Weekend = Almost Perfect Fail.

Butter, 11 months before surgery.

While visit Cape, Butter with babysitter. Dog bite Butter (dog.) Biting dog name Sugar! Bigfoot know—seems like should get along, make shortbread. But now Butter in surgery. (Sugar fine.) This how come to pass BG disaster du jour. No one test Bubs until 10AM. Part because somewhat distraught. Part because distracted: one person drive to vet while other person drive Jack to camp. Other part because not equipped handle extraneous intrusion—only can do diabetes.

395.

Of course Bigfoot not able hold tongue. That’s why we test him as soon as we get up! & other sharp wisdom. Realize it not matter how got this situation. Now dog in surgery! Son super high blood sugar! Who can say how many hours Bubs exist this height. Check notes: 10PM 168. 12AM 192. Correction 0.15u. Then: nothing.

Now in complicated math tangle.

So.

10AM 395. Correction: 2.15u.

11AM 321 (correction probably working=good); eat 50g CHO, bolus 2.5u.

12PM Just checking in, make sure correction still working. 431! Crap. No ketones. Yay.

Inject 3u old-school syringe; trou already drop (site change) so not mention re-introduction of Mr. Orange Cap.

New site, new insulin. Prime. Fill cannula. Await improvement.

Look at that vast empty space. 

12:30 eat 78g CHO. Pump recommend 3.9u if BG normal. Bigfoot bolus 3.9u, assume syringe correction will gobble up 300 mg/dL of 431 mg/dL part of situation. So consider BG normal for math purpose. Yes?

OCCLUSION! NO DELIVERY! Hard not imagine pump speak all-caps message in whiny, beleaguered grocery clerk voice. PRICE CHECK AT AISLE NINE! Check site. Check tubing. No occlude. Try bolus again. PUMP NOT PRIMED! NO DELIVERY! PRICE CHECK AT AISLE NINE! Prime already perfectly primed pump, try make pumpbrain happy. Fill cannula with 0.05u for good measure, keep up ruse of correcting failure to prime. Bolus 3.9, 3, 2, 1, 0. Ahhh. Breathe.

1:30PM 165. That really fast: down 100 points per half hour. With beans, cheese, whole wheat tortilla, chocolate milk in equation too. Plummet or normal? Maybe 3u in syringe too much. Because probably something got through with earlier correction. But how much? Crap. Not know. No way know. Breathe.

Also now Bubs feel like total crap, look like damp noodle. Pallid with rosy hint of slight sunburn. Breathe. After lunch, play ping pong. After few serves, decide just want to volley, no score. OK. After few volley, need move table into shade. After volley in shade, move to swing set. After swing, play Creationary. After 2 turns each, depart from game not say anything flop on couch, stare at ceiling. Bigfoot sure BG skyrocket from lunch, decide most likely all of insulin in fridge spoiled—maybe too cold? Must be why Bubs feel so noodle. That when see 165.

Now will check every 30 minutes. This experience make Bigfoot think pump too conducive mystery. Long for straightforward days syringe. When only way child not get insulin is because adult forget.

GOOD THING(s)

  • Dream babysitter BACK IN ACTION! Walks, sees, everything OK
  • Delicious smell of peanut butter graham cracker on child breath
  • Handsome man painting front porch bring Bigfoot iced coffee
  • 1h. after 165, 89. Italian ice ready for low
  • Always more opportunity handle novel situation w. smart/graceful: water slide party at 4PM

Good news 1st w/seasonally inappropriate recipe in green ink

This card was purchased but ultimately rejected. We decided you can’t acknowledge the existence of the F word to someone young enough to be your child until they are over 30, unless you are some kind of pot-smoking fun uncle

Good news: Bubs suddenly take interest food. Today. Mama, do you think I’m healthy? Or Is a Luna bar actually nutritious at all? Or Who eats better food, me or Jacky? And—not mean brag, but this: today choose chicken vegetable soup over 7,367g carb vegan chocolate chip muffin during post-camp grocery shop. Holla! Then ask Bigfoot make winter time favorite broccoli soup. 80 degrees outside. 9PM. OK.

PERFECT ROASTED BROCCOLI SOUP FOR CHILDREN WHO HATE VEGETABLES<—(what a good mother!)

