11May / 2013

The Entertainer

All rhubarb systems go.

Opening night! 4:30PM seem auspicious time rhubarb crisp: beautiful day, performance in evening, rhubarb crisp = Bubs’s favorite food, & 112/arrow diagonal down. Pre-show also ate low carb tortilla + black beans, farmer’s cheese, carrots.

About half an hour pp: where is my grammy? I am a rock star.

About half an hour pp: where’s my Grammy? I am a rock star. 122/ straight.

Before leave house for theater, quick check of Dex reveal who is superstar of rhubarb bolus.

Hour later: Bubs appear from backstage blackjack game, find Bigfoot auditorium. I feel low. Sigh. 65. Dex concur. Post Fun Dip hustle backstage for more blackjack. No re-check? Mom, I’m the DEALER. And it’s really fun. I kind of like the independence of it. Of being away from me? No. Of being a blackjack dealer.

It was blue Fun Dip—not a great choice before appearing on stage. On account of it turning the eater’s entire lower face region blue.

BIGFOOT: Take this extra Fun Dip with you

BUBS: Nah

BF: What if you feel low during the show? You don’t have to carry the meter. If you feel low again, just chug the Fun Dip. Or you can check the Dexcom, and then chug the Fun Dip

BUBS: Mom. No. Nuh-uhn

BF: What would you do if you felt low?

BUBS: I’d tell someone to get you

BF: During the show?

BUBS: (Shrugs)

Bigfoot give Fun Dip director’s assistant. Probably useless gesture.

Soon enough = showtime. See Bubs 2nd scene. Look like feel ok, but head down. Difficult discern well-being because role is act cool. Cool, aloof? Or verge of faint? Turn out looking down because little trouble (snag) pull comb out of jeans pocket for choreographed hair combing move. He was just trying to get the comb. He’s fine. <—It Bigfoot whisper spouse.

Show fantastic. One idea for improve.

instead of this ^ application of multi-media

Could try this ^. Something the whole audience could enjoy.

After show, Bigfoot tell Bubs so happy, so proud of, was it fun? Like perform with big audience? What best part?

Let’s not even play this game. Or let’s! The Fun Dip was too much OR the rhubarb crisp had a delayed punch OR the excitement of performing made cortisol course through his veins OR the excitement of being a blackjack dealer did it OR he’s getting sick OR the tubing got kinked during a costume change.

Wait at least five minutes before ask Did you look at the Dexcom at all during the show?

BUBS: Yup

BIGFOOT: Was it helpful?

BUBS: (Shrugs)

BFOOT: Did it get in your way at all?

BUBS: Nope

I think 4 Juicy Juices/1 night is our record

Arrive home, Bubs hungry and high, big bolus. Go 240-191-69-66 within one hour. Think that can’t feel good but Bubs seem OK with it. In morning, Bigfoot can see in notes Spouse up all night administering Juicy Juice.

WTF? Post-show high not require correction bolus some reason? Because not high from food, but high from stress? But what is high BG if not high blood glucose i.e. sugar—regardless what spur rise?

Meanwhile all night Dexcom in & out of function. Sensor Day 3. Just when think maybe better pull sensor/start over, sensor work again & accurate as all get out. Dang. Only make Bigfoot love more.

In morning, Bigfoot sleep late because migraine (irrelevant but pity always welcome)—causing pancake delay. Bubs wake up 122, then Minecraft happily while wait decrepit mother beat egg into pancake form.

This one means to illustrate the inadvertent basal testing, but maybe more illustrates the sensor spacing out on its job. CLUE TO THE SENSOR: He doesn’t wear you just because you’re cute.

This create inadvertent basal testing. Breakfast normal day = 7AM-ish/today 9:30AM. Climb 122 —>250 (250 on VerioIQ, 245 on Dex) interim. So perhaps make basal rate higher 5AM – 8AM? And breakfast I:C ratio lower–or higher–however describe less insulin per CHO. Clearly require further study.

OR maybe preferable just eat food at 7AM, keep same program.

we do 1tsp rms + 1-2tsp this stuff. he loves it he would probably like it plain. jack likes it too. I don't know how I feel about jack eating Splenda, but I think in B'a case it's probably for the best while we're in the pancakes (which is actually an egg) every day phase

Thank you, Type 2 house guest of friend, for leaving this behind on your recent visit. And thank you, friend, for passing it along. I never, ever would have tried it on my own.

