OMHFGAYFKM?

this was a picture of lucille bluth
This is all just so dramatic it makes me want to light my hair on fire.

Bigfoot not much coarse language but oh my holy fucking god are you fucking kidding me? Persistent hypoglycemia. Bubs’s blood sugar not go up. Not go up. Not go up. Episode of The Office. Not up. Episode of The Middle. Not up. Again The Middle. Way past bedtime. Not up.

Hear of phenomenon but never experience. Foolhardy! Think never happen Bubs, possible for Southern diabetic child or urban diabetic child or Finnish diabetic child, maybe Sardinian. Similar unemployment, hurricane, mugger victim. Know exist but think not for Bigfoot.

Try make sense. This not interesting for normal person. For Bigfoot, fascinate.

March 6th, 2012

7AM: 76

45g breakfast (1/2 banana + smoothie)/3u Humalog

10AM: 100

6g snack at school (4 wheat thins, turkey slice, cheese slice)

12PM: 82

42g lunch at school (PB& Nutella sandwich, blackberries)/2u Humalog

2PM: 137 Oh boy! Happy days are here again. I knew this would happen eventually! So good, so good, so good

4PM 68 Low. That’s OK.

12g glucose

Kraft white American 2% slice on Bimbo. 12g carbs for those who leave crusts. Fried in organic olive oil=health food.

4:15PM 78

55g snack (sushi, apple, milk)/3.5u Humalog

6:15PM 378AYFKM?

Re-check: 286. Seriously?

Re-check: 316. This is bullshit

72g dinner (turkey taco, bean taco, milk, girl scout cookie)/7u Humalog (5u for dinner + 2u correction)

7:30PM 70 We are TRYING to get READY for BED here. 

15g cookie + swig of milk He’s probably about to go high but I guess I’ll follow Dr. Doughnut’s orders…

7:45PM 57 ?!

15g glucose I’m bringing out the big guns, motherfucker

8PM: 86 That’s more like it

One year ago, I considered a fractured wrist an unfathomable pain in the ass. It was the garbage bag over the arm/arduous sponge baths. Cute!

9u Lantus Normal normal normal

8:30PM (I think I’ll check just to torture myself with how high he’s going) 63 Motherfucker!

15g glucose Don’t fuck with me

8:45PM 86 That’s IT?

9PM: 12g one half grilled cheese sandwich (perfectly toasted, pictured)

9:45PM 110

Kim + Endo-on-call tell Bigfoot same thing: glucose every 15 minute until over 80. Then add protein. Make sure number stay up through night. Prepare self for high morning, deal with high later, it OK. Barely able stop navel-gaze formulate thought: so lucky people help. Kim (calm person w/ Type 1 child) and Endo-on-call respond Bigfoot ask help. Patient. Immediate.

Bigfoot plan up all night, last night Bigfoot spouse turn no sleep. Check 11PM, 1AM, 3AM…until number shoot so high want shoot self in face. Not sure how behave this all-nighter. Make black tea, enjoy awake? Work? Style hair? Apply self-tanner hopeless grasp maintain Bahamian glow? Research Irish food? Probably make banana breads.


Seizure-y

What lengths will you go to for an extra one of these?

Bubs’s Lantus dose 9u now. 7u before. Coro Center nurse advise test 2AM one or two times, make sure not go too low in night. Tell Bigfoot not need worry, Bubs “is just a normal, growing boy with diabetes.”

As imagine, Bigfoot not 100% keen on 2AM finger prick. Therefore agree camp out by fire, try make mild homestyle adventure. Bubs in sleeping bag, Bigfoot on sofa. Two new New Yorker magazine arrive while Bigfoot in Bahamas, eager read article with Darwin/altruism/vampire bat regurgitate blood into mouth of starving fellow vampire bat.

Settle in by fire. Bigfoot have magazine open, sheepskin spread over sofa, big duvet all to self. Alarm set 2AM. Bubs in sleeping bag, rosy cheeks, hair damp from shower.

BUBS: I feel like I can’t fall asleep

BFOOT: Maybe you’re too hot

BUBS: Yeah

BFOOT: Let’s skooch you away from the fire

BUBS: OK (sets sleeping bag and pillow up a few feet further away from the fire)

BFOOT: (goes back to reading vampire bat article)

BUBS: Or maybe I can’t fall asleep because I just feel so low

BFOOT: You do? (Hops up to get finger pricker. Bubs handles the pricker and runs the test)

BUBS: 39

BFOOT: Thirty-nine? Really? (Runs into kitchen to get candy corn)

BUBS: I’m sorry

BFOOT: It’s not your fault! Are you eating those?

BUBS: It is my fault. I should have told you sooner

BFOOT: Did you eat all seven?

BUBS: Yeah

BFOOT: Did you feel low and not say something?

BUBS: No

BFOOT: It’s not your fault! Honey, you know it’s not your fault at all

BUBS: My legs feel weird. They feel all…seizure-y

BFOOT: They do? (Starts rubbing his legs)

BUBS: Yeah, it’s like I can control them and make them stay still but it’s really really hard to

Sam Fuld is not Sam Talbot

Now at 99. Bigfoot pause. Think. What different? Switch cow milk for sugarfree coconut milk, unsweet almond milk. Also Girl Scout cookies arrive. Also, swim YMCA minnow no guppy (rigorous.) But what if LANTUS whopper dose the problem—low come back again, again, again? Really need hypoglycemia awareness dog. Ask spouse check again: 137.

