Seizure-y

Bubs’s Lantus dose 9u now. 7u before. CDE advise test 2AM one or two times, make sure not go too low in night. Tell Bigfoot not need worry, Bubs “is just a normal, growing boy with diabetes.”

As imagine, Bigfoot not 100% keen on 2AM finger prick. Therefore agree camp out by fire, try make mild homestyle adventure. Bubs in sleeping bag, Bigfoot on sofa. Two new New Yorker magazine arrive while Bigfoot in Bahamas, eager read article with Darwin/altruism/vampire bat regurgitate blood into mouth of starving fellow vampire bat.

Settle in by fire. Bigfoot have magazine open, sheepskin spread over sofa, big duvet all to self. Alarm set 2AM. Bubs in sleeping bag, rosy cheeks, hair damp from shower.

BUBS: I feel like I can’t fall asleep

BFOOT: Maybe you’re too hot

BUBS: Yeah

BFOOT: Let’s skooch you away from the fire

BUBS: OK (sets sleeping bag and pillow up a few feet further away from the fire)

BFOOT: (goes back to reading vampire bat article)

BUBS: Or maybe I can’t fall asleep because I just feel so low

BFOOT: You do? (Hops up to get finger pricker. Bubs handles the pricker and runs the test)

BUBS: 39

BFOOT: Thirty-nine? Really? (Runs into kitchen to get candy corn)

BUBS: I’m sorry

BFOOT: It’s not your fault! Are you eating those?

BUBS: It is my fault. I should have told you sooner

BFOOT: Did you eat all seven?

BUBS: Yeah

BFOOT: Did you feel low and not say something?

BUBS: No

BFOOT: It’s not your fault! Honey, you know it’s not your fault at all

BUBS: My legs feel weird. They feel all…seizure-y

BFOOT: They do? (Starts rubbing his legs)

BUBS: Yeah, it’s like I can control them and make them stay still but it’s really really hard to

Now at 99. Bigfoot pause. Think. What different? Switch cow milk for sugarfree coconut milk, unsweet almond milk. Also Girl Scout cookies arrive. Also, swim YMCA minnow no guppy (rigorous.) But what if LANTUS whopper dose the problem—low come back again, again, again? Really need hypoglycemia awareness dog. Ask spouse check again: 137.

Meanwhile, for happy thing, Sam Talbot cookbook arrive. Bigfoot recommend. Sam Talbot so handsome, so healthy, Type 1 since age 12, professional chef, surfer, book of recipe also have practical advice for how carry syringe in pocket, how organize supplies in home, how bring all need in waterproof box for surf. Still huge hassle but gorgeous book make feel better this topic. Wee bit. Bigfoot family decide make pilgrimage Montauk, find Sam Talbot restaurant. Book feature photo Sam Talbot test blood sugar–same blue meter as Bubs, but Sam Talbot meter all scratched up (sandy lifestyle).

Lemon ricotta pancake. Sam Talbot say eat only one time in year because splurge. Sam Talbot limit carbs under 90/day (20-30/meal.) Bigfoot so far away this goal.

One Samoa cookie: 10g carbs. Seems like should be more.

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3 responses to “Seizure-y

  1. Zak

    1. 39. I would have fainted. I’ve only seen Zoe at 44 because of too much Lantus.

    2. Zoe takes 4 units. Do you take Lantus too on the pump? I thought it was one kind of insulin only.

    3. Yesterday at breakfast, I gave Zoe Lantus instead of Humalog. Low all day. JESUS H.

    4. I am ordering that cookbook tonight.

    • Thank you so much for reading this and for your attention. We’re starting with that pump at the end of this month. I wish we had a 4u dose instead of 9u! That makes me think Zoe has a better kind of diabetes.

  2. who is SAM FULD? i want to go to that guy. also: your pieces are consistently making me well up and crack up at teh same time.

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