Endo Day

Endo today.

Summary:

  • Taller, not gain any weight, that is fine but unusual but not indicative of anything wrong but same thing had happened last time but still, really, that is ok
  • How are your poops? Fine. <—Why always ask?
  • Do you get up at night to pee? Nope. <—isn’t this more of a pre-diagnosis, decide whether bother haul out pee pee strips to test new potential diabetic person?
  • Any tummy aches? (Grabs tummy) No, but I’m really hungry. Is this almost over? <—(Pardon rude answer) What this question? Maybe Hashimoto thing?
  • Question for mother: Any sickness? Any ketones? No. Any changes with anyone in the family? No
  • Sites look fine
  • No psoriasis; that nice
  • Don’t blow on finger for speed up alcohol dry. Alllll of the bugs in your mouth go right onto your finger so you have to re-wash it
  • Approves of leave Dex sensor in until falls out
  • Thyroid “slightly swollen” (Hashimotos, nothing to do)
  • Bigfoot request change Humalog Rx from vials to cartridges, as learned @FFL “Pumping Tips and Tricks”
  • Also request Rx for replace FastClix lancing device bc one got kind of sandy/not optimal performance
  • Next appointment: October
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It’s a fine A1c, except for being the second consecutive higher one, and except for the turdy color combination

Thank you. Stand up. Strap on D-bag, turn to leave. Totally forgot one part.

Oh, and his A1c is 6.3, can’t get better than that!

Say what? Can do better! Know 6.3 fine,/good, but 2013 first was 6.0, next was 6.1. Want to see improve. Not higher, higher, higher, even by little bit. This crazy?

And for more crazy, for Bigfoot synesthesia 6.3 bad color combination: purple-orange. And 6 + 3 = 9 (turd brown).  This Bubs’s 7th HbA1c, so many now can start A1c page.

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17 responses to “Endo Day

  1. i’d actually be concerned if the a1c was much lower than that. lower doesn’t = better once you get to a certain point. hypos are dangerous (sometimes i worry when i see how conservative you are with treating nighttime hypos! and how aggressive with treating nighttime highs i hate to criticize anything D-parents do cuz as a person with t1 i KNOW how impossible it is to do everything “right” and parents take too much shit). having an a1c below 6 is actually statistically higher risk.

    also, living life, and SLEEP are crucial for both parents and kids. short term and long term.

    • Katy

      i needed to hear that.

      i remember learning that anything under 7 has such a teensy speck of benefit, and such a larger amount of risk/vigilance required.

      i’m glad you said what you said.

      • aw, i’m glad i said it then. and yeah it can be hard to figure out how to strike balance among all the worries. thanks for sharing your thoughts/lives!

      • Linda

        For what it’s worth, I agree with amireally. I am convinced that sometime soon the researchers will discover that it is the lows, not the highs, that cause retinopathy. For the past 20 D years (out of 45), when I am low, my vision gets a burned out hole of light in the center. It’s how I know I’m low. Doc says, “Oh that’s just cause vision is hugely ATP dependent and ATP is fueled by glucose, so low glucose = blanking vision.” And I think, don’t say, “So how is that not a red flag for retinal health? Maybe sporadic plug-pulling on retinal cells causes them to try to make more retinal cells to cover the gaps or something? Grrrr.”

      • Katy

        never, ever, ever thought of that. ever. never considered long-term complications from lows, except maybe a super low causing brain damage.

        thank you for this. you’re rearranging my paradigms!

  2. you guys are doing an amazing job! somewhere there is balance between on target a1cs and sleep/life. i’ll let you know if i find it. ;)

  3. you crazy, girl! nice job!
    i learn so much cool stuff from you. synesthesia = fasinating.

  4. I have never in my life been asked about my poop (by a medical professional). Ha! I say anything at 7 or below is great, as long as you aren’t fighting lows constantly. Logically, I know 7 is good and safe, but then I read some story about a T1D who says, “and I’ve kept my A1c under 6 for 2 years now” and then I think, “OMG – I must be killing myself with a 7 (or higher)…I need to get under 6!!” I (we) need to stop comparing ourselves and our treatment plans against others. As your son gets older and takes over more control he’ll also get a better sense of what he’s comfortable with.

    • Katy

      An A1c of 7 is what the hospital gave as a target/goal to us at the beginning—in the same phase as the whole 15g/15 minutes, bolus after eating, etc. So it’s hard for me to relax into a 7. Because the rest of that info was bullsugar.

      But if a 7 is OK with you, then a 7 really is OK! And I like that you don’t say, “I personally have a 5.7, but a 7 is fine.” I guess it’s mostly people with low ones who mention them. Or people with extremely high ones, who are confessing. Or I only notice the extremes, and skate right over anything with a 7 in it.

  5. Now testing your A1C is not that precise … Like everything diabetes nutrition labels, glucose strips and your A1C number can all be off plus or minus 20% … So I wouldn’t worry to much about the difference between a 6.1 and a 6.3 … It is all just an educated guess anyway!

  6. You are doing great! That A1C is rockstar quality. Keep it up and don’t be too hard on yourself.

  7. I’m with you…I want to see a continually improving number for all my efforts and her struggles. That’s what we’re working for is a better, healthier now and future. Thanks for telling your (his) a1c…some don’t want to mention for fear of people’s comments I guess. For me it is good to see. Good to see these ladies’ comments, too. I know about the “danger” of going low. I’m hoping that is one of the things that is less dangerous now with the use of the CGM. Certainly catching any drop faster with it…can see the trend and head it off a lot of times. BUT–scary thought that LOW blood sugars may cause retina problems as much or more so than highs. And, yeah, a healthier, rested mom would be beneficial I know…rather than the sleep-deprived Dexcom-stalker that she has now.

  8. I skimmed through the comments, so not sure if someone else mentioned this, but…..A1c is really an average, right? So, unless you are truly looking at the numbers to see percentages of highs and lows, a 6.3 for one person could be different from a 6.3 for another person. One of those could be due to tons of highs counteracted by tons of lows. Or, it could be that you’ve kept your sugar at a reasonable level the majority of the time, so the numbers average out to be a nice and neat 6.3 because, they were pretty much always kept in the good range that equals out to a 6.3. THAT is the fabulous kind of 6.3, and I’ll take that one over a 6.0 or below that was gotten by having far too many highs/lows/scares any day!

  9. mollyjade

    It sounds like y’all are doing great! I bet the stomach ache and poop questions are looking for signs of celiac.

  10. I’m totally jealous of that A1C. Just sayin’… :-)

  11. Autumn

    The poop question could also be related to diabetic diarrhea. See this older post from LeAnn Thill. http://www.thebuttercompartment.com/?s=poop I’m actually going to ask my endo about this at my next appt.

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