bigfoot heart.

As if first time thought cross mind, Bigfoot Spouse today wonder, Who’s going to take care of him? Bigfoot remind: all of the kids there have diabetes, remember? The whole thing is set up so they’re safe. That’s the point of the camp! BSPOUSE: I know, but it’s sort of unbelievable. I can’t believe it exists.

Just some low-fat, probiotic nutrition: cookie dough and cookies & cream flavored yogurts plus Cookie Crisp, marshmallows, Heath bars, turtles, and caramel sauce

For final pre-camp dinner, Bubs choose Antonio’s pizza/ballyhooed Froyo World Frozen Yogurt Lounge. Pizza slice, maybe 5 x 7″? 4 x 6″ + puffy. Puffy thick or puffy airy? Bigfoot guess 30g CHO. Try anticipate Froyo World, where each patron determine serving size use formula greed ÷ shame. Dispense into giant paper cup, then apply toppings. Fresh fruit or: Heath bars, gummy bears, Reese’s Pieces, Lucky Charms minus cereal part, Snickers, caramel turtles, Frooty Pebbles, peanut brittle, Cookie Crisp cereal, cookie dough extrusion, plus squirt-on corn syrups/assorted flavo-colors. Predict 100g CHO for conservative estimate.

6.25 units for 100g. Combo 60-40% over 1/2 hour, as if old pro.

After pizza, walk to bustling Froyo World. When see Bubs’s concoction, think way over 100g CHO. But also think there’s no way he will eat all of that. Halfway point, bolus 1.5u more. You know, you don’t have to eat all of it. BUBS: No! I’m fine! I want to! Bolus 2.5 more. Carbliest meal ever: 175g CHO.

A dainty dollop of tart vanilla with a trowel each of Heath and Reese’s Pieces.

Then think that can’t be right. He couldn’t possibly eat that much. Try figure out how abort Combo Bolus. Can’t do on remote. Or can’t see how. Math math math again. Yes. Total really 175g-ish CHO. Reassure self math math math over again. Bubs near final bites. Really, truly: 10.25u accurate dose. Really. Probably.

On way home, think this is going to be way too much insulin simultaneous this is definitely not enough insulin. Not want brag, but after get home, bike ride (glucagon case rattle against basket every bump/tree root): 220. If no IOB, would need 1.37u correction, but 1.92 IOB! Day-um. Pretty close.

OR will be high 2AM, delayed rise due to fatty. OR way too big dose, but insulin too hot so weak. (OR insulin bubbly). OR too small dose but bike ride amplify insulin power. OR something re camp anxiety or growth hormone. OR will be best night ever.

Diabetes Blog Week #7: Hero

this was a picture of the W. Alton Jones sign
Feels like the middle of nowhere or Northern California with more Dunkin Donuts. I did not take this picture.

Bigfoot complete set! Diabetes Blog Week end today. High five. Meet many new friend, read many new blog. FUN. Thank you Bittersweet Karen! This post re Let’s end our week on a high note and blog about our “Diabetes Hero”.  It can be anyone you’d like to recognize or admire, someone you know personally or not, someone with diabetes or maybe a Type 3.  It might be a fabulous endo or CDE.  It could be a d-celebrity or role-model.  It could be another DOC member.  It’s up to you – who is your Diabetes Hero??

Bigfoot not able stop mental churn/review what happen this morning Camp Surefire open house.

PART ONE: Drive drive drive, new area Rhode Island, never recall see, so pretty–big tree like forest, funny name: Wickaboxet, quite bit further down road: Alton Jones, feel so far away everything, only see trees.

PART TWO: Upon arrival Camp Surefire after chatty (I can’t see anything but trees! Where’s the water? I feel like we’re in the middle of nowhere!) one-hour car ride, Bubs abruptly decide not want see camp, not want attend camp. Main articulated sticking point, What if someone thinks I’m a girl? Refuse leave parking lot.

Happy! Relaxed. Also: doesn’t this picture make you feel so much better about non-fisheye lens pictures of yourself where your nose looks inordinately large?

