Endo Day

We arrived with extremely neat data and a chocolate square which says "I'm not as uptight as this data makes me look. Here, it's grocery store chocolate. Don't we have fun?"

I’m not as uptight as my data presentation makes me look. Here. It’s some Easter-theme chocolate. Because I’m so much fun.

Endo day. Everything fine. Feel fine, look fine, weigh fine, blood pressure, etc.

Surprised hear remarks on future. I can guarantee—I can’t really guarantee—but I do believe by the time you’re in college, there will be a cure and I definitely think there will be an artificial pancreas by the time you’re in high school.

What? Whoa. Really? Is this where knowledgeable people roll eyes/that’s what they told me in 1985. Or is some science happening makes this thoughtful, intelligent person say things feel so radical? Bigfoot goosebumps/Bubs remain unimpressed. Slumped in chair, wears baseball uniform, already one hour late baseball. Ever thinks/dreams of cure? Not sure imagines different way to be.

Endo download Dexcom. Graphs look ok. Frankly Bigfoot no idea what ok this context. Standard deviation = 47. What? No idea normal/nice/bad. Endo thinks ok/nice. Mentioned not many low lows; only one under 55mg/dL. 55mg/dL some meaning? Never heard of 55 as landmark for low.

skitched-20140422-204831Very last thing = A1c 5.8. Feel surging joy-fire in chest what what what?! Then remember no judgment, not good/bad, just data.

Not in congratulations way, buy sushi & pie. Neutral face. Here is sushi. Here is pie. Five point eight.

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6 responses to “Endo Day

  1. Your kid is a BOSS! Look at that swagger and 5.8 t-shirt! I want that to be a real thing. Let your joy-fire burn and enjoy every second of it!

    Also, I will say that I personally really, really believe that I will be wearing some very good/accurate version of an artificial pancreas by 2021. My rational is that 2017 is too aggressive a time frame, but another 4 years after that should be enough time. Cure = no, but artificial pancreas = yes.

    Side note, while not as popular as the artificial pancreas, I am gaining excitement for JDRF’s research on encapsulation. Going to a presentation on it May 22 in St. Paul.

    Liked by 1 person

  2. 1983 = “a cure in five years”. Do I need to say more?
    OK, yes I do. Until they can find a way to turn off the killer T cell response, any transplant or implantation of calls will not work. I’m not taking anti rejection medication, which have horrible side effects.
    I’ll take a closed loop AP instead. (And unless your endo knows something that researchers don’t, that comment was not cool about a cure.)
    And booya on that 5.8!!!!!!

    Liked by 1 person

  3. mollyjade

    I’m not holding out for a cure anytime soon. But some of the artificial pancreas studies look pretty promising. Here’s hoping the FDA doesn’t drag its feet too much.

    Liked by 1 person

  4. Linda

    Don’t know if it’s excessive or insufficient empathy that moves them to say that 5 years thing. Maybe it depends on the doctor? Or maybe it’s just true! When it happens, some of us will be just ticking past the 5 year mark, right? And I am in awe of your 5.8 score, without tons of lows! Also truly happy for you. Well done!

    Liked by 1 person

  5. I have three of the four things on your son’s dx list, so I really appreciate those captions.

    Also, much like Christel, I am looking more toward the AP than a “cure”. That darn autoimmune response is just looking to target us again!

    Liked by 1 person

  6. I don’t ever remember being promised a cure . . . ever. But it bugs me to hear people were / are in a certain amount of time. Blargh.

    Like

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