Meanwhile, pancakes situation. Every, every day Bubs eat that eggcake. Love the eggcake. And also love this fake maple syrup. Currently mix 1 tsp. real maple syrup + 1-2 tsps. fake. Bubs adore. Would happily eat sans real maple component but Bigfoot afraid then pancake breakfast too low carb. Jack like fake syrup now too. Bigfoot not sure how feel about Jack eat Splenda, but think Bubs’s case probably for best.

Matinee now! C ya.

I wish I had seen this on Beta Buddies before opening night.

Someone should fold this.

Permalink 12 Comments

08May / 2013

Dress Rehearsal

8:03AM: the Klansman waves goodbye.

Spring semester roll toward summer with three performances end of week plus standardized science testing plus School of Rock, dentist, dilated eye exam, lacrosse, plus usual everything do; fingers crossed also hair/toe maintenance (Bigfoot only); plus friend/running partner moving away, need many lunch/dinner/beer dates. Also running dates.

Bubs not star show. Parent heart in throat regardless: feel miracle Bubs agreeable for wear jeans/wife-beater ensemble, perform choreographed moves, public singing. Shy, silly person apparently grow up/expand horizon.

Today first dress rehearsal. 4:45 – 7:30PM with instruction: eat dinner before rehearsal.

This looks much worse than it is. I mean, that's not his real skin, and the dark bits aren't coagulated blood.

This looks much worse than it is. I mean, that’s not his real skin (Flexifix!), and the dark bits aren’t coagulated blood. But it is totally hanging off. Yet still working with numbers that match VerioIQ. What?

Bigfoot plan real dinner (grilled meat/broccoli salad) for 7:30PM; requisite pre-dinner = pizza/Diet Coke en route @4:30PM. Dexcom 102 & straight, Verio IQ114. Under-bolus even though pizza because not sure what rehearsal mean for up/down BG.

4:46PM.

VerioIQ confirms it. BOOM. Players, this is with the Dexcom sensor hanging offa him, barely attached.

Arrive rehearsal. Zzt-zzt-zzt. LOW UNDER 80. Pffft.

2 Glucolift. Only 2 because pizza. Because under-bolus. And because pizza.

Half of a moment later. Two Glucolift in belly. Time to go backstage. Thus ends Dexcom coverage.

4:58PM. Two Glucolift in belly. Time to go backstage. Thus ends Dexcom coverage.

Zzt-zzt-zzt-zzt! LOW UNDER 55. This moment = Bubs presence required stage left. Because time for sing & dance of course. Mouth from seat in remote-enough for not embarrass auditorium section Do you feel low? Bubs mouth back I’m fine. Bigfoot not very worried, everything so new. Nothing bad ever happen stage performance entire family history. Like baby crawl into cute/wild hyena cage. All new. Curious.

There he goes. He was already doing his Cool Boys snaps. I’M FINE.

Dang. Stage left out of range Dexcom. Bigfoot turn on screen every few seconds anyway. Nothing. Maybe tiny bit more fear than hyena-cage baby.

At last see Bubs. Song & dance Cool Boys song. Not seem low. Seem OK dancer, no tipsy/sweaty/annoyed. After West Side Story + Bye, Bye Birdie songs, 6:30PM VerioIQ 299. That can’t be right. Your fingers must be Glucolifty. Wash hands 349. Hmm? Correction 2.25u (ISF 1:80; with idea drop 180 points, please.)

Wish could have seen dramatic climb via Dexcom! Sure would make fantastic hidden picture.

The incredibly good looking dancer who’s taller than the rest is B’s teacher. You can’t make this kind of person up.

Permalink 5 Comments

05May / 2013

Low People Problems: Efficacy of Rogaine at the Tricentennial

Hypoglycemia = long, strange trips in conversation. Take long time Bigfoot realize why fall into cuckoo rabbit hole @bedtime this weekend:

BUBS: Do you think I’ll live to see the tricentennial?

BIGFOOT: Hmm. How old will you be?

BUBS: I don’t know

BFOOT: Well, that will be in 2076—oh, yeah. You’ll be alive. You’ll only be 73!