Roast the bejeebers out of a sheet pan of olive-oil drizzled chopped broccoli and shallots. The vegetables should become brown or even black in spots. Put the roasted mess in a big pot. Cover with water and add Better than Bouillon Un-Chicken, approximately one glob. Simmer the bejeebers out of this and smoothify with an immersion blender. Throw in one ton grated sharp cheddar cheese. It will melt. Add salt to taste. For soup like the Broccoli Cheese soup at Panera, add five tons cheese and grated carrots. I should add nooch. I never remember. This is the original version of this soup. CARBS: practically zero, right? (Link shows 1c broccoli-cheddar soup has btw 2-800g. carbs. Somewhere in that ballpark. Pretty sure this recipe’s soup is more on the 2g end.)

Srsly. It’s hard to find a good card in Target when the getting well isn’t from a broken leg or something.

Bad news: Weeks ago Dream Babysitter sick. Ketones. Not able babysit, think better next day. Not sure source ketones. Fever. Dr. Doughnut admit Dream Babysitter hospital. Dr. Bigfoot think probably have flu or stomach bug, get IV or whatever treatment normal for ketones. Bigfoot/Bubs return home p. FFL, write to Dream Babysitter mom Just checking in to see how he’s doing. Probably in Aruba with his friends by now but I just wanted to make sure! Mom Unfortunately, he’s not doing well at all. Know now: not diabetes problem. Encephalitis. Encephalitis! Change to bigger children’s hospital special pediatric neurology place.

This total bullshit any child/person, but Dream Babysitter Bigfoot’s perfect diabetes angel—kind, polite, handsome, smell like dryer sheet, such good role model Bubs + Jack. So matter-of-fact/responsible diabetes; also star of mystery dinner theater play/tennis team/hockey team. Body forget illness dance card already full? No time encephalitis—already going steady diabetes.

Moonrise, Moonset

For the purposes of this post, the image of Dream Babysitter will be portrayed by Wes Anderson. But they look nothing alike.

This week Dream Babysitter ketones. Not able come for Bubs tennis lesson yesterday. Think will feel better in evening for Bigfoot/Bigfoot spouse attend après falafel 8:30 screening Moonrise Kingdom. No. Still sick. Think will sleep, feel better in morning, come for tennis lesson. No. Still ketones. In text, voice mail refer this process “battling ketones.” What? How? Think will rest for day, come in evening, Bigfoot/BSpouse try again falafel/Moonrise combo. No. Dr. Doughnut send Dream Babysitter to hospital.

Not admitted to hospital, only tests. What tests? Dream Babysitter so kind. So apologetic miss tennis lesson/babysitting. Bigfoot not care those things, only sad nice boy feel crappy. How Dream Babysitter feel these ketones floating in body hours, days. No idea. Barf? Headache? Shiver?

Dream Babysitter very desirable summer home house guest Maine, Aruba, also tennis teacher/babysitter. Also have girlfriend! No time for sick. This happen often? Hospital? Dream Babysitter afraid? Maybe hospital de rigueur for diabetic teen jock. Want ask million questions.

And the image of Boston/France Diabetic Friend will be played by Hope Davis. They maybe do look a tiny bit alike in the hair.

Meanwhile, Bigfoot relieved not required go out have fun/film/falafel. Leave for Maine in morning. Early. Alone but w Hope Davis narrated audiobook. Meet 1990′s Boston/France friend lunch. Diabetic! Since age 7. Not 100% sure but think this friend use 2 shots/day (NPH?), no bolus, no basal. Or NPH is basal. Mystery. No one know. Could be French thing. Impossible find information this drug.

When Bubs diagnosed, Boston/France friend say something like, “This reminds me to ask my endocrinologist about Lantus.” ??? This friend very chic. Very hip. International wine expert. At wedding, actress from well-known crime drama sing w/accordion to tune of Roxy Music “More than This,” customized lyrics re bride’s disappointing old boyfriends. Endo at Joslin. Not sort of person typically unable access medicine. Why so old school treatment? I guess I’ve just always had such good control, they never wanted to change my treatment plan. Something like that. ??? When we were working together, I gained a lot of weight because my insulin dose was too high and I had to eat all of the time to keep up with it.This for real? Tomorrow try not ask million prying question. Question #1: Maybe NPH work better for Bubs? Not many good #s lately.

After Maine, begin obsess FFL. Only one day btw. Maine/Orlando. Not much time for obsess. Hope find cheat sheet diabetes packing list by Monday. Ten kachunkers too many, too few five days? Maybe ten just right. One unopened vial Humalog, maybe two. Syringes. 50? Backup vial Lantus. Lantus pen. Two cases test strips (200). Maybe 100 enough.

Camp + cramp

What do normal people do in this situation?

Bigfoot not want cramp style, but think sit on folding chair hallway outside video game design camp Brown University. OK?

Filling in form for camp.

Should student be restricted from any activity due to health reasons, etc?

