Insyoolin

Kind English person call Bigfoot from car.

KIND PERSON: Are you listening to NPR right now?

BIGFOOT: No. We just got home

KPERSON: There’s a brilliant scientist on Terry Gross, talking about neonatal diabetes. You have to hear this. You will love her

BFOOT: Is it on GBH or RNI?

KP: It’s on 88.1. That one. Oh, never mind. Now she’s talking about heart disease. Try to find it though. You would really love her

It true. This voice, this smart British scientist, a balm. Da bomb. Listen describe why new treatment neonatal diabetes important. If impatient, skip ahead 8:35 in recording. The voice. Like hug from less sexually threatening Nigella Lawson. Bigfoot love science. Thankful science care for disease, even different Type, and so beautiful voice.

Science part very interesting too, Bigfoot never hear of neonatal diabetes. Electrons. Ions. Spark of life.

TERRY GROSS:…to live life without the encumbrance of an insyoolin pump (even Terry Gross starts saying it the British way!)

FRANCES ASHCROFT: It’s not trivial…if you’re an eighteen year old and you want to wear a slinky, sexy dress…what do you do with your insyoolin pump for your prom? She had to strap it to her leg…with, sort of, package tape. That’s not very comfortable when you’re dancing. So you can see…it does matter. It also matters if you’re wearing a pump and you want to go swimming…you have to take it off. And then put it back on again. It’s not very nice…just…injecting yourself every day, especially if you’re a parent who’s got to inject a tiny baby several times a day…that’s not so easy…

Must hear voice.

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4 responses to “Insyoolin

  1. julia

    Maybe I am misunderstanding but sounds like she is rubbing it in a bit for those who have no choice but to wear an insulin pump or use injections. Very few children with Type 1 Diabetes will fit into the monogenic diabetes category, where the baby or child gets to trade in their insulin shots/pump for oral meds. It’s not very “nice”??? It’s uncomfortable? Not easy? Where do you put the pump while swimming? Going to prom? There is no choice: Either attach your child to a pump 24/7 or MDI four to six shots a day PLUS during puberty and the teen years. These issues must be relegated into the “minor” inconveniences of life…. your child must adjust in order to survive, physically, as well as emotionally. And we have to give our kids the attitude that the inconveniences of wearing a pump……it’s no big deal. I’m not going to make my kid self-conscious by harping on these minor details (though I agree). Pump therapy is my child’s best chance to survive this illness long term. Maybe the pump companies can finally, finally reduce the size of these devices further. Maybe they can develop SmartInsulin; noninvasive glucose monitoring VERY long overdue. Our child will never be on oral meds…. can’t get too excited about monogenic diabetes here… I’m envious, if truth be told. But for those diagnosed as babies, get the test; a monogenic diabetes diagnosis could be life changing.

  2. Shoot. I clanged the wrong gong. I transcribed just a tiny scrap of what Dr. Ashcroft said. From listening to the interview, I came away with an impression of a brilliant scientist who is motivated by a deep love? respect? for humanity. Even though her discovery lead to people with neonatal diabetes (some 0.0000005% of the diabetic world) being able to use an oral medication instead of insulin injections/pumps, I found it very moving that the nitty gritty details (packing tape, parents injecting babies…)of these lucky people’s lives meant something to her. Also her voice is so lovely.

    Maybe I just have a severe case of that facebook meme that’s going around: IF I HAD A BRITISH ACCENT, I’D NEVER SHUT UP!

  3. can’t listen now but leaving tab open to listen later because INSYOOLIN!

  4. i feel smarter just having listened to those two talk!

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