BUBS: What about you?

BF: I’d be 105. So probably not. I hope not. I don’t think I’d like to live that long

B: Mama, is baldness (covers mouth with duvet)…genetic?

BF: I think for the most part it is. Yes

B: Do you think I’ll be bald?

BF: No. They say you’ll have the same kind of hair or baldness as your mom’s dad. So you’ll be like Grandpa Bob. Not bald at all

B: Do you think I’ll have to have chemotherapy and get bald from that?

BF: Nooo…?

B: Because I already have a disease, so I probably can’t get cancer, right?

BF: Well, anyone can get cancer, but I don’t think you’ll get cancer. That seems extremely unlikely

B: Do you think Rogaine works on bald men?

BF: No, not really.

B: Do you think Rogaine will work on bald men in time for the tricentennial?

BF: I guess it might. Maybe. There’s already something people can put on their eyelids to help their eyelashes grow, so maybe they will invent a version of that for the whole head

B: Well if I get bald, and Rogaine doens’t work yet, could I have surgery to help me grow hair?

BF: There is a surgery some bald men get, but it usually looks kind of weird. And if you were bald from chemotherapy, you probably couldn’t have hair surgery right away, and remember that electrician? He had the surgery to put hair on bald spots, and it looked really bad

B: I really don’t want to be bald for the tricentenial

BF: I think when you’re in your 70′s, you’ll have very nice hair and—

DEX: Zzzzt! Zzzzt! Zzzzt! Zzzzt!

B: It says I’m 46, with the arrow going diagonally down

BF: Ohhhkay

Permalink 4 Comments

03May / 2013

OCD Pancakes Day 4

Carb-reduction/aesthetic/Dexcom pancake experiment continued:

Today full paleo: egg + coconut milk + almond flour + baking powder + butter for pan. Batter so, so gloppy/eggy/hurl. Don’t look.

I mixed it more thoroughly, and then it was significantly less repulsive.

I mixed it thoroughly, and then it was significantly less repulsive.

While cook, fragrance atmosphere scrambled eggs.

White chocolate chips, you're a hard habit to break. But you're just a 3g hard habit. Plus 10g CHO in maple syrup.

White chocolate chips, you’re a hard habit to break. But you’re just a 3g hard habit. And real maple syrup, you’re an even harder and carby-er habit to break. My whole family loves you to bits.

Almost there.

Bubs not notice egg fragrance.

BIGFOOT: Notice any difference?

BUBS: (Eating.) Hmm. Maybe.

BIGFOOT: Better or worse?

BUBS: Maybe a little bit worse. Sorry. Yesterday’s** were the best.

(** Yesterday’s = 1T almond flour/1T pancake mix + egg + coconut milk + butter for pan.) (+chocolate chips, + maple syrup.)

Dexcom reports—same/same:

waiting for lift off

still waiting

I am curious if it is ever possible to eat maple syrup and not get a monkey schlong.

Here we go! Is it ever possible to eat maple syrup and not get a monkey schlong? If the timing is just right?

1+ hour after eating–the beginning of the plateau. He was 120something & straight arrow by snack time at school. Whatever. I don’t care. I’m barely keeping track.

A visiting PWT2D in residence left this behind at a friend’s house, and the friend passed it along to us. Yay!

Summary: yesterday pancake taste better, equal BG performance as per Dexcom. Therefore probably maybe stick with middle path, as always turns out best in every case this life except maybe for Better Sweaters wherein more sweaters = morebetter.

Imagine if Bubs like this sugarless maple syrup style product—! Thank you kind person leave sugarless treat on front porch.

To be continued, but probably not with so much blog about.

For official record, new standard:

Imagine how bright the future would be if I made this in a Vitamix.

Permalink 3 Comments

02May / 2013

Pancakes, Pancakes: Day 3 Pancake Mania.

Eggy-er and eggy-er.

As per the slouching toward paleo plan: today’s pancakes had 1T Arrowhead Mills pancake mix & 1T almond flour & 1 egg & one dribble of unsweetened coconut milk. And butter for the pan. And maple syrup.

Batter so gloopy.

I was worried the visible almond flecks would disrupt the diner’s enjoyment but they went unnoticed.