PART THREE: Bigfoot say let’s just peek inside of a cabin and not talk to anyone! Peek inside slightly icky mildew cabin. Bigfoot begin think he’s right–he shouldn’t go to camp here. Overhear counselor telling English as second language family, “We never force nobody to do nothing, we only encourage.” Oh, Bubs  is totally right. This place is a disaster. I can’t BELIEVE I was going to let him come here. Meanwhile, Bubs meet camp director wife: Ali. Ali show Bubs Fox Den cabin (Fox Den = boy cabin. Mildew cabin with grammar/ESL insensitivity nightmare = unknown purpose). Glossy wood floors (just refinished), clean walls (just painted), shiny clean bunks (must be new). Overhear Bubs asking Ali what kind of battery-op light bring for attach bed/read at night.

I highlighted the waggly tubing (in white). In the red circle you can see the two bags of Baked Cheetos that serve as a souvenir of the afternoon.

PART FOUR: Ali introduce Bubs returning camper, also 3rd grade. So similar Bubs. Must be West Bay Bubs. This boy glasses/braces, maybe only way tell apart. Both: long hair–but West Bay Bubs’s even longer!–, pump clipped pocket, flip-floppy shoe, 3/4 length Mini Boden pants. Both enjoy experiment banana peel, determine if slippery as clown cliche. WestBB ride banana peel like ski. Bubs slip, skid, fall. Hilarious! Find out as get know WBB: also hate when dentist offer sticker of smiling tooth, hate wear name tag, hate sand cling wet feet beach, love Lego, love Star Wars, suffer recent experience mistaken for girl. (But WBB mistaken “Princess;” Bubs “Sweetheart.”) (WBB despite wear Batman shirt; Bubs, despite Darth Vader shirt.)

Now counting days until camp. (100?) No dread. Only happy. Therefore Bigfoot choose Ali (camp enchantress) and WBB (new friend. Kind of like Liberace boyfriend plastic surgery goal: resemble Liberace, but organic occurrence) for diabetes hero.

Foster People

Double carbs your food.

Bigfoot Spouse allegedly brilliant plan for put skills to use: we should see if we could get a foster child with Type 2 diabetes.

BFOOT: Type 2? Why not Type 1?

BFSPOUSE: Too rare. And I’m sure our skills would apply to Type 2. Type 2 kids grow on trees!

BFOOT: Maybe, but we’d never pass the inspection

This haunting conversation. All day reverberate. No way Bigfoot family approve by DCYF for diabetes treatment home. Probably wind up in jail after one week, DCYF officer scribble on notepad:

  • Sleeps through alarm* for 3AM blood sugar check five nights in a row (*probably because idiots fail to change alarm noise from the soothing Barack Obama ringtone)
  • Allows more than ten days to lapse between check-ins with endocrinology team, even when obviously needs help adjusting overnight basal segment (*probably because of sleeping through the alarm and wanting to cover up the missing data the endo team is going to ask for)
  • Offers breakfasts such as crepes** with Nutella even during the week that Time For Kids featured an expose of how disgusting Nutella is
  • Carries the dreaded watermelon flavor glucose tabs, even though diabetic person in her care hates watermelon things

Bigfoot come up with alternative brilliant idea: how about Bigfoot spend part of summer volunteer Guatemala mission site? This trip overlap diabetes camp, give Bigfoot chance have adventure while not quite so much needed home. Travel with handsome older Doctor Without Borders, know from church. Only problem this plan: worry steal thunder from Bubs’s exciting adventure Southern Rhode Island. No doubt it big deal, sleep away from home five nights. This huge. If come home, mother in Central America with dysentery, maybe make big-deal sleepaway camp seem small.

 (**in defense, crepes made with whole wheat pastry flour, almond milk, and duck eggs tasted “kind of like oysters” so not many carbs actually ingested)

Bigfoot say other thing

Bigfoot sure this not right placement Pinterest button

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