Bigfoot choose radio button “no.”

Does your child have any dietary restrictions? For instance, nut allergy.

Bigfoot puzzle over. Then choose radio button “no.”

Does your child have any past or current medical conditions (physical or mental) that would require special attention?

Easy one. Bigfoot choose radio button “yes.”

Please explain:

Bigfoot try balance keep simple/keep it real. Say: Bubs has Type 1 diabetes and wears an insulin pump. If he experiences hypoglycemia, he will need to test his blood sugar and eat sugar to correct it. When he eats lunch, he will need to take insulin. I plan to stay close by in case he needs help.

Second guessing self: is this really necessary? But not see any way around it. It = folding chair. For summer camp…How? How this supposed work? How do we do this? School so easy with Dream Nurse. Camp nurse maybe college kid with band-aid in metal box.

Bigfoot not mind sit chair hallway, only mind feeling of doing wrong thing. Bad feeling if excessively nerd—-or worse: creepy. Good feeling if this correct diabetes parent procedure. Call camp. Camp rep. no idea what do this situation just, “Yeah…I guess…I guess you’re right…you could sit…in the hall. I think that would be permitted.” Permitted? Anyway, assume wifi abundant Brown University computer lab area. Get lots work done. Try remember walk around a lot so not die on job.

Marvin Redpost won.

Meanwhile for good times, Dream Babysitter show up, slim little diabetes backpack over shoulder. Play Apples to Apples all evening Bubs while Bigfoot and Spouse out for white beers and dinner. When not able decide which card best match for “hairy” (George Washington v. Ladybug), Dream Babysitter award point Marvin Redpost by place game card on this book cover. “Looks like another point for Marvin Redpost.”

So funny! So kind! So diabetic! Love Dream Babysitter. Two more years until college. Hard not hope for some current 2 year old Type 1 so Bubs can be some lucky family’s Dream Babysitter too.

100

Bigfoot, Bigfoot Spouse, emotionally disturbed dog come home after evening out. First time leave Bubs calculate own carbs/insulin dose. (With diabetic varsity dreamboat babysitter assistance.) 3 hours post-prandial:

100.

BAM! Bubs-DVDB combo inspire so much confidence, consider not only size of slice, thickness/density of crust, + amount not eaten, but also pizza’s gestalt. Whoa.

Since DVDB visit Aruba for remainder April school vacation (kind, handsome, athletic, diabetic person not only good for babysitter, also coveted vacation home guest), Bigfoot/Bigfoot spouse plan mini-vacation for family so not just sit around bereft DVDB gone.

It might be this crowded.

Vermont. Of course April = Vermont! [This choice for water slide purposes (don't judge)]. Far enough challenge selves learn how travel new equipment, close enough not need airplane + only gone 3 days. How many infusion sets? Bigfoot think 5. How much insulin? Bigfoot think one unopened, one opened, one Humalog pen, one Lantus pen, carry in cooler w/ ice pack, bring ziploc bag/ fill w. ice when ice pack no longer cold if no minibar. (Contingencies!) How long OK unplug Bubs? Bigfoot guess 30 minutes, check BG, if OK, 30 minutes more, take break eat + plug in + test, then 30 minutes more…actually Bigfoot have no idea how manage probably way over-test. How many test strips? Bigfoot think 175.

Serendipity: Jay Peak water slide name = Pump House.

Pink Mini Club

Jackpot!

Dream babysitter arrive: teen hockey star, Type 1 since age 8, attitude-free/sincere, know how talk adults. Have little brother one year older than Jack.

Also: show up w/ Monopoly game (w. credit card swipe machine) under arm. Bigfoot hate Monopoly. Bubs love Monopoly.

Also: show Bubs hot pink One-Touch Mini. Bubs almost fall off of stool: I chose the pink one too! Bigfoot fumble through bag, so excited, barely can unzip, pull out pink meter. Not say but think See? See? Don’t you love us/want to babysit us all of the time/maybe give tennis lessons, maybe make our family your senior thesis? Instead say something stupid like what is it with you guys and your pink meters? Bubs: We want to show the world that pink isn’t just for girls. Babysitter: Yeah, I love to wear pink shirts in the summertime, right Bubs? Bubs: (silently makes note to self: ask for pink shirt.)

Bigfoot spouse thinking I wonder if he would go on vacation with us. Bigfoot thinking we need a bigger car. Also: this guy A SOPHOMORE! 2.5 years if Bigfoot play cards right. Try not act too eager. Not want scare away.

Bigfoot say other thing

Bigfoot sure this not right placement Pinterest button

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