Somehow this made NINE silver dollars, each with 7/9ths of a gram. Oh–but there’s a chocolate chip in each one. So more like 1.5g CHO per silver dollar. We still use tree syrup. That adds 14g CHO to the plate. But he never uses it all. So about 25g CHO for this shebang. Is there a sugar-free syrup that a person would want to eat? (Smuckers and Hungry Jack have been rejected.)

Again, he did not notice any difference. The batter was so, so gaggingly eggy. They smelled and looked normal once they were cooked.

Dexcom result:

Is that kind of something? How quickly the BG dropped after the pancake oomph? A rolling hill would feel better to a person, I imagine.

Tomorrow try: just egg, 2T almond flour, dribble coconut milk, butter, T maple syrup. Just for experiment.

Dexcom Shape Game. Turn on side, maybe Quentin Blake-inspired sketch of Bermuda Bobby.

A Bobby wouldn’t really wear this shade of lipstick, but I couldn’t figure out how else to indicate “this is what I was thinking could be the mouth.”

Permalink 10 Comments

01May / 2013

Moron Pancakes II

Today Phase I lower-carb pancake extravaganza: same egg, half as much everything else as original Satisfactory Pancake.

Phase I formula

Batter felt too eggy against whisk in Bigfoot bowl. Brain felt sure Bubs find repulsive.

It globbed off of the spoon like little omelets. And then I put one white chocolate chip into each mini-omelet. Gross and grosser.

Au contraire! Even when badgered w. leading questions, Bubs not bother articulate difference. Do these taste different? No. Are they kind of eggy? No. They taste good. They are the same. Do you think it seems like fewer pancakes? I don’t know. Do you like them? Yes. I think you should move your pump. I’m not sure it’s maple syrup-proof. Okay.

Nice things about silver dollars: easy to flip. No fork required. 2g CHO per extremely eggy pancake.

Dexcom report. Here we go:

30-ish minutes after eating; 40-ish after bolus: no signs of anything.

Seven minutes later:

It’s business time.

Where plateau? Such suspense:

I called game over at 8:20.

Here’s the latest Dexcom fashion in our house: Tallygear across the chest.

Across the chest and under the arm, as people on cruises are taught to wear their passports, in order to outfox pickpockets.

Like a bandolier. Or a defensive traveler with a passport case strapped on in a complicated manner, in order to outfox pickpockets.

Summary: results + schemes.

Slouching toward paleo. You can make a crumpet, waffle, or pancake with zero carbs—just eggs, almond flour, and baking powder. But it will probably be too gross to eat, right? Imagine if you had morning sickness and someone gave you eggs with white chocolate chips. Stop. Don’t imagine it. I am sorry.

Permalink 5 Comments

30Apr / 2013

Good Things XI

Pancake part long. Non-pancake obsessives advised skip ahead two gems at end.

More on Pancakes = Moron Pancakes

Here some words re pancakes. Already (over)share Satisfactory Pancake.

New part of equation #1: pancake = excellent way dispatch unwanted (yet so gourmet!) duck eggs from city friend back yard chickens (marauding ducks lay eggs in chicken coop). Each week, 2-3 duck eggs part of dozen. Duck eggs make Bigfoot/Bigfoot spouse hurl (BSpouse literally so). Bigfoot only use if hidden in something else.

New part of equation #2: Dexcom G4. Far as Bigfoot recall, only eat mini bagel or oatmeal or half-oatmeal breakfast since begin Dexcom G4. Recently, Baker Jack reinstate traditional weekend pancake. Luck would have it, Jack mix blueberries into batter. Unsatisfactory: Bubs no truck w. blueberry. That how come opportunity make duck egg-Satisfactory Pancake.

All the better to mess with you, my dear.

OMG seriously this long-winded pancake tale?

OK. So. Satisfactory Pancake w. duck egg/no chicken egg but make silver dollar instead of caker size of face. This convenient stalling mechanism for lengthen “pre” in pre-bolus. Also makes heap silver dollar pancakes. (Note to self: I could easily make half as many next time and he would not even notice. But still use the whole egg! Mwah-ha-ha-ha.)