Sam Talbot eats sauteed broccoli rabe for a snack

Meanwhile, for happy thing, Sam Talbot cookbook arrive. Bigfoot recommend. Sam Talbot so handsome, so healthy, Type 1 since age 12, professional chef, surfer, book of recipe also have practical advice for how carry syringe in pocket, how organize supplies in home, how bring all need in waterproof box for surf. Still huge hassle but gorgeous book make feel better this topic. Wee bit. Bigfoot family decide make pilgrimage Montauk, find Sam Talbot restaurant. Book feature photo Sam Talbot test blood sugar–same blue meter as Bubs, but Sam Talbot meter all scratched up (sandy lifestyle).

Lemon ricotta pancake. Sam Talbot say eat only one time in year because splurge. Sam Talbot limit carbs under 90/day (20-30/meal.) Bigfoot so far away this goal.

One Samoa cookie: 10g carbs. Seems like should be more.

Hello tomorrow

Spreadsheets and highlighters

P. Coladas and icy Diet Cokes with lime

Still in Bahamas. On beach get email from Dream Nurse: Bubs morning blood sugar = 359, know Bigfoot away, please tell husband or babysitter negative ketones. Heart sink. Decide this: NEVER go away again.

Then decide this: leave MORE often, force situation—even if bad result initially, better in long run Bubs have two parent excellent Dream Nurse communication. Bigfoot not want cement status Sole Emergency Contact. Then realize Dream Nurse out of life after 3rd grade.

Big, hairy, pina colada-breath sigh. (Sorry no tilde.) Home tomorrow midnight, peek in at Bubs/probably injure foot on Lego, kiss Jack/cry because so large + old, track sand into bed/try remember how pack special school lunch + deal with children before drink tea/put hand over passenger dog eyes while drive past golden retriever/Barrington Shaw’s/under-ripe Bosc pear/clean up after self/icy rye + too many cashew, no fruity drink/million other thing twirl in head, not many favorable.

Today work morning, then beach/sunburn knees. Read Martha Stewart Living March 2012–worst theme: garden issue. Alpha seagull snatch BBQ potato chip out of Bigfoot hand. Giant black beak. Not so heaven here–nightmare. Also terrify go home. Just like Pema Chodron Wisdom of No Escape but subtract wisdom aspect.

Rich + healthy: good

Have fun. And don't forget to tape Skittles to your butt!

Away from diabetes, everything so simple. This trip offer added layer simplicity: everything free, have as many $300 dinner/ $17 Diet Cokes* as desire, sign name and room number, done. Plan ahead when eat not matter. Carb count not matter. Price not matter too! Musical selection (Red Hot Chilli Peppers, Billy Ocean, Sade) not matter. Bigfoot mistake Billy Ocean Suddenly Lionel Richie Hello–not matter, no ashamed error. Enjoy all. Not feel guilty, only calm.

Bigfoot realize this hollow, maybe tired of ease by tomorrow, become homesick. For now so nice experience life as wealthy, disease-free socialite. Today, yesterday, day before, day before that, barely think of family.

That not true. Think of family, but never how feel right now, left behind, no lady in house. Only think they would love it here! They would go on all of these water slides and hide in the underground aquaria (Bigfoot really choose that plural) and they’d make friends with these other kids and then run from pool to pool to swim some more and <—fantasy stop; think impossible keep track blood sugar/hypoglycemia all-day swim, impossible let Bubs have fun while maintain awareness location, parent ride adjacent inner tube Lazy River? Attach water-resistant emergency Skittles Bubs–duck tape Ziploc bag on buttock? Sand get in pump site? Change to syringe/pen when go on beach trip? It OK switch back and forth? Pfft. So complicated. Much better stay home, eat rice cakes peanut butter/banana, swim one hour YMCA, for thrill buy Lego.

Bigfoot Skype spouse this is so relaxing. You have to go on a vacation by yourself. I have never been this relaxed. You would not believe how calm I am. Bigfoot spouse not comprehend, tell story of Jack purchase hideous Reese’s Peanut Butter Cup theme t-shirt. Next day Bigfoot spouse revisit idea, email I was thinking about what you said about going on a vacation by myself…do you think I might see if Kim could come over for an hour while I go out on my bike? <—By share this, Bigfoot mean illustrate paltry expectation “me time.”

Surreptitious check out every bare belly Atlantis beach. Thousand abdomen, maybe more. Find zero insulin pump. Skinny brothers running in ocean, race to family chaise, munch out on Bugles, one brother have blip on abdomen, heart soar: this fellow enjoy beach-time fun. Detach insulin pump while swim! Quick break for intoxicating junk snack! Sunshine. But nah. It just a minimally disfiguring birthmark.

*Not accurate. Diet Coke (can) $4. $300 dinner serve 3 famished adult.

Relax bread

Ratio-free paradise

Bigfoot in Bahamas now. Eat sandwich on beach. This tuna sandwich on giant bread wedge–probably sundried tomato-basil/possible oregano flavor. Puffy, moist bread, possibly “a bap.” Away from home under 10 hours, already not think of carb tally. Think only, “This big bread maybe make Bigfoot fat, but Bigfoot not care.”

Very relax!

Also every drawer in room for Bigfoot: one drawer: running clothes; other drawer: underwear/swimsuits; all hangers in closet: Bigfoot, Bigfoot, Bigfoot. Very relax. Difficult believe good fortune. Maybe need iron spokesmodel outfits, R. Santorum on news ponder aloud President Obama Muslim/not Muslim, hair air-travel dirty; not bothersome.

LESSON OF DAY: it very easy not have diabetes.

Bigfoot say other thing

Bigfoot sure this not right placement Pinterest button

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