Bolus. 6:50AM. Eat 7:05AM. Nothing happen, nothing, nothing. 7:30AM diagonal up. 8:30AM plateau @175. Smattering applause. {Curtsey/tip hat.}

175 high, sure, but if anything less = worry too much insulin. So. 175 practically perfect. Maybe bolus 30 minutes advance, lower plateau? One hand: sincerely, WHO CARES? Other hand: sincerely, MUST EXPERIMENT/GOAL PERFECTION/HOW ELSE EVER LEARN SOMETHING?

More breakfasses:

Remember try Pumpkin Pancake. Recommended by Ranting. Remember try again Paleo Waffle recommended by own self. Remember try Paleo Crumpet even though no microwave. Can try in oven-oven.

Love

Not to be overly dramatic. But. This is from a book called THIS IS HOW: SURVIVING WHAT YOU THINK YOU CAN'T and a famous librarian brought it to my attention and I thought: holy shit, I needed that.

This is from a book called THIS IS HOW: SURVIVING WHAT YOU THINK YOU CAN’T and a famous librarian brought it to my attention (photo courtesy F.L.) and I thought: holy shit, I needed to hear that. On the other hand, in terms of diabetes? Maybe D is the anti-love of my life. But also maybe in its own way it highlights the love, like how darkness lets us see light and all that jazz.

Shapes

Part of thing long for pre-Dexcom, in addition sleep/health/etc., was become part of conversation of see animals/shapes in Dex graphs, as if romantic day in park look @clouds. Persons say “That’s Kermit the Frog reclining!” or “That’s a hungover giraffe!”

This week, Bigfoot post Dexcom @Facebook & get—as if so famous archetype, barely worth mention: ah, the shark with scoliosis.

If like shark w. scoliosis, take peek this gallery.

Permalink 9 Comments

27Apr / 2013

39 vs. 86 Calibration

Is that a sincere 39? Or is 39 Dexcom lingo for “you’re very special” ?

Read/know/not quite believe Dexcom calibration rules. I.e. 2x day = best result, only more if 20%/20 points off. But:

seems like more calibration better but not better
really no problem/not mind enter #s more often/no sweat
difficult explain, just believe scientists
almost impossible trust thing brain can’t grasp, e.g. top secret algorithm

And Bigfoot inclined ENTER BG whenever Dexcom exactly spot on. “Good for you!”/hearty encourage. Example: bed time VIQ 112, Dex 110. What harm pat on back? Refrain, but so much want recognize Dexcom job well done. Employee of month.

Would be easier follow calibration rule if understand. When investigate, quickly run into something re polynomials. Oh. Vast, vacant space head where that math belong. And graph even less familiar. And Gary Scheiner says really, really stick to 2x day. Therefore try very best just trust calibration rule. And go to sleep.

Hour later, AWAKE! No Dex buzz, just normal Bigfoot anxiety. Morning train Boston, meet Bigfoot Mom for Book of Mormon musical. Maybe kind of worried miss train? Also really into Netflix binge-watch The Killing—another perfect show for D-parent all-nighter. Ergo as soon as teeny bit conscious mind, begin sniff out opportunity watch The Killing. Even though know need sleep. Peek Dexcom: 110.

Think need glass water. Think maybe OK tiny peek The Killing. Mid Episode 8: Stonewalled, Dexy buzz. Different buzz from usual. ZZt-zzt-zzt-zzt! LOW UNDER 55. VIQ 86. Scroll Dex ENTER BG for consider calibrate. ENTER BG screen shows 39. Decide not calibrate. Decide Juicy Juice. Decide worry about so frequent rumors VIQ runs high. Decide little bit more The Killing. Realize now brain fully awake. Dex buzz normal buzz for normal LOW UNDER 85. Zzzzt-zzzt-zzt. Display BG#60. Juice working. More The Killing. Weird buzz again for LOW UNDER 55. Not calibrate, but go to calibration screen for see number, because main screen just LOW. Calibration screen: 39 again. VIQ 87.

So. This matter of Dexcom lag/juice effect not yet reach interstitial areas or—but wait shouldn’t 15g CHO juice create more lift than 86–>87 on VIQ? Need more juice or need more wait-and-see/The Killing?

ANSWER: more juice, more The Killing.

But when arrive upstairs Juicy Juice in hand, Dexcom 55 w. arrow up. That good news. Then 60 arrow up. Even better.

NEW ANSWER: The Killing Episode 9: Undertow, Juicy Juice on stand-by, no calibration.

Permalink 6 Comments

25Apr / 2013

Endo Notes

The A1c technician had scrubs in a lovely shade of orchid. We appreciate solid color scrubs in pediatric medicine. In the hospital we encountered Spongebob Scrubs, which made the whole scene feel like a really tedious birthday party BUT WITH IVs.

Yesterday = quarterly Endo appointment.

As usual, sift through scrawl after appointment, try remember new tips re How to Be.

Rate of Digestion

He seems to digest his food slowly—it seems like it takes more than two hours. (Do you mean the insulin peaks after more than two hours?) No, I mean the food continues to effect him for more than two hours. But that could be good. It could mean he is not eating a lot of junk food…

BUBS: I love junk food!

…because you know, we’ve learned that high fiber foods stay with you longer, provide a more sustained energy source.

Bigfoot kind of put off by this kernel. Seriously, endo think Bigfoot family not aware dietary fiber? Also: what to make of Bubs’s allegedly slow digestion? Seems normal digestion for Bigfoot science because food/insulin both last approx-but-longer-than 2 hours. Was this some endocrinological mutterings or was information for use? And if latter, what use?

4′ 9.25″/ 77.8 lbs.

Hmmh. He has grown taller, but has not gained any weight since last time; and that time he had lost some weight since the previous appointment. (And is that ok?) Yeah, it’s fine. He’s probably just very active. You might want to try to give him more to eat, but look at him: he is not skin and bones. Well, maybe try to feed him more but don’t worry about it. His BMI is still normal.

Again: this A Thing? This mean maybe not enough insulin for body store new muscles/fat? Seemed more like casual front-porch musings than actual directive.

Thyroid

Yup, thyroid’s still there. No need for any hormone replacement yet.

Damn! Should have asked if allegedly slow digestion is thyroid clue. But then would gain weight—like what happen w. Oprah.

extreme close-up (FINGERS)

Callouses

Dexcom buzz w. blood drop icon while in appointment, Bubs test for callibration. Endo notice Bubs’s Fasclix method of click-click-click instead of just one click at deeper setting. Bubs likes setting 2.5, even though takes multiple tries. Bigfoot use 3.5 @night, just one pop & DONE. Endo agog: Bubs, you should not have to poke yourself that many times! Doesn’t it hurt? (Bubs shrugs not really. That’s just how I like to do it.)

Then endo examine fingers. Did you know that you should never be ashamed of your callouses? They’re what makes it possible for you to get pokes that don’t usually hurt. Then this: See this? He’s getting too close to the center. Bubs, you shouldn’t be poking here. Go more toward the fingernail, stay to the outside. There are so many nerves at the center of your fingertips and you don’t want to create nerve damage.

Well, shoot. Everyone know that. Learn in hospital. But sure enough, examine Bubs’s fingers up close, callouses creeping toward center. Sorry. Maybe some benefit if become classical guitar player?

Dexcom G4 Platinum

Apparently Bubs this endo’s 1st patient w. DG4P. Marvel at size. Report transmitter much larger than Medtroinc’s transmitter. Does it bother you at all?

BUBS: No!

ENDO: Not even when you’re sleeping?

BUBS: Nuh-uh

ENDO: Do you wear it all of the time?

BUBS: Yup.

ENDO: Doesn’t hurt?

BUBS: No

ENDO: Does it hurt going in?

BUBS: Nope

ENDO: It is kind of a pain having to carry another device?

BUBS: I don’t care

ENDO: You have to carry it like a necklace?

BUBS: Or on my Spibelt with my pump

ENDO: Do you ever feel like you could do it like some kids wear it for three days and then take a break for a month?

BUBS: No, I like it.

While underway, questions seem kind of geared toward DG4P disillusionment, but afterward realize questions are for help Endo know what tell other parents/kids. Tell them like Macklemore: This is hmm-hmm awesome.

Bolus Insulin/Basal Insulin

Vaguely remember ideal is maybe keep amounts pretty even? Like…if 9 total units basal/day, should bolus 9 units/day. That even true? But as Endo delve into unknown areas pump, notice bolus much more than basal. One day he bolused 22 units! So make some adjustments: oomph up morning basal, decrease breakfast insulin. Also decrease dinner insulin from 1:15 –> 1:18. Like that.

Sites

His sites look great. Perfect. You can keep using just your bum. That’s fine.

A1c

6.1. That tiny peep higher than last time. Probably insignificant.

They Just Keep Coming

On way out, endo call in next patient. Sweet little mocha cream puff of girl dressed in hydrangea shorts-tank top, foldover ankle socks, sneakers/dark circles-eyes mom/actively weeping abuela clutching crumpled tissue wad.

Permalink 10 Comments

23Apr / 2013

Bad. Worse. Worst Possible.

The Purple Happy Friends could represent almost anything. The fish tank definitely represents a toilet.

Toilet.

Even if poop there already, still room for pump. It gravity law. Help! My pump fell into the toilet and I can’t get it out because there’s poop in there! (I’ll get Daddy.) Moment later Daddy walk toward Bigfoot, pump on towel held in front, tubing still connected naked Bubs, three people stand stare at each other/pump in hall wonder what next.

Answer is 1) disconnect from child 2) alcohol swipes 3) wash hands 4) reconnect. EXTRA CREDIT: change tubing/moisturize.

(Also: yay Ping! <–When Blues Clues man Ping promotional video demonstrate waterproof, kiddie pool = euphemism for shit-filled toilet.)

Doubt.

For calibrations: split the difference?

Love VerioIQ because headlight. But lately trip over many mentions VerioIQ legendary unreliable/reads high. Sort of with tone of “everyone already knows that this is a cool- looking meter but that it doesn’t actually work.” Then notice in own life so often VIQ way higher than Dex which—while perfectly appropriate blood meter few hops ahead interstitial fluid meter yadda yadda yadda—just make Bigfoot doubt veracity whole operation.

Dex display blood drop icon; calibration: DEX 112/VIQ 150. Enter 150. Then Dex 137. But kind of want tell Dex you know VIQ is exaggerating, right? I mean, that’s part of your algorithm, right? Maybe it Bigfoot job downgrade VIQ#—especially when calibrating.

Very unwise read Amazon reviews VIQ (notice no link) because quickly devolve into person saying tight control not matter, can attest because experimental chemotherapy drugs injected into his (plural body part) (periodicity) for (famous diabetes problem not cancer).

For now, Bigfoot hope VerioIQ not any more unreliable than any other meter, because approx. 1,000 test strips in closet.

Death.

Over course of past 19? months, Bigfoot slowly convinced T1D = huge hassle but not so, so scary. Today Riding On Insulin fundraiser email arrive w. theme Jesse Alswager. First time heard name. Google show 7th grader obituary, “died from Type 1 diabetes.” What/how? More google, online discussion, other D-parents so sorry ask, but wonder why dead, what #, what ketones, what-what-what. Then this:

“There is nothing to really tell you other than the autopsy really proved nothing. He bolused insulin at 11:00 am on a morning that felt like nothing different. He said he wasn’t feeling great and wanted to stay home. I figured it was because he and I had stayed up late and watched Kindergarten Cop laughing the night before. When his dad came to pick him up he found him slumped over his bathroom sink at 3:30. No time for a coma. No warnings. No vomiting from ketones. NO NOTHING.”

Bigfoot never hear of this. Not only not hear of healthy-fun-adorable Jesse Alswager until today, but also not hear of child just die no reason/no DKA/no hypo. Cardiac arrhythmia like ____ in bed or other thing or what? So so so so sad. Also so curious. Jesse Alswager’s mom JDRF activist/ROI Director of Development w. blog here.

Maybe nobody mention Mystery Deaths because nothing to do except feel terrible which proven 100% ineffective against death. Also maybe because anybody D or no-D could die Mystery Death, impossible prove T1D as cause? But. Oh. Jesse.

Permalink 14 Comments

← Older posts Newer posts →

Bigfoot Child Have Diabetes

The Entertainer

Dress Rehearsal

Low People Problems: Efficacy of Rogaine at the Tricentennial

OCD Pancakes Day 4

Pancakes, Pancakes: Day 3 Pancake Mania.

Moron Pancakes II

Good Things XI

39 vs. 86 Calibration

Endo Notes

Bad. Worse. Worst Possible.

Bigfoot say other thing

Bigfoot have facebook page

Bigfoot sure this not right placement Pinterest button

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